I don't feel like I know enough about this yet to make good suggestions, but I'm sorry to hear the scan news wasn't better. What are your doctors recommending?
Thinking of you and wishing you the best.
Bad news
Re: Bad news
Last edited by lpas on Wed Mar 11, 2015 8:38 pm, edited 1 time in total.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
Re: Bad news
Olivia
Just want you to know you are in my thoughts! I have no other words, but we support you!
Just want you to know you are in my thoughts! I have no other words, but we support you!
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc
Re: Bad news
Consensus is we all.want you here and fighting!
Hugs to you and peace
Hugs to you and peace
DS 26 yrs old diagnosed 6/13 T3N2aM1b
Resection 6/13
6 rounds chemo folfax
12/13 Fissure
hernia surgery 12/13
5 months break
Maintenance chemo 3/14
Crazy growth. Liver failing. Folfox and vectibex 7-29-14
Chemo failure Hospice 8/26
Left us 8/28
Resection 6/13
6 rounds chemo folfax
12/13 Fissure
hernia surgery 12/13
5 months break
Maintenance chemo 3/14
Crazy growth. Liver failing. Folfox and vectibex 7-29-14
Chemo failure Hospice 8/26
Left us 8/28
Re: Bad news
((((HUGS))))
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED
Re: Bad news
Dear sweet Olivia, I hope today is a better day than yesterday, and tomorrow will be better still. You are loved here!
Re: Bad news
I am so sad to hear this, Olivia. Let me know if there is anything I can do for you.
cb <3
cb <3
39y female Stage IV
diagnosed April 2012
sigmoid resect May 2012
liver resect Aug 2012
Folfox Oct 2012
lungs Sep 2013
R and L laser lung resection Nov 2013/Feb 2014
FOLFIRI and Avastin Apr 2014 ongoing...
diagnosed April 2012
sigmoid resect May 2012
liver resect Aug 2012
Folfox Oct 2012
lungs Sep 2013
R and L laser lung resection Nov 2013/Feb 2014
FOLFIRI and Avastin Apr 2014 ongoing...
-
kimanne
- Posts: 44
- Joined: Sat Sep 03, 2011 10:47 pm
- Facebook Username: kim.garner.goodrich
- Location: Rochester, NY
Re: Bad news
Hi Olivia, I don't think we "know" each other, but I have been a member for a few yrs and an official "lurker". I have been particularly interested in your story, since we have a lot in common. I just found out in Dec that I had spots on the bone in my pelvis. Freaked.Me.Out. Then I calmed myself down, with the help of my doc, who is very encouraging:) I just had the 2 spots zapped this week, because it was getting painful to sit. I think you sound remarkably calm and are handling this all so well. Once you see your Onc and get a plan in place, I think you will feel better. I would recommend that you blast that spot out of your rib and then gear up for chemo. You can do this. You did it before and you can do it again. Knock it all back down and keep on keepin' on!
DX 11/10 st 3 at 45 yr
Folfox 1-4/11
Rad 5/11
6/11 Scan - Primary gone 2 LN-St 4
Folfox Avastin 8/11
Rad 10/11
1-12/12 Folfiri Avast
3/12-12/12 Scans,shrinking
1/13 5FU&Avastin
4/13 Avastin only-stable
5/14 STROKE
7/14 Recurrence
8/14 APR
Folfox 1-4/11
Rad 5/11
6/11 Scan - Primary gone 2 LN-St 4
Folfox Avastin 8/11
Rad 10/11
1-12/12 Folfiri Avast
3/12-12/12 Scans,shrinking
1/13 5FU&Avastin
4/13 Avastin only-stable
5/14 STROKE
7/14 Recurrence
8/14 APR
-
Kathleen808
- Posts: 1761
- Joined: Sun Feb 08, 2009 12:49 am
- Location: Hawaii
Re: Bad news
Thinking of you Olivia. Sorry to hear about the growth. Sending love and aloha.
Kathleen
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace
-
WifeOfMike
- Posts: 1495
- Joined: Thu Dec 20, 2012 9:53 pm
- Facebook Username: https://www.facebook.com/vbass123
- Location: San Diego, California
Re: Bad news
Well my darling Olivia
I was ready to start replying, but my sis SkyPup took the words right out of my mouth....
so I Repeat with Love the words above
Hugs,
Vicki
I was ready to start replying, but my sis SkyPup took the words right out of my mouth....
Skypup »
Dear sweet Olivia, I hope today is a better day than yesterday, and tomorrow will be better still. You are loved here!
so I Repeat with Love the words above
Hugs,
Vicki
Bad Ass WIFE
Hubs: CRC IVA,T3, N0, M1A
Resect/LN Mets 10/12
Folfox4/Avastin 11/12-5/13
Folfiri/Erbitux 6/13-10/13
Stivarga 12/13-4/14
Trial 4/14-/14
Trial 8/14-11/14
HOME Hospice 11/17/14
Guardian Angel 1/1/15
Cost of HOPE? PRICELESS
Hubs: CRC IVA,T3, N0, M1A
Resect/LN Mets 10/12
Folfox4/Avastin 11/12-5/13
Folfiri/Erbitux 6/13-10/13
Stivarga 12/13-4/14
Trial 4/14-/14
Trial 8/14-11/14
HOME Hospice 11/17/14
Guardian Angel 1/1/15
Cost of HOPE? PRICELESS
-
Steph20021
- Posts: 553
- Joined: Sat Dec 27, 2014 4:58 pm
- Location: Ontario, Canada
Re: Bad news
Wishing you well and thinking of you.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
Re: Bad news
Need to hear our beautiful, sweet singing holly sing. . .. Thinking of you --always
DH dx 7/12
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest
-
singingholly
- Posts: 1133
- Joined: Thu Feb 27, 2014 3:37 am
- Location: Northern Italy
Re: Bad news
Gentle friends,
I will see my oncs tomorrow morning, I'll let you know.
Thank you for your being so heartwarming...
Kisses
Olivia
I will see my oncs tomorrow morning, I'll let you know.
Thank you for your being so heartwarming...
Kisses
Olivia
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno
-
pfCml73183
- Posts: 653
- Joined: Sat Jun 22, 2013 7:49 pm
- Facebook Username: Celeste Marie Comeau
- Location: FL
Re: Bad news
I hope you are doing well today, Olivia.
I am thinking and praying for you.
In Peace, Celeste
I am thinking and praying for you.
In Peace, Celeste
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15
Re: Bad news
Sorry to read this Olivia. You are in my thoughts.
Dx 12/12 Stage 3B sigmoid crc T3N1M0
2/13 resection w/ temp Iliost, port insert. Reversal 5/13.
6/13-12/13 Folfox 12 sessions. Oxi stopped @ session 4.
9/14 CT shows 1.2CM nodule on upper lobe of left lung.
3/15 wedge resection left lung (stage 1A lung cancer) no chemo.
9/16 CT/PET shows node activity (SUV 10.6), CEA extremely elevated. Mets from colon. Upgraded to stage 4.
11/16-4/17 Begin Folfiri w/Avastin 8 sessions.
4/19-9/19 endobronchial activity lung mets.
1/20 Stivarga (palliative).
2/13 resection w/ temp Iliost, port insert. Reversal 5/13.
6/13-12/13 Folfox 12 sessions. Oxi stopped @ session 4.
9/14 CT shows 1.2CM nodule on upper lobe of left lung.
3/15 wedge resection left lung (stage 1A lung cancer) no chemo.
9/16 CT/PET shows node activity (SUV 10.6), CEA extremely elevated. Mets from colon. Upgraded to stage 4.
11/16-4/17 Begin Folfiri w/Avastin 8 sessions.
4/19-9/19 endobronchial activity lung mets.
1/20 Stivarga (palliative).
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