Arthritis and hip and back pain after folfox

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MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Re: Arthritis and hip and back pain after folfox

Postby MamaN » Tue Feb 03, 2015 11:45 pm

hi peanut 8
Iwas able to to lunges and squats. But can't now only pain and clicking going on! Can you explain double down ? If you don't mind? Please!

Thank you peanut8

Can't wait for that spongebob movie
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: Arthritis and hip and back pain after folfox

Postby peanut_8 » Wed Feb 04, 2015 12:39 am

Sorry for the inexact language. I just had to concentrate on my yoga more after treatment. I still struggle a bit, but it helps a lot.
peanut

To bad you are on the opposite coast, or we could go to the SB movie together.

If you want more info about my yoga routine feel free to PM me.
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Re: Arthritis and hip and back pain after folfox

Postby MamaN » Wed Feb 04, 2015 12:52 am

Thank you so much ! I saw you lived in Cali ever since I had finished chemo my goal is to get there some day! I live in New England and so sick of the cold and shoveling snow! I'm pretty sure it's not helping me!

You can PM me any time ! I would love to learn some of your yoga moves!

I know to bad can't do spongebob toghter that would've Been fun!
Last edited by MamaN on Wed Feb 04, 2015 2:43 am, edited 1 time in total.
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc

Nik Colon

Re: Arthritis and hip and back pain after folfox

Postby Nik Colon » Wed Feb 04, 2015 2:28 am

I do have slight joint and back pain right after treatment, but it has gone away after a few days. I just had my 2nd treatment today and getting over a cold. Symptoms seem to be slightly worse this time but no nausea yet.

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MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Re: Arthritis and hip and back pain after folfox

Postby MamaN » Wed Feb 04, 2015 2:41 am

Hi ritz
Glad the nausea is staying at bay. Some of the aches and pains while on chemo is from the chemo ! I'm glad your handling it well so far. I know when I had my first tx it was piece of cake. Second for me not so much ... Told my onc and he adjusted my dosages. The chemo starts to build up in system. Just keep very open communication with your onc!

So nice to hear from you!
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc

orcasres
Posts: 836
Joined: Mon Jul 01, 2013 10:23 pm
Location: Orcas Island, WA

Re: Arthritis and hip and back pain after folfox

Postby orcasres » Wed Feb 04, 2015 2:44 am

I have had significant bone and joint pain since chemo (12 rounds of FOLFOX; 8 with OXI). Locations of pain have included right shoulder, left thigh, right piriformis, right foot, right hand, and my back has issues identified on my CT scans. I was much more active before chemo. I have used physical therapy and acupuncture effectively, and I keep using the stretching exercises I learned in PT. We live as far northwest in the lower 48 states as is possible and while we do not get as much cold as you would expect for that location (we live on an island and the surrounding 45 degree water keeps it moderate in the winter) we do get very cold spells and much dampness. I still have some neuropathy in my feet, but most of that has passed.

I like my onc, but he does not accept that these are post chemo issues.

Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far

Nik Colon

Re: Arthritis and hip and back pain after folfox

Postby Nik Colon » Wed Feb 04, 2015 2:45 am

I will, thx MN. And best luck to you with your issues.

Nik

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MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Re: Arthritis and hip and back pain after folfox

Postby MamaN » Wed Feb 04, 2015 2:51 am

Funny as you can tell trouble with the sleeping issue tonight! Ugh hope its gone by tomorrow !

Thanks Nik
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc

Nik Colon

Re: Arthritis and hip and back pain after folfox

Postby Nik Colon » Wed Feb 04, 2015 2:52 am

orcasres wrote:(12 rounds of FOLFOX; 8 with OXI).

we're the 8 OXI done after the FOLFOX was done? If so, can I ask why? Just curious

Nik Colon

Re: Arthritis and hip and back pain after folfox

Postby Nik Colon » Wed Feb 04, 2015 2:53 am

MamaN wrote:Funny as you can tell trouble with the sleeping issue tonight! Ugh hope its gone by tomorrow !

Thanks Nik

I know! That's me too!!!!

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MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Re: Arthritis and hip and back pain after folfox

Postby MamaN » Wed Feb 04, 2015 3:02 am

You know I was always like that during chemo , and pack days . If wanted to stay up I did it was weird like day and night didn't matter! Stayed up if I wanted ,slept when I want. What works right!
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc

Nik Colon

Re: Arthritis and hip and back pain after folfox

Postby Nik Colon » Wed Feb 04, 2015 3:06 am

MamaN wrote:You know I was always like that during chemo , and pack days . If wanted to stay up I did it was weird like day and night didn't matter! Stayed up if I wanted ,slept when I want. What works right!

Yep! I think the steroids may be playing a part tho. I can t sleep and took sleeping meds! Grrr

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MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Re: Arthritis and hip and back pain after folfox

Postby MamaN » Wed Feb 04, 2015 3:10 am

Orcasres
My Gp did admit some problems are post chemo, and onc finally gave up on telling me neurothapy would get better, took him three years to admit.
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc

User avatar
MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Re: Arthritis and hip and back pain after folfox

Postby MamaN » Wed Feb 04, 2015 3:11 am

Boy do I get that ! I'm with you on that one!
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Arthritis and hip and back pain after folfox

Postby midlifemom » Wed Feb 04, 2015 6:55 am

All this talk of yoga has me thinking it might be a good way to improve my physical and mental health, plus give me something to do. I'm not a ' joiner' so if anyone could recommend any tv, online, or video beginner yoga shows I can do at home, I would appreciate it.
I currently have no joint pain, just overall mild fatigue and lack of muscle tone. I don't think I'm apt to injure myself doing it alone because I'm the type that if something doesn't feel right, I don't do it!
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?


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