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Re: TIL Immunotherapy at NCI

Posted: Thu Feb 16, 2017 7:57 am
by Maia
Hey, Celine's interview with Joan Lunden is on YT now, also: https://www.youtube.com/watch?v=Talj5pIrMLw

I just watched again...Got so happy for Celine and the family that I have to get up from my chair. And later, I could focus better on my hero, super admired scientist (years ago, I called this trial "Rosenberg trial", cfr. the second post in the first page of this thread). I see Dr Rosenberg and I want to take a plane and go and give him a hug. Imagine a whole life,so many years devoted to beat cancer and he starts to see these results. Still, so humble, such a hard worker. Mazal Tov, well done, Steven.

Re: TIL Immunotherapy at NCI

Posted: Wed Feb 22, 2017 1:11 pm
by DAS43
Sending prayers to jdepp. Who should be a NIH starting the process for cell day, according to last post.

Re: TIL Immunotherapy at NCI

Posted: Wed Feb 22, 2017 4:35 pm
by Maia
Yes!!!! Strong thoughts his way.

Re: TIL Immunotherapy at NCI

Posted: Wed Feb 22, 2017 9:15 pm
by Sleen
Good luck to JDepp!!!

Celine

Re: TIL Immunotherapy at NCI

Posted: Thu Feb 23, 2017 6:16 am
by Pita
Please delete.

Re: TIL Immunotherapy at NCI

Posted: Thu Feb 23, 2017 6:54 am
by jdepp
Thanks all. Yes, I'm starting the chemo portion of the trial later today. Having read Akasleen's play-by-play and commentary, I have an idea of what to expect. Best wishes to everyone pursuing every strategy against cancer.

Re: TIL Immunotherapy at NCI

Posted: Thu Feb 23, 2017 11:13 am
by Lee
good luck jdepp

Lee

Re: TIL Immunotherapy at NCI

Posted: Mon Mar 20, 2017 7:12 pm
by DAS43
I am home from NIH

Just wanted to let everyone know I was released on Saturday. I truly believe I received the best care from them. The chemo is tough. Il2 is worse. The Doctors and nurses do a great job getting you through it. I received 98 billion cells truly amazing. I was only able to handle 4 doses of the IL2. It gave me horrible shakes. I have had patients who have had grandmal seizures. I have a new appreciation for what they feel. ( I know my shakes weren't half as bad as a seizure. ) very tired but happy to be home. Already got lots of love from the grand babies.

Re: TIL Immunotherapy at NCI

Posted: Mon Mar 20, 2017 9:24 pm
by Maia
So so so happy and hopeful for you, Deb!!! Let's wait for those little powerful players do their wonderful job!!!
Sending strong, best thoughts your way! : )

Re: TIL Immunotherapy at NCI

Posted: Tue Mar 21, 2017 9:22 am
by Sleen
CONGRATULATIONS, Deb!

Celine

Re: TIL Immunotherapy at NCI

Posted: Tue Mar 21, 2017 11:40 am
by jdepp
Welcome back, Deb. I agree with you: the chemo was bad but the IL2 was worse. From my experience, after a few days resting at home, the energy starts to come back fast. It helps that people aren't stealing your blood every day and taking your vital signs every 4 hours :)

Wishing you the best. /jdepp

Re: TIL Immunotherapy at NCI

Posted: Tue Mar 21, 2017 1:31 pm
by DH2Sleen
I'm so happy for both Jed and Deb. Go TILs Go. I can hardly wait to hear about your scans in a few weeks.

Re: TIL Immunotherapy at NCI

Posted: Tue Mar 21, 2017 4:15 pm
by LPL
jdepp & DAS43
I hope you two will have fantastic results, just like Sleen :D
You all give so much hope for others !
Wishing you all the best !!! /LPL

Re: TIL Immunotherapy at NCI

Posted: Sat Apr 08, 2017 11:54 pm
by bobhuang1
Hello, I found this thread via a Google search and just registered. I have been taking care my wife ever since she was diagnosed with colon cancer on Christmas 2015. Unfortunately after 12 sessions of Folfox and 4 cycles of FOLFIRI+Avastin, the illness still progressed. We applied to this clinical trial by Dr. Rosenberg and we will fly down to Bethesda next week for a "final" screening. My question is, what kind of experience others have during this screening? Any details? And what to expect after the screening in terms of timeline? What can I do as a caretaker to make the whole thing less painful/stressful for my wife? Thanks much!

Bob

Re: TIL Immunotherapy at NCI

Posted: Sun Apr 09, 2017 7:45 am
by Jacques
bobhuang1 wrote:Hello, I found this thread via a Google search and just registered. I have been taking care my wife ever since she was diagnosed with colon cancer on Christmas 2015. Unfortunately after 12 sessions of Folfox and 4 cycles of FOLFIRI+Avastin, the illness still progressed. We applied to this clinical trial by Dr. Rosenberg and we will fly down to Bethesda next week for a "final" screening. My question is, what kind of experience others have during this screening? Any details? And what to after the screening in terms of timeline? What can I do as a caretaker to make the whole thing less painful/stressful for my wife? Thanks much!

Bob

Is this the trial that you mentioned? https://www.clinicaltrials.gov/ct2/show/study/NCT01174121?show_desc=Y#desc