Living a full life with FAP, desmoids and surgery

Please feel free to read, share your thoughts, your stories and connect with others!
captaincanuck
Posts: 8
Joined: Thu Jun 26, 2014 6:10 pm

Living a full life with FAP, desmoids and surgery

Postby captaincanuck » Tue Jan 13, 2015 10:51 am

Hi,

I am a young married man in my early thirties who has been living with the diagnosis of FAP for 17 years. I have had a Whipple surgery, undergone chemo for desmoid tumours and 1 month ago had a total colectomy with a permanent ileostomy.

FAP is rare. Desmoids are even more rare.

It has been difficult for me to find information about how other people have navigated these waters... i think mostly in part due to the rarity of the conditions. Lately I have found sharing my experiences via a blog helpful and I thought others in a similar situation to mine might find it helpful to read.

You can find my blog at:

http://goodbyecolon.weebly.com/

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Deann, Google [Bot] and 55 guests