FYI, Pog posted on the
viewtopic.php?f=1&t=49229
Member up date post and gave a brief synopsis of what has happened to him.
China! Still working hard, huh? All the fabulous people on this board just never cease to amaze me with herculeon efforts of normalcy.
Now if we can just hear from sooo many others on that thread. . .where's raym? and on and on. . .
Oh POG! Unimaginable! share when you can
Oh POG! Unimaginable! share when you can
DH dx 7/12
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest
-
bitchslapped
- Posts: 1538
- Joined: Tue Sep 09, 2014 3:23 pm
- Location: PNW/USA
Re: Oh POG! Unimaginable! share when you can
Sounds like something right out of Nightmare On Elm Street.
Wishing Pog well. What an ordeal. Thank God for good samaritans (coworker).
Bitchslapped
Wishing Pog well. What an ordeal. Thank God for good samaritans (coworker).
Bitchslapped
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia
-
DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: Oh POG! Unimaginable! share when you can
Poor Pog! Sounds so horrendous! 
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Re: Oh POG! Unimaginable! share when you can
Pog... I'm so sorry.
Don't get lost and update us, please!
Don't get lost and update us, please!
Re: Oh POG! Unimaginable! share when you can
Thinking of you, Pog....check in when you can and/or feel like it
DH dx 7/12
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest
Re: Oh POG! Unimaginable! share when you can
Aww, thanks for the concern guys, I'm touched. Ive been lurking but haven't felt up to posting much.
I've been doing a full re-staging this week and last and was supposed to talk to my team today about the detailed plan ahead but, of course, the people who had promised to talk to each other, haven't. Tumor board meeting Wednesday so more news (hopefully) on Thurs. The news appears to be trending towards being neither shockingly bad nor particularly good, so more plodding on.
Generally I'm still feeling pretty crappy and low in energy but a lot better than two weeks ago.
I'll update when I know more.
I've been doing a full re-staging this week and last and was supposed to talk to my team today about the detailed plan ahead but, of course, the people who had promised to talk to each other, haven't. Tumor board meeting Wednesday so more news (hopefully) on Thurs. The news appears to be trending towards being neither shockingly bad nor particularly good, so more plodding on.
Generally I'm still feeling pretty crappy and low in energy but a lot better than two weeks ago.
I'll update when I know more.
09.11 Dx @ 46, uT3uN1M0 G2
11.11 radio+Xeloda
01.12 LAR
03.12 Xeloda
09.12 Liver mets, 2 LN
09.12 Folfox+Avastin
02.13 Resection
04.13 Folfox & Avastin
11.13 Local recurrence
02-07.14 FOLFIRINOX
08.14 Re-rediation
Left us 28.05.2015
11.11 radio+Xeloda
01.12 LAR
03.12 Xeloda
09.12 Liver mets, 2 LN
09.12 Folfox+Avastin
02.13 Resection
04.13 Folfox & Avastin
11.13 Local recurrence
02-07.14 FOLFIRINOX
08.14 Re-rediation
Left us 28.05.2015
Re: Oh POG!
Our friend Pog posted some bad news in the mCRC IV ongoing thread; copying it here, because many may miss it -and I don't want to intrude in that thread.
Very sorry to read this, my friend : (
Very sorry to read this, my friend : (
pog451 wrote:So this is me, on my way out.
I'll post it here rather than the main board.
I won't re-run the details, but before Xmas I had significant rectal bleeding. Tests showed that my second dose of radiation had nuked everything and left behind a massive inflammation, within which tumor cells could still be detected. In other news, the mass on my liver got significantly less, but the stable-for-two-years things on my lungs grew slightly.
The plan was to set a colonostomy or ileostomy to stop stool running through thei inflammation and give it a chance to heal. As a result of renewed bleeding on Friday, I took myself off to the hospital and they pulled the op forward to yesterday.
Now I've been hit by a CRC classic - They opened me up and almost couldn't find enough small bowel to build an ileostomy, let alone a colostomy, because everything was "just one big lump" due to peritoneal metatastasis. F#%k.
I'm recovering from the op ok, the ileo seems to be working well, tomorrow is tumor board so I'll guess I'll know then if any more treatment makes any sense. My gut feeling is no - I'd rather try and spend a few good weeks with the family than a couple of months on the couch with chemo side effects. It doesn't look like I'm going to make 50 though (in June).
I've always known this disease can go nasty quickly, but it's another thing when it happens to you. My poor family, My 5-year old obviously knows I'm sick, but not how bad. Goodness only knows how and what we are going to tell her.
Re: Oh POG! Unimaginable! share when you can
Mana....so thoughtful of you to repost this....
POG, no words
POG, no words
DH dx 7/12
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest
Re: Oh POG! Unimaginable! share when you can
Thank you for posting, Maia. POG, gentle hugs and prayers.
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed
2 Corinthians 12:9
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed
2 Corinthians 12:9
Re: Oh POG! Unimaginable! share when you can
Pog, thinking of you a lot. Maybe put a post out if you feel up to it. If not. . .I am sure there are hundreds like me who are thinking of you.
DH dx 7/12
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest
Re: Oh POG! Unimaginable! share when you can
Thinking of you, yes, would want to know, good or bad. You're loved and respected here, A.
Re: Oh POG! Unimaginable! share when you can--update
I have heard some very sad news about dear Pog
I don't feel like he would mind me sharing with you as he is obviously cared about here.
The news is grim. Apparently he is going thru one horrid emergency after another and is not in a very fighting frame of mind right now. This breaks my heart as I'm sure it will you all as well.
Maybe he'll feel up to posting soon.
Pog....so sorry...
I don't feel like he would mind me sharing with you as he is obviously cared about here.
The news is grim. Apparently he is going thru one horrid emergency after another and is not in a very fighting frame of mind right now. This breaks my heart as I'm sure it will you all as well.
Maybe he'll feel up to posting soon.
Pog....so sorry...
DH dx 7/12
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest
Re: Oh POG! Unimaginable! share when you can
Sorry to hear that.......
nov. 2011 RC Stage 3
dec. 2011 lap. rectumresection, temp. ileo.
jan.-june 2012 FLOX
aug. 2012 ileo. rev.
jan, sept 2013 surg. for livermet
june 2014 local recurrence + PC, FOFIRI/Avastin june-dec. break
june 2015 surg. for colon blockage
dec. 2011 lap. rectumresection, temp. ileo.
jan.-june 2012 FLOX
aug. 2012 ileo. rev.
jan, sept 2013 surg. for livermet
june 2014 local recurrence + PC, FOFIRI/Avastin june-dec. break
june 2015 surg. for colon blockage
Re: Oh POG! Unimaginable! share when you can
Thank you for letting us know, Regan. POG, our hearts are with you. May you please catch a break!
-
tammylayne
- Posts: 2177
- Joined: Fri Jul 16, 2010 9:24 am
Re: Oh POG! Unimaginable! share when you can
Sending you strongest thoughts that you get through this POG. Many people are thinking of you and wishing you well!!!!
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal
"You never know how strong you are until you have to become your own hero."
'06 Stage 1 CC,
'10 Stage 3 Rectal
"You never know how strong you are until you have to become your own hero."
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