Well what a place. Sleen is somewhat of a celebrity there...they asked me what I knew about the trial, and then when I told them I know of one CRC patient who is NED but had recurrence due to mutation of KRAS they were stunned (I reminded them that the cancer community is very small...so as soon as we walk out of there I'll be blabbing about the visit).
I asked a lot of questions, asked about the lab issue last summer, asked about the MD Anderson option. The science sounds good and we were very impressed with the whole process and more importantly the physicians.
They feel he is a great candidate. They are fairly certain his tumor is large enough. He is physically in excellent shape. No real areas of concern. They told us to keep looking for other trials too. And they asked me to pass along not to make this option the "last resort". They want more patients that have other options. We are excited. I hope we are not jumping the gun. He will get Kaytruda during the treatment (new addition since the summer) so it will preclude him from further immunotherapy trials.
Let me know if anyone needs any info.