Not sleeping well

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DarknessEmbraced
Posts: 3577
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Not sleeping well

Postby DarknessEmbraced » Sun Dec 14, 2014 10:24 am

I sleep with a pillow under my knees and a pillow beside me so I won't turn on my side. Laying on my side hurts because of my incision and also the internal pain I have. I get up at least once or twice a night to go to the bathroom. To pee mostly but sometimes for bowel movements. I never feel rested. I know that recovering from surgery will make me feel tired too. I've tried napping during the day but can't.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Not sleeping well

Postby justin case » Sun Dec 14, 2014 11:12 am

If you woke up, today is a good day!
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

DarknessEmbraced
Posts: 3577
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Not sleeping well

Postby DarknessEmbraced » Sun Dec 14, 2014 11:17 am

You're right Michael I do have to be thankful for that.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Not sleeping well

Postby KWT » Sun Dec 14, 2014 11:26 am

You just have to be patient. I'm going through it too. Up a lot last night for bathroom. Are you taking pain pills? I used to fight the pain medication now I look forward to it.

DarknessEmbraced
Posts: 3577
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Not sleeping well

Postby DarknessEmbraced » Sun Dec 14, 2014 11:41 am

I take extra strength tylenol during the day and if gets really bad then I take a dilaudid. My surgeon gave me a prescription for 30 dilaudid with no refills. He said to try not to take them too much because they slow down my bowels.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Not sleeping well

Postby KWT » Sun Dec 14, 2014 12:41 pm

Sleep is so important,I hope you can get some better sleep soon.

Val*pal
Posts: 860
Joined: Sun Feb 10, 2013 1:24 pm
Facebook Username: Valerie Barkus Kantner
Location: Metro Detroit, Michigan

Re: Not sleeping well

Postby Val*pal » Sun Dec 14, 2014 1:32 pm

I'm so sorry you're having trouble sleeping. I think that's the most annoying thing in the world! However, keep in mind that you are still recovering from MAJOR abdominal surgery, and the healing process takes time. I think many people underestimate the shock surgery has on the body, so just go with the flow. Keep in mind that resting is also great for the healing process and in time you will get back to how you were before surgery.

Have you thought of asking your doc for something to help you sleep?
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest

lauragb
Posts: 899
Joined: Sun Aug 28, 2011 5:25 pm

Re: Not sleeping well

Postby lauragb » Sun Dec 14, 2014 1:42 pm

You will eventually be able to sleep on your side again. After that surgery, the insides can be tender for a long time but it will get better. I hope you are able to rest some during the day.

Take care.
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

DarknessEmbraced
Posts: 3577
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Not sleeping well

Postby DarknessEmbraced » Sun Dec 14, 2014 1:44 pm

I haven't asked the doctor for anything to help with sleep because I worry about it affecting my other medications. I do get some sleep just not quality sleep. I do rest a lot during the day. I don't push myself.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Not sleeping well

Postby justin case » Sun Dec 14, 2014 1:51 pm

I didn't mean to sound crass. I'm almost 3 years out from surgery, and still get up 1 or 2 times a night. During radiation, I used a pillow to stifle the noise of the chemo pump. After surgery, as you, I used the pillows to keep from rolling over. After I was about 8 weeks past reversal, it sure was nice to sleep on my stomach. Nightly, I still dream of cancer coming back. For some on this board, all of these are minor problems, as their anxiety, and pain,
keep them from sleeping most nights.
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

Coppercent
Posts: 262
Joined: Thu Feb 23, 2012 4:00 pm

Re: Not sleeping well

Postby Coppercent » Sun Dec 14, 2014 2:59 pm

Have you tried walking? Maybe some more activity through the day will help with sleep at night.
07/15/11 Stage III Rectal, 08/11 - 09/11 Chemo/rad 11/11 LAR - Whole rectum gone, ostomy, hysterectomy
01/12 Port placed, 01/12 thru 06/12 Folfox, Xelox 10/03/12 Reversal, Clear scan
And then the story continues.
Currently, remission round two!

alphagam
Posts: 203
Joined: Tue Jun 14, 2011 10:48 am
Facebook Username: Kathy Maine Ruess

Re: Not sleeping well

Postby alphagam » Sun Dec 14, 2014 3:54 pm

After every surgery I have had, for what ever reason, and there have been quite a few, the best medicine I ever used was walking. It might be slow, bent over walking, but it was walking. I did push myself. Not to the point of injuring something, but I did a bit more each day. I hate pain meds. Walking, cooking (I used a stool while chopping, etc.) walking some more. I was tired and slept well. As far as medications affecting each other, I figure that's what Drs and pharmacists are for. They are far more knowledgable than I on drug interactions. I'm in the US so my docs are a phone call away, but I ask questions every time. For my rectal Cancer surgery, I waited 2 days for pathology. When I had gallbladder and appendix removal last spring, my pathology esults were online. In less than 48 hours. I don't have "Cadillac" insurance either. My husband was in the Air Force for 25 years and we use Tricare Standard. Believe me, not the best.

Please DE, talk to your surgeon about your issues, your pathology and you meds. And walk. Move. You will recover faster and feel better

Kathy
Dx Feb 2010 4 cm tumor, just inside rectum
EUS stated T3 tumor
2nd opinion, need better path
Mar 2010 transanal surgery. Surgery by board certified CRS found tumor only in lining
6 exams of surg site, 3 PET, 3 scopes laterNED.
Scope in Mar2015, clean colon
Next scope/test in 3 years

DarknessEmbraced
Posts: 3577
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Not sleeping well

Postby DarknessEmbraced » Sun Dec 14, 2014 4:15 pm

I walk around the apartment but don't walk outside because I worry about slipping. Also I live on the 3rd floor of an apartment building with no elevator. I walk around the short hallway and my apartment is long. I'm dependent on taxis and buses to get places. I have no friends who live nearby who could give me lifts to the mall. My surgeon's office checked the pathology last week and said they are still in the diagnostic stage. There's only one pathology working on my results and everything here takes forever. I wish my results were available online.
Last edited by DarknessEmbraced on Sun Dec 14, 2014 5:05 pm, edited 1 time in total.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Not sleeping well

Postby justin case » Sun Dec 14, 2014 4:40 pm

It sounds to me like you need to get out of the apartment for a while. As I don't know your situation, this may not be good advise. I know I would go crazy being confined.
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012


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