O/T not been here Rambling...in a while

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CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

O/T not been here Rambling...in a while

Postby CRguy » Mon Jan 26, 2015 12:38 am

newbies ... forgive me, you may not have any frame of reference here...please refer to my other 7100+ posts :oops: yeah I talk a LOT !!!
Ma' Homies ! ..... forgive me, you may very well have one :shock: a frame of reference that is .... YMMV !!!!

February 2008 ... seriously ????? yup '08 .. I registered here and posted for the first time.
Had read a bit before then but finally decided .. HELLyeah !!! .. THIS is the place to be.
Had already been thru what most folks here post about ... diagnosis, trauma, treatment, plans, prognosis, statistics.... knowing me NOW....
yada yada yada...... BTDT.

BUTT this place had a different vibe. It was edgy, compassionate, KEWL !!! and vibrant ... LOTSA good folks just dealing with the shit we had to deal with.

Met a few "friends".

Fast forward ...........
lost a few friends.

BUTT this place had a different vibe. It was edgy, compassionate, KEWL !!! and vibrant ... LOTSA good folks just dealing with the shit we had to deal with.

January 25, 2015 ..... THIS place has not changed one bit.... BUTT .....
This place is entirely NEW for a lotta reasons.

Hope you all understand what I am saying here ?????

The names which log in today and tomorrow ...... it is all the same .

The names who can no longer log in ..... it will never be the same.

BUTT we, who do log in, today, tomorrow........

IF those who are no longer able to be here ... were never here ?????
We would NOT have a forum.
We would not have a community.
We would not have what we HAVE.

WE HAVE because we are all here, and that is only because those who are no longer here
kept us all strong, and real, and HERE ... with each other.

I am HERE.
" Je suis ColonTalk.
Nous sommes tous ColonTalk."

WORD
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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RayGirl
Posts: 1282
Joined: Wed Jun 16, 2010 4:21 pm
Location: Texas

Re: O/T not been here Rambling...in a while

Postby RayGirl » Mon Jan 26, 2015 1:11 am

Love your philosophy so much even when you claim to ramble.
Stage III Rectal: T3, 3/21 Nodes
dxn:Feb-10
Radiation&Xeloda
7.5 hr surgery
12th FOLFOX Nov-10
Takedown:Jan-11

"Life is not about waiting for the storm to pass, it's about learning how to dance in the rain."

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CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: O/T not been here Rambling...in a while

Postby CRguy » Mon Jan 26, 2015 1:19 am

I am DOWN with that ma' homie

Thanx for posting in
we gots some stuff goin' on here .....

Be well my friend

Harmony
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: O/T not been here Rambling...in a while

Postby Bev G » Mon Jan 26, 2015 1:24 am

RAY GIRL!!!

Hi!

Haven't seen you here in forever. I hope you are perfectly well and very happy.

Thanks for checking in :-)

xox

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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RayGirl
Posts: 1282
Joined: Wed Jun 16, 2010 4:21 pm
Location: Texas

Re: O/T not been here Rambling...in a while

Postby RayGirl » Mon Jan 26, 2015 1:35 am

Bev- I've been crazy busy! Which is not new, unfortunately!
oldest crossed over to Boy Scouts tonight and we celebrated with BBQ and cake... Which means I'm still up because my semicolon is protesting, fat and sweets in one meal! So I thought I'd check in and see how the club is hanging together.
Seriously four years post reversal and somedays I forget my bad combos. Or rather I pray they have changed.

CRguy- there is always something going on at the club.
Stage III Rectal: T3, 3/21 Nodes
dxn:Feb-10
Radiation&Xeloda
7.5 hr surgery
12th FOLFOX Nov-10
Takedown:Jan-11

"Life is not about waiting for the storm to pass, it's about learning how to dance in the rain."

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: O/T not been here Rambling...in a while

Postby Delinda2 » Mon Jan 26, 2015 3:25 am

CR, I could read your rambles for hours. Love your thought process. And - you make me smile. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

WifeOfMike
Posts: 1495
Joined: Thu Dec 20, 2012 9:53 pm
Facebook Username: https://www.facebook.com/vbass123
Location: San Diego, California

Re: O/T not been here Rambling...in a while

Postby WifeOfMike » Mon Jan 26, 2015 4:09 am

My dearest CRGuy

You smacked it right on the nail as usual dude :lol: :mrgreen:

It has been Hard to come up for air since hubby flew off with the angels January 1st
BUTT when I do.... it is here that I gather energy, & the strength to move forward

HE never came here (kinda wish he had)...... not his cup of tea to reach out to anyone But ME
ME????... I have never regretted one second, and don't know how I would have made it through from beginning to our ending without my friends here

Welcome to newbies....sorry your here, but you are in THE right place
A BIG HUG & MUCH LOVE to all my friends here

WORD
Vicki
Bad Ass WIFE
Hubs: CRC IVA,T3, N0, M1A
Resect/LN Mets 10/12
Folfox4/Avastin 11/12-5/13
Folfiri/Erbitux 6/13-10/13
Stivarga 12/13-4/14
Trial 4/14-/14
Trial 8/14-11/14
HOME Hospice 11/17/14
Guardian Angel 1/1/15
Cost of HOPE? PRICELESS

tammylayne
Posts: 2177
Joined: Fri Jul 16, 2010 9:24 am

Re: O/T not been here Rambling...in a while

Postby tammylayne » Mon Jan 26, 2015 8:11 am

WORD
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal

"You never know how strong you are until you have to become your own hero."

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MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Re: O/T not been here Rambling...in a while

Postby MamaN » Mon Jan 26, 2015 8:24 am

Right on CR ! I have been reading here for over a year before I joined. This place is of great support! We can laugh and cry together . Find the lastest info on cancer treatments. This place has got me through a lot rough times!
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc

lauragb
Posts: 899
Joined: Sun Aug 28, 2011 5:25 pm

Re: O/T not been here Rambling...in a while

Postby lauragb » Mon Jan 26, 2015 9:40 am

You said it! My life has been touched by many people who are no longer here and I will not forget them.
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: O/T not been here Rambling...in a while

Postby peanut_8 » Mon Jan 26, 2015 11:00 am

Love being part of the KEWL CLUB. :mrgreen:
peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

Cb75
Posts: 1216
Joined: Sun Apr 22, 2012 3:52 pm
Location: Ontario, Canada

Re: O/T not been here Rambling...in a while

Postby Cb75 » Mon Jan 26, 2015 12:12 pm

xo
39y female Stage IV
diagnosed April 2012
sigmoid resect May 2012
liver resect Aug 2012
Folfox Oct 2012
lungs Sep 2013
R and L laser lung resection Nov 2013/Feb 2014
FOLFIRI and Avastin Apr 2014 ongoing...

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: O/T not been here Rambling...in a while

Postby skypup » Mon Jan 26, 2015 12:19 pm

Agree so much, my friend. There have been times I have felt worn out or frustrated or unseen and was tempted to walk away from the forum, yet THIS is THE place we gather, we who get it and live with it. And this is a place where we vets may be able to help the new ones along a bit. There are so many people I miss, there are so many new folk to get to know, it is almost overwhelming. In the end, though, I am so glad to have our community. And I love you, CRguy, with your rambles, your poems and your CRspeak wisdom!

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: O/T not been here Rambling...in a while

Postby Maia » Mon Jan 26, 2015 2:26 pm

CRguy wrote:IF those who are no longer able to be here ... were never here ?????
We would NOT have a forum.
We would not have a community.
We would not have what we HAVE.

WE HAVE because we are all here, and that is only because those who are no longer here
kept us all strong, and real, and HERE ... with each other.


"If I have seen further, it is by standing on the shoulders of giants"

And you, my friend... CRGuy = "Complete Reliable" Guy. I rest my case.
A heartfelt hug.

andy21
Posts: 376
Joined: Tue Jun 26, 2012 4:07 pm
Location: N California

Re: O/T not been here Rambling...in a while

Postby andy21 » Mon Jan 26, 2015 5:47 pm

In the End,
We will remember not only the words of our current members,
but also the silence of our lost friends.
Sometimes silence says more than any word.

I am waiting for the day when two forum members date and marry, having met on this forum, shared interests and decide to share rest of life :D
Caregiver: To 67 Yr father
diag. Stage IV, 5/12, liver mets
6 cycles Xelox/Avastin, Start 06/12
Stage 1 of Two Stage Resection Surgery in Dec, 12. 2nd line fails.
T Cell Trial May-Jul, 2013
Becomes a Heavenly Angel in August, 2013


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