TIL Immunotherapy at NCI

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Sleen
Posts: 313
Joined: Tue Jan 14, 2014 7:41 am
Location: Detroit
Contact:

Re: TIL Immunotherapy at NCI

Postby Sleen » Tue Mar 24, 2015 10:55 am

I added an avatar to mark the occasion.
NCI called yesterday and said I'm "in". Lung wedge surgery to remove a tumor for the trial will be April 1.
I will need a brain MRI and renal scan prior to that. Leukapheresis will happen prior to surgery also.
Awaiting the nurse's call, and hoping they'll be able to schedule all of that for the same visit.

Celine
my blog: Cancer Riot

NED since April 2016!
April 2016: lower left lung lobectomy. NED
8 mo. f/u: 1 of 7 tumors progressed.
6 mo. f/u PR confirmed (Jan 2016)
Jul 2015: NIH TIL trial NCT01174121 NCI/NIH Surgery Branch FAQ
Dec 2015 stage IV w/bilateral lung mets
FOLFOX + Radiation (bladder)
KRAS G12D :: MSS
dx Sep 2013 @47yo: IIIc T4b N2b MX [bladder invasion, 17/21 lymph nodes]

Married 28 yrs. kids: 22, 19, 15, 11, 9
SE Michigan home schooler, unemployed mechanical engineer, and programmer.

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: TIL Immunotherapy at NCI

Postby skypup » Tue Mar 24, 2015 11:05 am

Celine ("sleen", now I get it), I am so happy to read the good news! And thank you for keeping us informed of this promising technology. You are one of our frontrunners. Wishing you the best of all good luck! Love the new avatar. 8)

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: TIL Immunotherapy at NCI

Postby KWT » Fri Mar 27, 2015 5:17 pm

Either of you girls get a +1 ? Think about it :wink:

User avatar
Sleen
Posts: 313
Joined: Tue Jan 14, 2014 7:41 am
Location: Detroit
Contact:

Re: TIL Immunotherapy at NCI

Postby Sleen » Fri Mar 27, 2015 5:50 pm

My +1 has to pay his own way, unfortunately.
Once you get accepted, NCI will pay your expenses to get there (but only yours).

I did have to pay my own way for the initial in-person screening. Flight + rental car.
BONUS for you--no pregnancy test! That was the big hold-up during my screening. They were holding out for blood-serum results (still don't know why) and it delayed my CT by about 3 hours. Everything else went pretty smoothly.

Celine
my blog: Cancer Riot

NED since April 2016!
April 2016: lower left lung lobectomy. NED
8 mo. f/u: 1 of 7 tumors progressed.
6 mo. f/u PR confirmed (Jan 2016)
Jul 2015: NIH TIL trial NCT01174121 NCI/NIH Surgery Branch FAQ
Dec 2015 stage IV w/bilateral lung mets
FOLFOX + Radiation (bladder)
KRAS G12D :: MSS
dx Sep 2013 @47yo: IIIc T4b N2b MX [bladder invasion, 17/21 lymph nodes]

Married 28 yrs. kids: 22, 19, 15, 11, 9
SE Michigan home schooler, unemployed mechanical engineer, and programmer.

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lilacbreastedroller
Posts: 90
Joined: Thu Sep 05, 2013 10:25 am

Re: TIL Immunotherapy at NCI

Postby lilacbreastedroller » Sat Mar 28, 2015 10:21 am

Love the avatar, by the way! Kenny you'd make a model mouse! 8)

- Karin
dx 6/1/12@45yo
RT, 4 liv, 5 lung
7/12 FOLFOX
2/13 Xeloda 4k mg/d
7/13 DC VAX,1k mg/d metro Xel
11/13 Erbi, Irino
6/14 clinical trial lirilumab, nivolumab
9/14 Stivarga
1/15 clinical trial immunotherapy (young TILs)
RT, mets to liv, lung, adrenal, lns

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: TIL Immunotherapy at NCI

Postby KWT » Sat Mar 28, 2015 10:35 am

Yeah Celine,the last pregnancy test I took was a catastrophe :shock: :lol:

Karin, I emailed the trial coordinator Friday hipefully will hear from them shortly.

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: TIL Immunotherapy at NCI

Postby KWT » Sat Mar 28, 2015 10:46 am

Karin, someday I'd like to hear the story behind your screen name :shock: :wink:

I'm going to pick my wife some lilacs today, the neighbors lilac plants are going off.

User avatar
lilacbreastedroller
Posts: 90
Joined: Thu Sep 05, 2013 10:25 am

Re: TIL Immunotherapy at NCI

Postby lilacbreastedroller » Sat Mar 28, 2015 11:48 am

It's a bird, man! What are you thinking??? Here's a link: http://www.krugerpark.co.za/africa_lilac_breasted_roller.html

No lilacs yet where I live. Cant wait to see flowers of any type though.

BTW glad you took the first step and contacted NCI. Woo hoo

Karin
dx 6/1/12@45yo
RT, 4 liv, 5 lung
7/12 FOLFOX
2/13 Xeloda 4k mg/d
7/13 DC VAX,1k mg/d metro Xel
11/13 Erbi, Irino
6/14 clinical trial lirilumab, nivolumab
9/14 Stivarga
1/15 clinical trial immunotherapy (young TILs)
RT, mets to liv, lung, adrenal, lns

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: TIL Immunotherapy at NCI

Postby KWT » Sat Mar 28, 2015 11:59 am

Ok, got it. That a pretty bird, those are just the types of questions that need to be asked :shock:

User avatar
Sleen
Posts: 313
Joined: Tue Jan 14, 2014 7:41 am
Location: Detroit
Contact:

Re: TIL Immunotherapy at NCI

Postby Sleen » Sat Mar 28, 2015 8:36 pm

I'm flying out tomorrow for further tests + lung wedge surgery.
Hoping to be home by Friday.

KT--so glad you emailed!

Celine
my blog: Cancer Riot

NED since April 2016!
April 2016: lower left lung lobectomy. NED
8 mo. f/u: 1 of 7 tumors progressed.
6 mo. f/u PR confirmed (Jan 2016)
Jul 2015: NIH TIL trial NCT01174121 NCI/NIH Surgery Branch FAQ
Dec 2015 stage IV w/bilateral lung mets
FOLFOX + Radiation (bladder)
KRAS G12D :: MSS
dx Sep 2013 @47yo: IIIc T4b N2b MX [bladder invasion, 17/21 lymph nodes]

Married 28 yrs. kids: 22, 19, 15, 11, 9
SE Michigan home schooler, unemployed mechanical engineer, and programmer.

pfCml73183
Posts: 653
Joined: Sat Jun 22, 2013 7:49 pm
Facebook Username: Celeste Marie Comeau
Location: FL

Re: TIL Immunotherapy at NCI

Postby pfCml73183 » Sat Mar 28, 2015 9:50 pm

Best wishes Sleen. I hope everything goes smoothly for you.
Celeste
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

pukalania
Posts: 454
Joined: Mon Aug 06, 2012 2:54 am
Location: Honolulu, Seattle

Re: TIL Immunotherapy at NCI

Postby pukalania » Mon Mar 30, 2015 12:49 pm

Fingers crossed xoxo
wife 34 dx DH stage IV
Feb10 col res
May10 12 x FOLFOX
Aug12 tumor in sig colon,mets in liver
Aug12 Xeliri Ava
Oct12 xel celebrx rad
Feb13 liver/colon res
Sep13 ill reversal, fistula,
Folfiri SBRT,ADAPT ava
Apr 15 continued growth liver and lungs

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: TIL Immunotherapy at NCI

Postby KWT » Mon Mar 30, 2015 2:38 pm

I just sent in my preliminary paperwork. Should hear within two days if they take rats instead of mice.

gator.girl
Posts: 37
Joined: Thu Sep 05, 2013 1:05 pm

Re: TIL Immunotherapy at NCI

Postby gator.girl » Mon Mar 30, 2015 3:29 pm

Just started following this post! My name is in the hat for the fruit fly study in NY but am starting to think this trial would be great! I meet my second opinion doc in a few weeks and will bring it up -

Please keep us posted!

Excited for you too Kenny!


Rachel
Dx 8/13 @ 40
Stage IV - innumerable mets to liver
12 rounds of Folfox + Avastin
8 months on maintenance
11/14 Y90 to right side of liver
01/15 Gallbladder removal and colon resection
02/15 Mets to lungs
Now on Folfiri

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: TIL Immunotherapy at NCI

Postby KWT » Mon Mar 30, 2015 4:15 pm

Ok, Iv found out that lilacbreastedroller is a bird.

Rachel, if you don't mind my asking, why are you the gator girl? I'm just curious feel free to embellish a bit.


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