Forgive me for I have sinned..........

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lori314
Posts: 76
Joined: Sun Oct 20, 2013 10:58 am
Facebook Username: Lori Biddinger

Forgive me for I have sinned..........

Postby lori314 » Sat Jan 03, 2015 3:20 pm

I ate crap the last 2 days. No discipline at all. I also have not followed the thickening up and slowing down regime either! So now I'm clustering. The BM's are mushy, not enough to push out, just enough to be annoying. I have to turn this around. Its Saturday! I have errands to get done and I can't leave the house. I'm eating oatmeal right now. What else to do to get back on track fast? I promised myself I won't do this again even if my Buckeyes beat Oregon!
7/13 Dx Stage IIIc rectal cancer
8/13 LAR, no ileo
9/13 4 wks of radiation with folfox pump
11/13 12 rounds Folfox, last 2 oxi taken out
6/14 CT Scan-NED
9/14 Colonoscopy-normal
6/15 CT Scan-15+ lung mets, makes me Stage IV
8/15 Irinotecan,Avastin,5FU pump
12/15 chemo break

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Forgive me for I have sinned..........

Postby KWT » Sat Jan 03, 2015 3:25 pm

I know what I would do :shock:

Lori, I'm only about 8 weeks out and doing much better. butt even a good day means going to the toilet ten times. So this morning I just did the enema and I'm done until tomorrow.

I figured the enema maybe once a week won't hurt my chances of some kind of normal butt provides a break here and there.

Oregon seems pretty hard to beat
Last edited by KWT on Sat Jan 03, 2015 3:31 pm, edited 1 time in total.

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Forgive me for I have sinned..........

Postby justin case » Sat Jan 03, 2015 3:25 pm

My lips are sealed, I have a friend in Oregon. OK, twist my arm, immodium might get things to thicken up. it really helped me with clustering.
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

pfCml73183
Posts: 653
Joined: Sat Jun 22, 2013 7:49 pm
Facebook Username: Celeste Marie Comeau
Location: FL

Re: Forgive me for I have sinned..........

Postby pfCml73183 » Sat Jan 03, 2015 3:34 pm

I put stewed prunes and Supra Fiber in my husband's oatmeal when he was in real bad shape a few weeks ago.
Worked within an hour!
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

User avatar
Cherie
Posts: 590
Joined: Fri Jul 12, 2013 11:20 am
Facebook Username: cherie
Location: New Zealand

Re: Forgive me for I have sinned..........

Postby Cherie » Sat Jan 03, 2015 9:18 pm

Bananas x 10
36Yo F
2000 UC
2013 Stage 4 CC 15/126 LN spread to the omentum
June Collectomy all visible cancer removed
July Folfox + Avastin
2/14 clean scan
8/14 Ileo-anal pouch surgery still NED
1/15 Emergency illeostomy spread to peritoneum and small bowel

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Forgive me for I have sinned..........

Postby KWT » Sat Jan 03, 2015 9:24 pm

So you all have a diareah problem at times? I haven't had that the opposite if anything :roll: the Imodium still helps to slow down clustering?

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Forgive me for I have sinned..........

Postby justin case » Sat Jan 03, 2015 9:44 pm

kennyt-wisted wrote:So you all have a diareah problem at times? the Imodium still helps to slow down clustering?


In my case, I can attribute many a nights sleep, and respite from clustering to immodium. I never thought of it , and it wasn't mentioned around here, but there was mention of it on the MDAnderson site.
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

shade
Posts: 162
Joined: Thu Feb 20, 2014 7:08 pm

Re: Forgive me for I have sinned..........

Postby shade » Sun Jan 04, 2015 12:45 am

I'm three weeks out from reversal, and I have never been much for dietary self discipline. I guess have a lot to learn. I don't even know what clustering is...
Stage IV rectal
10/12 Cancerous polyp removed age 51
6/14 uLAR and resected liver met
12/14 finished FOLFOX / Avastin
1/15 ilio reversed = LARS!!!
1/20 onc said “cured!” - no further monitoring unnecessary
5/21 chest pain revealed new lung mets… radiation
10/21 maintenance avastin/xeloda
9/22 stivarga 2 weeks, d/c'd due to foot pain
10/22 vectabix + irinotecan

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Forgive me for I have sinned..........

Postby justin case » Mon Jan 05, 2015 9:03 pm

shade wrote:I'm three weeks out from reversal, and I have never been much for dietary self discipline. I guess have a lot to learn. I don't even know what clustering is...

Shade,
I really can't believe no one has come to explain the term clustering. Many people know what diarrhea is, where you evacuate and then you are back to evacuate and so on. Clustering, is about the same thing, only with a tiny rectum, you only get milk duds for hours. Either way, you can not get far from a lavatory. I would recommend you check out the MDAnderson, website concerning reversal recommendations, or search this website for the exact address.
Last edited by justin case on Mon Jan 05, 2015 9:39 pm, edited 1 time in total.
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

Dmvfoster
Posts: 12
Joined: Wed Dec 10, 2014 10:22 am

Re: Forgive me for I have sinned..........

Postby Dmvfoster » Mon Jan 05, 2015 9:20 pm

I was plugged up since surgery. Had to use Milk of magnesia until starting chemo. Oxyliplatin clogged me up worse........then......ta daaaaaaaa! I started the xeloda with the ox, and voila! Near normal bowel movements!!! One plugs you, the other loosens you up!

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Forgive me for I have sinned..........

Postby KWT » Mon Jan 05, 2015 9:36 pm

REPENT
:twisted:


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