Postby Steph20021 » Sun Feb 01, 2015 8:18 pm
@skypup- I like that idea, I think it will help me because if I wake up with no ideas, no pla, no mini goal, then I tend to stay in bed and not feel good about myself.
Lately I've gone back to reading books and this week I'm re-inspired to organize my house corner by corner, drawer by drawer. Maybe I am showing my age but I love all the free youtube that Alejandra puts out on Alejandra.tv.
I try and 1) do something for myself like read, paint my nails, go for a walk, go to a support group or class at the local cancer support place, have a bubble bath, and 2) do one thing for the house- run a load of laundry, load and run the dishwasher, take the recyclables outside and sort them, fold and put away the laundry, toss old items from pantry and fridge, organize something in the office, add items to our donation pile, edge with the vacuum, etc). If I do more than one item for the house and/or more than one item for myself then I find I feel good about myself and what I have accomplished. If I'm not able to do much due to low energy or don't feel like it I don't beat myself up about it, but helps me to have a few ideas.
I think doing a puzzle as mentioned above would suit me too.
I also want to burn a copy of my suggested funeral music, and get more organized and prepared with that stuff to put together an envelope of info and passwords etc that my wife will need. I still need to get my will done and other administrative items like that.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab