Hi.....I too check in regularly, but don't post my concerns because I either feel too overwhelmed, or feel my problems pale in comparison with others.
I had my 9 month post chemo appointment with the oncologist on Friday, and just saw some of the lab results online, which look good. My WBC are finally in normal range, and the Platelets went up a bit. I always have the labs drawn after seeing the Oncologist, and have to rely on the nurse sending me the ones that aren't posted in the mail. In Sept. my CEA was 3.9, and when I asked him about this on Friday, he just said it's in normal range. He spent most of the visit educating his Resident about CC, and I try to catch what I can understand. When I asked him about the CT I had in October , he said he had called me on the phone, and looked up his documentation on the computer to prove it. I'm so happy that the report is also online, so I was able to read it myself, but I know he never called me. The CT was clear, and my spleen is shrinking, which I guess is why my platelets are finally increasing.
I guess my point is that this forum has been a major source of education for me. I am not sure what to do about my treatment, since I would like to have a dialog with my MD. It seems silly to switch now, since I'm not in active tx, and I am also enrolled in a research study. If I have a recurrence, which I guess is probable, I should probably switch Oncologists.
For now I'm good, and I want to wish everyone on this forum peaceful holidays, with at least a brief respite from the battle with this illness, both physical and mental.
Resection of splenic flexure 7/24/13
T3N2BM0, Stage 3c,12/29 nodes
Folfox x12 9/13-3/14
CT scan 4/14, enlarged spleen, otherwise clear
CT 4/15, spleen WNL.
6/17 3 cm benign polyp at ileocecal valve, awaiting removal