Springhaze, what I want to say is unprintable. Cancer sucks. Anyone who gets a Stage IV diagnosis at a young age was dealt a shit hand of cards. That's the truth. But we are here for you. Screaming into a canyon with others is somehow less scary than doing it alone. Sending virtual hugs your way and wishing like hell I could do more.
xo,
Julie
The long goodbye
Re: The long goodbye
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1
Re: The long goodbye
So I am so sadden to hear this.. I can feel you., deep in my heart and soul, i can see my self on you. Yes you are very young to be widowed and for your husband to leave in this world. Last few months we are told that my husband in uncurable and inoperable., that they are sorry they didnt cured husband.. And they doesn't know how long my husband left..it could be months or year .. They said its slow but turturing him everyday.. We doesn't know now If This 2nd time Chemo works for him or not.. But I always think that all things happen For reason.. "
You are a very strong woman., a supportive partner. Scream in the canyon as you can.. Cry loud if you can. I did that everyday in my room in the bathroom.. It helps me . And hope it will help you too to ease the pain in your heart and voice out.
we are all here for you ... Please come here everyday..
Hugs from Israel
Retchel
You are a very strong woman., a supportive partner. Scream in the canyon as you can.. Cry loud if you can. I did that everyday in my room in the bathroom.. It helps me . And hope it will help you too to ease the pain in your heart and voice out.
we are all here for you ... Please come here everyday..
Hugs from Israel
Retchel
wife of Stg 4 SRC
Diag.'12-2013(rd+Xeloda+oxi)
04/16/14 Clear CT-
8/25/14Kidney blockd nepro.
Rec. lung 1 enlrg. Abdomen
Inoperable/incurable /Chemo for life
11/21/14 Xeloda+Irinetocan 6x
hoping for a bright sunny day
Diag.'12-2013(rd+Xeloda+oxi)
04/16/14 Clear CT-
8/25/14Kidney blockd nepro.
Rec. lung 1 enlrg. Abdomen
Inoperable/incurable /Chemo for life
11/21/14 Xeloda+Irinetocan 6x
hoping for a bright sunny day
Re: The long goodbye
I'm terribly sorry you and your husband are going thru this. Words fail me, except to say you are heard and understood. Perhaps you will find some moments of peace in the days to come.
Stage IV rectal
10/12 Cancerous polyp removed age 51
6/14 uLAR and resected liver met
12/14 finished FOLFOX / Avastin
1/15 ilio reversed = LARS!!!
1/20 onc said “cured!” - no further monitoring unnecessary
5/21 chest pain revealed new lung mets… radiation
10/21 maintenance avastin/xeloda
9/22 stivarga 2 weeks, d/c'd due to foot pain
10/22 vectabix + irinotecan
10/12 Cancerous polyp removed age 51
6/14 uLAR and resected liver met
12/14 finished FOLFOX / Avastin
1/15 ilio reversed = LARS!!!
1/20 onc said “cured!” - no further monitoring unnecessary
5/21 chest pain revealed new lung mets… radiation
10/21 maintenance avastin/xeloda
9/22 stivarga 2 weeks, d/c'd due to foot pain
10/22 vectabix + irinotecan
Re: The long goodbye
Please know that you and your husband are in my thoughts.
Diagnosed Stage 3 rc; 30 y/o M - 8/10
Chemo Rad - 8/10 through 10/10
FOFLOX 4 rounds - 10/10 through 12/10
LAR - 1/11; 12 out of 13 nodes positive, stage 3c; T4N2M0; temp ileo
FOXFOX 8 rounds, 6 w/ Avastin - 2/11 through 5/11
Ileo reversed - 7/11
NED
Chemo Rad - 8/10 through 10/10
FOFLOX 4 rounds - 10/10 through 12/10
LAR - 1/11; 12 out of 13 nodes positive, stage 3c; T4N2M0; temp ileo
FOXFOX 8 rounds, 6 w/ Avastin - 2/11 through 5/11
Ileo reversed - 7/11
NED
Re: The long goodbye
Scream Away! We are all here for you. I too would like this disease just to disappear and leave my husband and step Mother alone. But I keep hearing in my ears. There is always a reason just hold his hand and remember your love and your special memory's. He will always be there right by you through good times and bad."
Prayers and lots of cyber hugs coming your way.
Sheila
Prayers and lots of cyber hugs coming your way.
Sheila
DX 12/11 DH Stg 4 cc age 60
12/20/1 1 lungs mets
2/1/12 started chemo oxe/ava/5-fu
3/12 liver mete fnd
5/12 new chemo irt/Eberix
8/12 lung surg
10/12 irt/Eberix
11/22- 02/2013 NED
02/13 nw right lung met
06/13 2 New liver lesion
06/13 chemo ?
12/20/1 1 lungs mets
2/1/12 started chemo oxe/ava/5-fu
3/12 liver mete fnd
5/12 new chemo irt/Eberix
8/12 lung surg
10/12 irt/Eberix
11/22- 02/2013 NED
02/13 nw right lung met
06/13 2 New liver lesion
06/13 chemo ?
Re: The long goodbye
Prayers and hugs. I'm sorry you have to face this at all. I've screamed in the car many times and it helps to let it out.
colon cancer stage 3 2n0mets 2002
cancer returns march 2010
emerg brain surgery, chemo may 2010 sterotactic radiation april 2010
progression of tumors march 2011 new chemo camptosar leukovorin 5fu avastin
Kenny age 58/died 11/21/11
cancer returns march 2010
emerg brain surgery, chemo may 2010 sterotactic radiation april 2010
progression of tumors march 2011 new chemo camptosar leukovorin 5fu avastin
Kenny age 58/died 11/21/11
-
B in Canada
- Posts: 24
- Joined: Sun Dec 07, 2014 12:29 pm
Re: The long goodbye
Springhaze24,
May you have your last memories together, and with him not in any discomfort/pain.
Sincerely, B in Canada
May you have your last memories together, and with him not in any discomfort/pain.
Sincerely, B in Canada
Positive FIT test Spring 2013(intermittent blood=of course thought it was hemorrhoid) & finally got appt with colo-rectal surgeon Dec.2013 & then colonoscopy Aug. 2014
Sigmoid resection (laparoscopic) Nov. 2014 T3N0M0=colon 2A Female 53 yrs. old
Choice of to take Capecitabine(Xeloda) or not: did 2 rounds and then had to quit due to many side-effects(still have auto-immune/drug-induced arthritis problems)
Colonoscopy Fall 2015(few polyps), Jan 2017(couple polyps); all scans/CEA/monitoring good
Sigmoid resection (laparoscopic) Nov. 2014 T3N0M0=colon 2A Female 53 yrs. old
Choice of to take Capecitabine(Xeloda) or not: did 2 rounds and then had to quit due to many side-effects(still have auto-immune/drug-induced arthritis problems)
Colonoscopy Fall 2015(few polyps), Jan 2017(couple polyps); all scans/CEA/monitoring good
Re: The long goodbye
We are here for you. Please come here to vent, cry, ask questions and ask for support. We all understand how heartbreaking this Fing disease is. You are not alone.
Angie
Angie
DH diagnosed with Stage 4 CRC Nov 2013
11 tx Folfox/Avastin; LAR/liver resection/introp RF of liver - May 2014
3 treatments FOLFIRI
Lung resection - Sept 2014
FOLFIRI + Avastin x 10 treatments
Avastin+5FU q3 weeks x 4
SBRT x 1 lung met
RFA for remaining 3 in Oct and Nov
SBRT for liver met Jan 16
lung mets growing
Enrolled in NIH TIL trial Oct 16
XRT for lung met 12/16
Cells didnt grow for TIL trial Feb 17
Waiting for NCT03085914 at Penn
11 tx Folfox/Avastin; LAR/liver resection/introp RF of liver - May 2014
3 treatments FOLFIRI
Lung resection - Sept 2014
FOLFIRI + Avastin x 10 treatments
Avastin+5FU q3 weeks x 4
SBRT x 1 lung met
RFA for remaining 3 in Oct and Nov
SBRT for liver met Jan 16
lung mets growing
Enrolled in NIH TIL trial Oct 16
XRT for lung met 12/16
Cells didnt grow for TIL trial Feb 17
Waiting for NCT03085914 at Penn
Re: The long goodbye
Thinking of you and your husband today..
Retchel
Retchel
wife of Stg 4 SRC
Diag.'12-2013(rd+Xeloda+oxi)
04/16/14 Clear CT-
8/25/14Kidney blockd nepro.
Rec. lung 1 enlrg. Abdomen
Inoperable/incurable /Chemo for life
11/21/14 Xeloda+Irinetocan 6x
hoping for a bright sunny day
Diag.'12-2013(rd+Xeloda+oxi)
04/16/14 Clear CT-
8/25/14Kidney blockd nepro.
Rec. lung 1 enlrg. Abdomen
Inoperable/incurable /Chemo for life
11/21/14 Xeloda+Irinetocan 6x
hoping for a bright sunny day
-
Steph20021
- Posts: 553
- Joined: Sat Dec 27, 2014 4:58 pm
- Location: Ontario, Canada
Re: The long goodbye
This breaks my heart. I hate cancer so much. I see my wife in you. You are so brave. Sending love from Toronto area.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
Re: The long goodbye
I am so sorry you are going through this. You both are way too young, and it just isn't fair. I wish you strength in the coming days, and comfort for your husband. My words seem so weak in contrast to your situation. Scream away!
Teddi
Teddi
47 at diagnosis
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15
-
GreenMonkey
- Posts: 336
- Joined: Wed Jun 12, 2013 5:43 am
- Contact:
Re: The long goodbye
Spring,
A new day is before you. Hold onto the love that you have cultivated. Sending you strength and courage.
Shannon
A new day is before you. Hold onto the love that you have cultivated. Sending you strength and courage.
Shannon
RC - T3NXMX depth of invasion 3mm - diagnosed 5/26/13 age 53
High Dose, Internal Radiation at Johns Hopkins resulted in a PCR
LAR 9/10/13 - 0-26 nodes. CEA 1.9 post surgery
XELOX started 10/21/13(8 rounds)
11/14 NED
greenmonkeytales.blogspot.com
High Dose, Internal Radiation at Johns Hopkins resulted in a PCR
LAR 9/10/13 - 0-26 nodes. CEA 1.9 post surgery
XELOX started 10/21/13(8 rounds)
11/14 NED
greenmonkeytales.blogspot.com
Re: The long goodbye
My heart goes out to you and your husband, and to all those who love you. I wish I had words that could ease your pain, if only for a moment. My thoughts and prayers are with you.
Pattie
Pattie
Husband IIIC;
7/12 - resection; 12 rounds folfox
CT/PET scans 4/13, 9/13 - NED
CT scan 3/14 - liver/LN mets
5/2/14- failed liver resection - peri. mets.
6 rounds of iri/avastin
8/26/14 - failed liver resect/HIPEC. dse. progression
9/14 - 3/15 - progression on chemo
3/23/15 - treatment stopped; working the bucket list
7/12 - resection; 12 rounds folfox
CT/PET scans 4/13, 9/13 - NED
CT scan 3/14 - liver/LN mets
5/2/14- failed liver resection - peri. mets.
6 rounds of iri/avastin
8/26/14 - failed liver resect/HIPEC. dse. progression
9/14 - 3/15 - progression on chemo
3/23/15 - treatment stopped; working the bucket list
Re: The long goodbye
Springhaze24,
Bless you and your dear husband. My hope is that you both find Peace. You are both very young, too young for this level of pain. If a scream into the canyon helps, then you scream. We will listen.
God Speed
Peadubb
Bless you and your dear husband. My hope is that you both find Peace. You are both very young, too young for this level of pain. If a scream into the canyon helps, then you scream. We will listen.
God Speed
Peadubb
Husb dx IIIb Jan/9
Resect Jan/9
12 trts 5FUV/Ox
Stg 4 Nov/11
Lung /liver mets Nov/11
Myxoma Dec/11
Liv resect Dec/11
Lobect Jan/12
Heart Mar/12
aorta/liv Sept/12
GIFIRB Feb/13
Embolism Apr/13
chemo Nov/13
End chemo December 2014
Start Stivarga Feb 2015 Scan on April 14, 2015
Resect Jan/9
12 trts 5FUV/Ox
Stg 4 Nov/11
Lung /liver mets Nov/11
Myxoma Dec/11
Liv resect Dec/11
Lobect Jan/12
Heart Mar/12
aorta/liv Sept/12
GIFIRB Feb/13
Embolism Apr/13
chemo Nov/13
End chemo December 2014
Start Stivarga Feb 2015 Scan on April 14, 2015
Re: The long goodbye
Scream your head off!!!! we will all hear you. I'm sorry that you and your husband have to go through this at all (never mind at your age)!!! 
!! I hope that you can take solace in the fact that you have been there for him when he needed you most, and we are here for you both.
Peace and love (((hugs)))
!! I hope that you can take solace in the fact that you have been there for him when he needed you most, and we are here for you both. Peace and love (((hugs)))
Dx 12/12 Stage 3B sigmoid crc T3N1M0
2/13 resection w/ temp Iliost, port insert. Reversal 5/13.
6/13-12/13 Folfox 12 sessions. Oxi stopped @ session 4.
9/14 CT shows 1.2CM nodule on upper lobe of left lung.
3/15 wedge resection left lung (stage 1A lung cancer) no chemo.
9/16 CT/PET shows node activity (SUV 10.6), CEA extremely elevated. Mets from colon. Upgraded to stage 4.
11/16-4/17 Begin Folfiri w/Avastin 8 sessions.
4/19-9/19 endobronchial activity lung mets.
1/20 Stivarga (palliative).
2/13 resection w/ temp Iliost, port insert. Reversal 5/13.
6/13-12/13 Folfox 12 sessions. Oxi stopped @ session 4.
9/14 CT shows 1.2CM nodule on upper lobe of left lung.
3/15 wedge resection left lung (stage 1A lung cancer) no chemo.
9/16 CT/PET shows node activity (SUV 10.6), CEA extremely elevated. Mets from colon. Upgraded to stage 4.
11/16-4/17 Begin Folfiri w/Avastin 8 sessions.
4/19-9/19 endobronchial activity lung mets.
1/20 Stivarga (palliative).
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