The Colon Club

Does anyone know if you have to show chemo resistance to qualify for this trial? DH had folfox and finished up last summer. NED for a bit but not has about 5 lung mets.

Jdepp

Please stay positive, some are shrinking! Remember sleen also had a tumor grow and they were able to treat it and she is now ned. I go next Wednesday for a ct scan and a brain MRI. Not sure why they are repeating the brain MRI. This will be the 3rd. They said the last 2 were clear. I thought it was rare for colon to spread to brain. As akways you remain in my prayers

crazylife wrote:Does anyone know if you have to show chemo resistance to qualify for this trial? DH had folfox and finished up last summer. NED for a bit but not has about 5 lung mets.

As long as DH has had oxaliplatin/irretican he can be considered. There has to be at least 2 tumors one must be at least 1cm and be able to be taken out. When I found out I had tumors in the lungs I applied there first before I started chemo. After I was accepted and they removed tumor. I had 6 rounds of chemo to keep tumor in check. Hope this helped

DAS43,

I don't know why they're giving you another MRI. I had two, but that was all. Good luck next Wednesday.

All the best to those of you on this trial.

Celine has had great success and I hope this trial is as successful for those of you in the trenches.

I like AnnClare line,

My fellow ass kickers,

Lee

JDepp and DAS: I'm pulling for you both!

regarding brain MRI: I get them every-other (scan) visit.

Celine

My ct scan shows 37% tumor shrinkage! Very happy with that. I however have a small pulmonary embolism. They started me on xalto and I will go back in a month for another scan. No brain MRI said that was mis scheduling. So that made me happy. A little worried about the pulmonary embolism but I have no symptoms so I figure take the meds and don't worry till I have a symptom lol. Something of interest my fellow said that I was the last to get Keytruda.

DAS43 wrote:My ct scan shows 37% tumor shrinkage!

Yes!!!!!!
I hope the pulmonary embolism gets resolved soon!
What do you mean with the last on getting Keytruda? Are they changing the protocol?
Oh, hope you update your fellows in other venues with your good news... *hint*

Maia wrote:

DAS43 wrote:My ct scan shows 37% tumor shrinkage!

Yes!!!!!!
I hope the pulmonary embolism gets resolved soon!
What do you mean with the last on getting Keytruda? Are they changing the protocol?
Oh, hope you update your fellows in other venues with your good news... *hint*

Yes they are changing the protocol slightly to exclude the Keytruda

Wow, great news that the TIL are working so well! May they continue until they wipe out your cancer!

DAS43 wrote:My ct scan shows 37% tumor shrinkage!

OUTSTANDING! Congratulations

Celine

DAS43 wrote:My ct scan shows 37% tumor shrinkage! Very happy with that. I however have a small pulmonary embolism. They started me on xalto and I will go back in a month for another scan. No brain MRI said that was mis scheduling. So that made me happy. A little worried about the pulmonary embolism but I have no symptoms so I figure take the meds and don't worry till I have a symptom lol. Something of interest my fellow said that I was the last to get Keytruda.

Sorry about the pulmonary embolism, hope it gets resolved soon, butt congratulations on the 37% tumor shrinkage. That is awesome news.

Lee

Hi DAS43,
Wonderful to hear your news about what is happening with your tumor So Happy for you !
You wrote about being a little worried about a small Pulmonary embolism. Having been worried myself about a blood clot in my leg, I found and read a Blog about PE. If you are interested, if you get some symptoms, - this is the Blog:
What recovery from a pulmonary embolism looks like https://bloodclotrecovery.net/what-reco ... ooks-like/

I had a scan and met with my doctors today. Progression everywhere, so I'm now off the trial. Best wishes to DAS43 and everyone. /jdepp

jdepp wrote:I had a scan and met with my doctors today. Progression everywhere, so I'm now off the trial. Best wishes to DAS43 and everyone. /jdepp

Jdeep so sorry to read this. Did NIH have any suggestions on what you should try next?