Pathology results still delayed

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DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Pathology results still delayed

Postby DarknessEmbraced » Thu Dec 18, 2014 10:25 am

I talked to my surgeon's office yesterday and they said that my pathology results most likely won't be back until my appointment with my surgeon in January 6th. :( I was hoping to know them before Christmas so that I could relax more. It's the uncertainty that bothers me. Is DNA testing usually done along with pathology results or does the surgeon have to request it? I remember the surgeon asking if colon cancer is in my family. It's not on my mother's side but I don't know about my father's since I don't know my father at all nor his family.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: Pathology results still delayed

Postby lpas » Thu Dec 18, 2014 10:33 am

I'm so sorry--that really stinks. It seems like you've been waiting forever. I don't know the answer to your question about DNA tests but I would be really irritated about the lengthy delay.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

alphagam
Posts: 203
Joined: Tue Jun 14, 2011 10:48 am
Facebook Username: Kathy Maine Ruess

Re: Pathology results still delayed

Postby alphagam » Thu Dec 18, 2014 10:50 am

Personally, I would find such a delay totally unacceptable. I had my surgery done on a Wednesday afternoon and my surgeon called me at 4:30 pm on Friday. I cannot even imagine waiting this long. Last April I had gallbladder/appendix surgery. As is normal, the body parts were sent for pathology. I got those results in about 36 hours. Can you call the hospital?

Kathy
Dx Feb 2010 4 cm tumor, just inside rectum
EUS stated T3 tumor
2nd opinion, need better path
Mar 2010 transanal surgery. Surgery by board certified CRS found tumor only in lining
6 exams of surg site, 3 PET, 3 scopes laterNED.
Scope in Mar2015, clean colon
Next scope/test in 3 years

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: Pathology results still delayed

Postby cathy123 » Thu Dec 18, 2014 11:14 am

Wow - that is really a long time. I know the Canadian system is a little different than the US, but still a month and a half seems excessive. However, since they thought you are stage 1, the odds really are in your favor so I would just hope for the best and concentrate on recovering.

As far as the DNA, I think that would only be done if the dr requests it - he should be able to tell you that. I know they did some sort of genetic test on my colonoscopy biopsy since I am relatively young, but older than you. Luckily it showed that it is probably negative - dr felt the need to make it conditional, with this disease there never seems to be any 100% positive news.
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Pathology results still delayed

Postby DarknessEmbraced » Thu Dec 18, 2014 11:18 am

Calling the hospital wouldn't do any good unfortunately. At my surgeon's office they can check the stage of my pathology and it still says diagnosis. There's only one pathologist here. There's a huge shortage of doctors so I wouldn't be surprised there is a shortage of specialists as well. I have an endocrinologist and there is only one in my entire province. Could it be because of the holidays coming up?
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Pathology results still delayed

Postby KWT » Thu Dec 18, 2014 11:37 am

I think if I was you I'd just sit back and relax, recover and get used to this waiting around shit. It's part of the hijacking process. It took quite some time before I recieved my pathology report I'm thinking a month.

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Pathology results still delayed

Postby DarknessEmbraced » Thu Dec 18, 2014 11:51 am

Sorry you had to wait so long Kenny. I try to relax and I do relax but it's always in the back of my mind. I need to focus on the positive.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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meatie
Posts: 418
Joined: Wed Aug 20, 2014 8:13 am
Location: San Jose, CA

Re: Pathology results still delayed

Postby meatie » Thu Dec 18, 2014 2:51 pm

@DarknessEmbraced

This is taking too long. I am guessing that the hospital lab staff is already in holiday mode and don't want to bother with your colon/rectum specimen until after new year.
Mother DX @59 8/14
cln+lvr res 9/14, stage 4
FOLOX+Avs 12-rd 10/14 to 4/15
Reoccurrence, KRAS mutant 11/15
Folfiri 18-rds 11/15-8/16
FOLFIRI with Ramicirumab 28-rds 8/17-9/18
Regorafenib 10/18-10/19
Lonsurf 10/19 onward
Folfox rechallenge 05/20
Regonivo (Opdivo+Stivarga) 08/20

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Pathology results still delayed

Postby DarknessEmbraced » Thu Dec 18, 2014 3:15 pm

I assume it is due to the holidays.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

jjinmd
Posts: 88
Joined: Thu Dec 18, 2014 9:24 am

Re: Pathology results still delayed

Postby jjinmd » Thu Dec 18, 2014 3:49 pm

How very frustrating. My surgery was the day before yours and I had path results before I left the hospital. My gastroenterologist did the preliminary genetic testing on the biopsy from my colonoscopy. Those results did take longer than the biopsy results. I hope you get some answers soon, and that you can keep your mind occupied until you do.
42 year old Mom of two
7/14 Stage IV rectal cancer; CEA 70
4 rounds FOLFIRI/Avastin; 5 days radiation
11/14 TME, Liver resection, Temp Ileo - cPR
6 rounds FOLFOX
4/15 CT = NED
5/15 Ileo reversal
7/15 CEA = 2.1

orcasres
Posts: 836
Joined: Mon Jul 01, 2013 10:23 pm
Location: Orcas Island, WA

Re: Pathology results still delayed

Postby orcasres » Thu Dec 18, 2014 4:11 pm

I can't speak to the amount of time it is taking to get your path results, but it sounds like an unusually long amount of time. I had surgery on Thursday, first path results on Monday, and the additional testing they needed to do by Tuesday. In the US, the DNA testing is not requested by the surgeon normally. In my case, I was referred to a genetic counselor; the pathologist actually recommended it in the report. It is relatively expensive ($3000 for me - once they identified the suspect gene other relatives would be tested at about half the cost) primarily because of the patents held on the process. Also, there are folks who just do not want to know. So they need to discuss the situation, explain the risks and benefits, and let the patient decide. It was a no brainer for me, especially since insurance covered the cost, but the counselor was nearly in tears as she talked about one patient who already had had colon and endometrial cancer and whose brothers and sisters could not afford the test.

So if you were a US patient, I would be pretty certain that your genetic testing was not automatic or you would have been told it was done, but the system may work differently in Canada. It does require blood samples, and I would have thought you would be told that they were specifically for genetic testing if that was the planned use.

Try and relax for the holidays. Easy for me to say, I know. Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Pathology results still delayed

Postby KWT » Thu Dec 18, 2014 4:25 pm

I misspoke it was the KRAS testing that took so long for me. Not the pathology report.

Valorie
Posts: 365
Joined: Mon May 05, 2014 6:33 am

Re: Pathology results still delayed

Postby Valorie » Thu Dec 18, 2014 4:44 pm

My surgeon had the pathology report in hand the. Day he released me from the hospital. I was in three days. It does seem like it's taking an inordinate amount of time for you to get it. Is your doctor just checking the status online, or have they actually called the lab and asked for the reason for delay? Hang in there DE. I know it must be frustrating for you to wait this long.

Valorie
Age 53 dx 2a CC 0/21 LN Oncotypedx score: 11
Sigmoidectomy 5/8/14
MSS No lymphovasular involvement,
6/14 PET - NED, 12/14 CT NED, 7/15 CT - NED
6/14-12/9/14 Xeloda 8 cycles
2/12/15 incisional hernia repair - Boooo!

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Pathology results still delayed

Postby DarknessEmbraced » Thu Dec 18, 2014 4:48 pm

My surgeon's secretary checks online. She said she can check to see what phase my pathology testing is in. I thought there was only diagnosis and then the report? I was in the hospital six days after surgery. I think the delay is due to the holiday and there only being one pathologist.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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