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Re: TIL Immunotherapy at NCI

Posted: Tue Mar 24, 2015 10:55 am
by Sleen
I added an avatar to mark the occasion.
NCI called yesterday and said I'm "in". Lung wedge surgery to remove a tumor for the trial will be April 1.
I will need a brain MRI and renal scan prior to that. Leukapheresis will happen prior to surgery also.
Awaiting the nurse's call, and hoping they'll be able to schedule all of that for the same visit.

Celine

Re: TIL Immunotherapy at NCI

Posted: Tue Mar 24, 2015 11:05 am
by skypup
Celine ("sleen", now I get it), I am so happy to read the good news! And thank you for keeping us informed of this promising technology. You are one of our frontrunners. Wishing you the best of all good luck! Love the new avatar. 8)

Re: TIL Immunotherapy at NCI

Posted: Fri Mar 27, 2015 5:17 pm
by KWT
Either of you girls get a +1 ? Think about it :wink:

Re: TIL Immunotherapy at NCI

Posted: Fri Mar 27, 2015 5:50 pm
by Sleen
My +1 has to pay his own way, unfortunately.
Once you get accepted, NCI will pay your expenses to get there (but only yours).

I did have to pay my own way for the initial in-person screening. Flight + rental car.
BONUS for you--no pregnancy test! That was the big hold-up during my screening. They were holding out for blood-serum results (still don't know why) and it delayed my CT by about 3 hours. Everything else went pretty smoothly.

Celine

Re: TIL Immunotherapy at NCI

Posted: Sat Mar 28, 2015 10:21 am
by lilacbreastedroller
Love the avatar, by the way! Kenny you'd make a model mouse! 8)

- Karin

Re: TIL Immunotherapy at NCI

Posted: Sat Mar 28, 2015 10:35 am
by KWT
Yeah Celine,the last pregnancy test I took was a catastrophe :shock: :lol:

Karin, I emailed the trial coordinator Friday hipefully will hear from them shortly.

Re: TIL Immunotherapy at NCI

Posted: Sat Mar 28, 2015 10:46 am
by KWT
Karin, someday I'd like to hear the story behind your screen name :shock: :wink:

I'm going to pick my wife some lilacs today, the neighbors lilac plants are going off.

Re: TIL Immunotherapy at NCI

Posted: Sat Mar 28, 2015 11:48 am
by lilacbreastedroller
It's a bird, man! What are you thinking??? Here's a link: http://www.krugerpark.co.za/africa_lilac_breasted_roller.html

No lilacs yet where I live. Cant wait to see flowers of any type though.

BTW glad you took the first step and contacted NCI. Woo hoo

Karin

Re: TIL Immunotherapy at NCI

Posted: Sat Mar 28, 2015 11:59 am
by KWT
Ok, got it. That a pretty bird, those are just the types of questions that need to be asked :shock:

Re: TIL Immunotherapy at NCI

Posted: Sat Mar 28, 2015 8:36 pm
by Sleen
I'm flying out tomorrow for further tests + lung wedge surgery.
Hoping to be home by Friday.

KT--so glad you emailed!

Celine

Re: TIL Immunotherapy at NCI

Posted: Sat Mar 28, 2015 9:50 pm
by pfCml73183
Best wishes Sleen. I hope everything goes smoothly for you.
Celeste

Re: TIL Immunotherapy at NCI

Posted: Mon Mar 30, 2015 12:49 pm
by pukalania
Fingers crossed xoxo

Re: TIL Immunotherapy at NCI

Posted: Mon Mar 30, 2015 2:38 pm
by KWT
I just sent in my preliminary paperwork. Should hear within two days if they take rats instead of mice.

Re: TIL Immunotherapy at NCI

Posted: Mon Mar 30, 2015 3:29 pm
by gator.girl
Just started following this post! My name is in the hat for the fruit fly study in NY but am starting to think this trial would be great! I meet my second opinion doc in a few weeks and will bring it up -

Please keep us posted!

Excited for you too Kenny!


Rachel

Re: TIL Immunotherapy at NCI

Posted: Mon Mar 30, 2015 4:15 pm
by KWT
Ok, Iv found out that lilacbreastedroller is a bird.

Rachel, if you don't mind my asking, why are you the gator girl? I'm just curious feel free to embellish a bit.