My beloved mom's earthly journey has ended

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ammthere 4mom
Posts: 218
Joined: Tue Sep 07, 2010 8:37 pm

My beloved mom's earthly journey has ended

Postby ammthere 4mom » Fri Jan 30, 2015 2:11 am

I am deeply saddened to relay the news of my mother's passing on Tuesday, January 27th. Following several months of decline, mom began experiencing significant breathing difficulties. She was prescribed an inhaler, nebulizer and then oxygen. All helped some but not much. There were two challenging weeks of significant shortness of breath and attendant loss of sleep, decreased appetite and, in her words, she felt "really lousy" most of the day. After refusing to go to the hospital for four days, she woke up after a good night's sleep on 1/22 and ate a full breakfast, lunch and drank normal quantities of fluids. Despite this apparent rebound, she decided to go to the hospital to see if they would accelerate the planned thoracentesis. She had two glorious, alert, restful and pain free days in the hospital and then she rapidly declined with multiple organ failure. As per her wishes, we discontinued life support and spent an incredibly peaceful 8 hours with her, watching her sleep and talking with her. Her passing, while heartbreaking, was incredibly peaceful and graceful.

I sought out the colon club when mom was first diagnosed and was immediately reassured that we could handle this diagnosis. I have laughed and cried with all of the clubbers, frequently shedding tears when a member's journey ended. All in all, the Club kept me sane in an insane situation. Thank you is insufficient but it is all I have.

To all those who are newly diagnosed, please remember that estimates of survival are just that, estimates. Mom was given 24 months and she lived 5.5 years; years filled with love and fun. Live life and know that everyone will continue to be in my prayers.

Anne-Marie
Daughter and caregiver to mom, 72 @ dx in 7/09
Stage IV with mets to liver and lung
8/09-7/12: 24 rounds of Folfiri + 12 rounds Folfox
2013: Zeloda and Stivarga, then 36 rounds of 5FU
10/2014 back to Folfiri

orcasres
Posts: 836
Joined: Mon Jul 01, 2013 10:23 pm
Location: Orcas Island, WA

Re: My beloved mom's earthly journey has ended

Postby orcasres » Fri Jan 30, 2015 2:48 am

My condolences to you and your family. You were a great source of comfort for your mother. Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far

Iitg ritesh
Posts: 173
Joined: Mon Aug 25, 2014 7:11 am
Location: WA

Re: My beloved mom's earthly journey has ended

Postby Iitg ritesh » Fri Jan 30, 2015 3:16 am

sorry for your loss. Life is very brutal.
32yo Dx@rectal cancer 05/10/13, CEA 3.4
chemoradiation, xeloda finished on 02/12/13
LAR surgery 22/01/14, pT3N0, 0/3 nodes, folfox 02/14--06/14 , 8 cycles folfox, 4 cycles of xeloda
Stricture due to radiation, diversion colitis
Reversal 14/10/14
NED

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: My beloved mom's earthly journey has ended

Postby Delinda2 » Fri Jan 30, 2015 4:32 am

So sorry for your loss. The loss of a mother is brutal & I feel your pain. (I lost my mom to breast cancer when I was 18.) At least her passing was peaceful and she was helped I'm sure by having you at her side. Sending you strength and love. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

DarknessEmbraced
Posts: 3348
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: My beloved mom's earthly journey has ended

Postby DarknessEmbraced » Fri Jan 30, 2015 10:28 am

I'm so sorry for the loss of your mother. I am glad that she passes peacefully with her family around her.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19

Cb75
Posts: 1216
Joined: Sun Apr 22, 2012 3:52 pm
Location: Ontario, Canada

Re: My beloved mom's earthly journey has ended

Postby Cb75 » Fri Jan 30, 2015 10:48 am

<3
39y female Stage IV
diagnosed April 2012
sigmoid resect May 2012
liver resect Aug 2012
Folfox Oct 2012
lungs Sep 2013
R and L laser lung resection Nov 2013/Feb 2014
FOLFIRI and Avastin Apr 2014 ongoing...

User avatar
ziggymonster
Posts: 538
Joined: Tue Feb 05, 2013 3:23 pm
Location: California

Re: My beloved mom's earthly journey has ended

Postby ziggymonster » Fri Jan 30, 2015 12:06 pm

I am very sorry to hear about the loss of your mom, losing a parent is always difficult. Be kind to yourself.
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

pfCml73183
Posts: 653
Joined: Sat Jun 22, 2013 7:49 pm
Facebook Username: Celeste Marie Comeau
Location: FL

Re: My beloved mom's earthly journey has ended

Postby pfCml73183 » Fri Jan 30, 2015 12:12 pm

Anne-Marie,
I am sorry to hear of your mom's passing.
I hope you can find peace and comfort in the memories of the good times you were able to share together.
Peace to you and your family, Celeste
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

User avatar
Nik Colon
Posts: 5210
Joined: Thu Jan 08, 2015 3:35 pm
Location: MN

Re: My beloved mom's earthly journey has ended

Postby Nik Colon » Fri Jan 30, 2015 12:40 pm

So sorry for your loss. Peace and love to you and your family.
KRAS-mut G12V,MSS
Stage IVa Sig CC 2 lvr mets 1/12 Ln
(3, =<3 lng spots at dx til 5/16)
=T3N1aM1a 4cmX4mm (lng not included)
dx 12/2014 at age 39
CEA 1/15-4.9, 12/16-4.9 again
neoadj FOLFOX 1/15-3/15 (4tx, 3w/1wo oxi)
Col/Lvr surg 4/23/15 NED
adj FOLFIRI start 6/15-9/15 (8tx, 5w/3wo iri)
1 sml lvr spot/cyst
12/6/16 multi lung spots/mets?
No longer NED :(
My tx ongoing-start 1/20/15
Adding your SIGNATURE, etc

jillbugs4110
Posts: 266
Joined: Thu Jul 31, 2014 3:36 pm

Re: My beloved mom's earthly journey has ended

Postby jillbugs4110 » Fri Jan 30, 2015 1:47 pm

Thank you for sharing with us....your mom sounds like a strong woman...your family is in my thoughts....I still hare cancer it robs us...

peace
jill
Live One Day At A Time
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets :-(
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: My beloved mom's earthly journey has ended

Postby Stanfordmom » Fri Jan 30, 2015 5:42 pm

So sorry about your loss. May your beautiful memories get you through the grieving time.

Hugs to you (((((((((Anne-Marie)))))))))
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: My beloved mom's earthly journey has ended

Postby NWgirl » Fri Jan 30, 2015 7:52 pm

First off, you have my deepest prayers and sympathies. With most of my disease in my lungs, being unable to breathe scares me to death. The experience you shared helps me a lot. Thank you.

May your mother find her final place of rest and peace and in time, may each of you find peace in her passing as well.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

canadiandaughter
Posts: 676
Joined: Sun Aug 17, 2014 11:19 am

Re: My beloved mom's earthly journey has ended

Postby canadiandaughter » Fri Jan 30, 2015 9:15 pm

So sorry about your mom. I am so glad to read that she was able to prove the doctors wrong and have 5 years! Thinking of you and your family.
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: My beloved mom's earthly journey has ended

Postby Steph20021 » Fri Jan 30, 2015 10:00 pm

I have no words but my heart goes out to you and your family.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab


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