O/T Be extra careful, friends

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Bev G
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O/T Be extra careful, friends

Postby Bev G » Sun Dec 14, 2014 8:05 pm

Somewhat off topic, but not totally. Those of us with neuropathy can have our balance out of whack pretty easily. Within the last 12 hours I've had two really scary near misses. Well, one was not a miss, it was a hit. I had to get up during the night and sort of tripped on my worst foot, which now has foot drop. I stumbled and literally missed going through my sliding glass door in my room by about an inch. Had I not had the door frame to grab, i think I would have been a sparkly glass and blood covered Christmas ornament buried in 2 feet of Vermont snow. I had so much adrenalin from that very close call that I was awake and drowning in adrenalin for hours.

Next, this morning we were going out to brunch. It's our 20th anniversary. My husband "forgot" to put salt on our front ramp. I fell, and I fell really hard on my head. Pretty sure I looked like a cartoon Bev as my feet flew up in front of me and I just came down, head first. Was thinking about going to the ER to make sure I hadn't fractured my skull (it felt like a hard enough fall to do that) or developed a subdural hematoma, but other than my back and already broken ankle hurting, I have a bad headache but no weird level of consciousness or anything like that. Plus, I have a neurologist appointment in the morning and she can probably check it out a bit for me.

Anyhow, everyone, especially those of you who can't particularly feel your feet and get off balance; please when it comes to Winter ice, etc, expect the worst and be EXTRA careful. It's amazing how well much of our bodies were made to protect us. When those mechanisms break down, we are at substantial risk.

Be well, all of you! 8) 8) 8)

Love and Happy Holidays.

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

justin case
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Re: O/T Be extra careful, friends

Postby justin case » Sun Dec 14, 2014 9:12 pm

Bev G wrote:Somewhat off topic, but not totally. Those of us with neuropathy can have our balance out of whack pretty easily. Within the last 12 hours I've had two really scary near misses. Well, one was not a miss, it was a hit. I had to get up during the night and sort of tripped on my worst foot, which now has foot drop. I stumbled and literally missed going through my sliding glass door in my room by about an inch. Had I not had the door frame to grab, i think I would have been a sparkly glass and blood covered Christmas ornament buried in 2 feet of Vermont snow. I had so much adrenalin from that very close call that I was awake and drowning in adrenalin for hours.

Next, this morning we were going out to brunch. It's our 20th anniversary. My husband "forgot" to put salt on our front ramp. I fell, and I fell really hard on my head. Pretty sure I looked like a cartoon Bev as my feet flew up in front of me and I just came down, head first. Was thinking about going to the ER to make sure I hadn't fractured my skull (it felt like a hard enough fall to do that) or developed a subdural hematoma, but other than my back and already broken ankle hurting, I have a bad headache but no weird level of consciousness or anything like that. Plus, I have a neurologist appointment in the morning and she can probably check it out a bit for me.

Anyhow, everyone, especially those of you who can't particularly feel your feet and get off balance; please when it comes to Winter ice, etc, expect the worst and be EXTRA careful. It's amazing how well much of our bodies were made to protect us. When those mechanisms break down, we are at substantial risk.

Be well, all of you! 8) 8) 8)

Love and Happy Holidays.

Bev

Dear Bev
Why you? You just stated 2 very good reasons I live in Houston in a 1 story house. Rarely snows, and no stairs or ramp. Comes in handy, considering my lifestyle :roll: Were you on your way to McCormick and Schmitt ? I know it is one of your favorite restaurants? Anyway, a few hydrocodone, will help you tomorrow, and try not to go ice skating, without kneepads.(and a helmet)
Regards, Michael
I hope this didn't put too much of a damper on your anniversary
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

bitchslapped
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Joined: Tue Sep 09, 2014 3:23 pm
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Re: O/T Be extra careful, friends

Postby bitchslapped » Sun Dec 14, 2014 11:58 pm

First of all, Happy 20th Anniversary. Secondly, excellent point/reminder for everyone.
A dangerous day for you. I hope you have no lasting effects from the fall.

Best Wishes
Bitchslapped
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

teachpdx
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Re: O/T Be extra careful, friends

Postby teachpdx » Mon Dec 15, 2014 12:04 am

Dear Bev,

Happy Anniversary :D Sorry that your getting new owies - you've had enough over the last year you don't need new ones. You should get some of those cartoon character bandaids so at least you have something to smile about when you look at your owies. kgd
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

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Bev G
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Re: O/T Be extra careful, friends

Postby Bev G » Mon Dec 15, 2014 12:11 am

teachpdx wrote:Dear Bev,

Happy Anniversary :D Sorry that your getting new owies - you've had enough over the last year you don't need new ones. You should get some of those cartoon character bandaids so at least you have something to smile about when you look at your owies. kgd


:lol: :lol: :lol: Thanks, and yes I should. I got Steve some Steelers bandaids for Christmas. He hasn't seen them yet. Maybe I'll put one on my newly discovered banged up knee and he'll be so jealous. LOL
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Ron50
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Re: O/T Be extra careful, friends

Postby Ron50 » Mon Dec 15, 2014 2:05 am

I think the neuropathy brigade constantly need reminding that we are basically unstable. I went fishing a couple of weeks ago. Sitting in a small aluminium tinny for several hours does nothing for neuropathy. It was very windy and not much fish so I decided to pull the pin and go home. Their was quite a line up back at the boat ramp so I got out of the boat to stretch my legs. It was nice firm sand , no mud and good footing so I promptly fell A over T into the mangroves. I got up only to repeat the procedure. I sat on the front of the boat and waited till everyone had finished then very carefully got the boat out, fortunately I fitted an electric winch or I would still be there. Ron. PS not one of the boaties present bothered to check if I was ok.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

Teddi
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Re: O/T Be extra careful, friends

Postby Teddi » Mon Dec 15, 2014 2:35 am

Hope you had a happy celebration of a milestone anniversary. Thank you for the reminder about safety. I am just starting to learn about neuropathy first hand, so I am grateful for the heads up. Here's to quick healing.

Teddi
47 at diagnosis
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15

Sharona
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Re: O/T Be extra careful, friends

Postby Sharona » Mon Dec 15, 2014 3:25 am

Happy anniversary, Bev!
Sorry to Hear about your falls. It is hard enough to get around without balance issues, and so much more difficult with.
Please take care and be careful.
Sharon
Dx CRC mets to lung, brain
Craniotomy 11/12
CyberKnife 12/12
colostomy
FOLFIRI, FOLFIRI, avastin, Zaltrap
Stivarga
Multiple brain mets.
WBR and pallative pelvic radiation
Hospice 1/21/15
http://www.caringbridge.org/visit/sharonrauch

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singingholly
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Re: O/T Be extra careful, friends

Postby singingholly » Mon Dec 15, 2014 5:01 am

You're right...!
Take care Bev.
Olivia
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno

Marian1961
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Re: O/T Be extra careful, friends

Postby Marian1961 » Mon Dec 15, 2014 8:18 am

Scary! I hope you feel ok today, the day after can be a sore one. Glad you are seeing the neuro, head whacks are worrisome.
Caregiver 53 brother
Dx 09/13 stage iv, met liver
Emergency stoma
? Chemo 09/30

DarknessEmbraced
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Re: O/T Be extra careful, friends

Postby DarknessEmbraced » Mon Dec 15, 2014 12:34 pm

Happy Anniversary! Sorry about your frightening falls! I'm glad that you're seeing your neurologist!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

peanut_8
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Re: O/T Be extra careful, friends

Postby peanut_8 » Mon Dec 15, 2014 1:15 pm

Happy belated annivesary, and hope you are feeling better soon Bev.
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

jean60
Posts: 427
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Re: O/T Be extra careful, friends

Postby jean60 » Mon Dec 15, 2014 2:22 pm

Dear Bev, I hope you did tell the neurologist about your fall and that everything is okay. Neuropathy in my feet has never gotten better and I find I really have to slow things down or I am on my way to the floor. Stairs are really hard for me...

Be careful out there, dear lady.

Jean
Dx Rectal Cncr 5/12
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13

JDinNC
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Re: O/T Be extra careful, friends

Postby JDinNC » Mon Dec 15, 2014 6:21 pm

Bev....

Happy anniversary.

And thank you for reminding us to be extra careful with our feet. I've notice with the cold weather mine feel worst. When getting up during the night, my feet feel like they are melting into the floor. Please be very careful...

Jan
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED

mymom
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Location: Connecticut

Re: O/T Be extra careful, friends

Postby mymom » Mon Dec 15, 2014 9:47 pm

Glad you are ok Bev. I actually went over to my mom's house and helped her decorate the tree for that reason because someone had to get on the step stool and it wasn't going to be here. I had visions of her falling in the tree. Dad was working so if I didn't go she was going to do it on her own. I always like decorating with her anyway.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023


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