Doing fine, all things considered. Slowly starting to recover from the 2-year odyssey of radiation/chemo/surgeries/blood clot and stent placement and 2 tries at IVC filter removal/piriformis syndrome (from radiation and/or steroid-induced proximal muscle atrophy) and sciatic nerve injury, just starting to feel like myself again. Big props to my dedicated docs, physical therapists, and Pilates instructors for helping me get here.
Feeling a lot of survivor guilt - check in most everyday, but rarely post. So far so good - super-clean 2-year post-treatment CT in September (nothing out of the ordinary to watch, just the expected, stable post-surgical/post-radiation changes), undetectable CEA. Going in for checkup/CEA after the holiday, hopefully all will be well.
Post-reversal is settling down, I'm down to once/twice a day usually as long as I take my 2 Welchol every morning. A minor leak occasionally (I still wear a thin pad to be safe) but nothing too annoying, unless I'm really far away from a toilet, get a stomach bug (yikes) or forget my Welchol. Seriously, if any of you post-reversal folks have issues with severe urgency/incontinence after eating, ask your docs about it - it is magic for me. Works the same as Questran powder, but in tablet form rather than choking down the gritty Questran sludge, and won't wreck your teeth over time.
I told my docs, "the good news is, my old GI function is returning. The bad news is, my old GI function is returning" (the alternating constipation/loose stools I've had since childhood, that led to presumption of IBS + hemorrhoids and delayed my RC diagnosis for a few years). I think things are probably stabilizing now (about 1.5 years out) and it'll be a matter of managing my fiber intake from here out.
That's it for me ... thank you to the whole Colon Club family for being my safe haven and sounding board. All my very best wishes for a wonderful holiday season and good outcomes in the New Year.
Last edited by laneylou
on Sun Dec 28, 2014 2:18 pm, edited 1 time in total.
Laine, dx @ 39, 4/12
T3N0M0 Stage IIA
Emergency IVF, 4/12
Chemorad, LAR/temp ileo, FOLFOX (no oxi after #2)
DVT on chemo; IVC filter
Reversal/port out 5/13
IVC filter finally out 2/14
NED (clean CT, scope, CEA)