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Re: TIL Immunotherapy at NCI

Posted: Sun Jun 18, 2017 7:22 am
by Maia
Jed, I'm so sorry... Looking for the next strategy and having a secret hope that those TILs are and will be doing some good, even if now it is not apparent.

Re: TIL Immunotherapy at NCI

Posted: Sun Jun 18, 2017 6:44 pm
by Lee
jdepp wrote:I had a scan and met with my doctors today. Progression everywhere, so I'm now off the trial. Best wishes to DAS43 and everyone. /jdepp


(((Jed)))

Jed, I am so sorry to read this. I hope and pray there are other options out there.

You are in my thoughts and prayers,

Lee

Re: TIL Immunotherapy at NCI

Posted: Sun Jun 18, 2017 9:10 pm
by Sleen
I'm very sorry, Jed. I hope you'll find another trial--there's got to be something out there!
<3

Celine

Re: TIL Immunotherapy at NCI

Posted: Thu Jun 29, 2017 12:54 pm
by DAS43
:D very happy today with my visits to NIH. Tumor continues to shrink and is now 38% smaller. The pulmonary embolism is also smaller but unfortunately still there. I will continue to be on a blood thinner for 3 to 6 months. Next visit will be months.

Re: TIL Immunotherapy at NCI

Posted: Thu Jun 29, 2017 1:25 pm
by Lee
DAS43 wrote::D very happy today with my visits to NIH. Tumor continues to shrink and is now 38% smaller. The pulmonary embolism is also smaller but unfortunately still there. I will continue to be on a blood thinner for 3 to 6 months. Next visit will be months.


Congratulations on your success. Think that calls for some celebrating.

Lee

Re: TIL Immunotherapy at NCI

Posted: Thu Jun 29, 2017 1:30 pm
by DAS43
Congratulations on your success. Think that calls for some celebrating.

Lee[/quote]
Yes it does!

Re: TIL Immunotherapy at NCI

Posted: Thu Jun 29, 2017 4:05 pm
by sdino
Das43, can u supply more info ? Are u MSS/MSI, or kras mutant or not ? A little morphology would help us all.

Re: TIL Immunotherapy at NCI

Posted: Thu Jun 29, 2017 4:19 pm
by DAS43
sdino wrote:Das43, can u supply more info ? Are u MSS/MSI, or kras mutant or not ? A little morphology would help us all.


I know that I am kras wild type and mss. Unfortunately that is all I know.

Re: TIL Immunotherapy at NCI

Posted: Thu Jun 29, 2017 8:53 pm
by Sleen
Way to go, DAS!!! That's fantastic news.
Got any scoop on the new immunotherapy fellows? I heard the new ones rotated in this week. :)

Celine

Re: TIL Immunotherapy at NCI

Posted: Sat Jul 01, 2017 6:04 am
by DAS43
Sleen wrote:Way to go, DAS!!! That's fantastic news.
Got any scoop on the new immunotherapy fellows? I heard the new ones rotated in this week. :)

Celine


New fellows start Monday. But that is all I know.

Re: TIL Immunotherapy at NCI

Posted: Wed Jul 12, 2017 12:18 pm
by Sleen
We're back from follow-up #12. All good!
They've decided to schedule the next one for SIX MONTHS out. This is a first for me. We'll see if Dr. Rosenberg lets the order stand (he vetoed it last time it was suggested).

My clinic visit was one of the shortest ever, which is OK by me ;)

Celine

Re: TIL Immunotherapy at NCI

Posted: Wed Jul 12, 2017 2:05 pm
by DebZ
I'm so happy for you, Celine!! What a walking miracle you are. I have bilateral lung mets and just failed Folfiri. At this point I'm going to start looking at the trials. Your blog is so incredible helpful to me. Thank you for taking the time to keep us all up to date.

Re: TIL Immunotherapy at NCI

Posted: Wed Jul 12, 2017 5:11 pm
by Sleen
Thank you for your kind words, DebZ!

I'm sorry that FOLFIRI didn't work. The world of clinical trials is much, much bigger now than it was just two years ago. I hope that you find many options. If you're MSS, here is a link to the trial finder that two of our own Colon Club members developed.

Celine: EDITED to fix trial finder link.

Re: TIL Immunotherapy at NCI

Posted: Wed Jul 12, 2017 5:52 pm
by Maia
Celine, I already told you but... SO HAPPPYYYYYYYY!!

That is an old link to the clinical trials finder. Now, Fight Colorectal Cancer did pick up Tom's project and we have a shinny, wonderful web-based finder: Late Stage MSS-CRC Curated trial finder. Here: http://trialfinder.fightcrc.org/

Re: TIL Immunotherapy at NCI

Posted: Wed Jul 12, 2017 7:43 pm
by Sleen
Excellent! Thank you for the link.

Celine