New diagnosis. I'm terrified

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hawkowl
Posts: 132
Joined: Sun Dec 14, 2014 5:29 am
Location: MN/FL

New diagnosis. I'm terrified

Postby hawkowl » Sun Dec 14, 2014 5:40 am

Just had my first colonoscopy Thursday, and Friday learned I have biopsy proven adenocarinoma of the rectum. The CT scan shows enlarged lymph nodes. Have trans rectal ultrasound Monday, oncology consult Tuesday, and meet with surgeon Wednesday. I am a 53 year old male, and I am totally freaking out. Lucky to have a supportive wife and family, but so scared I won't be there for them. My son just told me he plans to get married in 2017, and I am thinking the worst.

I know there is no predicting anything right now, but I just needed a place to vent, because as usual I cannot sleep. Ugh.
Dx 12/2014 T3N2MX (distant LPLN) low rectal
12/2014-4/2015: FOLFOX (8 cycles)
4/2015-6/2015: 28 cycles of chemoradiation with xeloda, SBRT
8/2015: Robotic APR with iliac node dissection; path showed ypT0,ypN0 (complete pathological response).
11/2015 scans clear, CEA 2.1
11/2015 parastomal hernia repair
3/2016 CEA 1.7, scans stable...
6/2020 5 years of normal CEA and stable scans
Now dealing with pyoderma gangrenosum.
Totally disabled due to oxaliplatin induced neuropathy and dysautonomia

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: New diagnosis. I'm terrified

Postby KWT » Sun Dec 14, 2014 12:58 pm

Hang in there. You have a busy week coming up and hopefully you will get some good info and a plan in place. We're all freaking out. You're hangin with the right group here.

User avatar
singingholly
Posts: 1133
Joined: Thu Feb 27, 2014 3:37 am
Location: Northern Italy

Re: New diagnosis. I'm terrified

Postby singingholly » Sun Dec 14, 2014 1:05 pm

Worst scenarios are just immagination, reality is a hard marathone that's just begun. Please concentrate on winning this fight, it's in your possibilities and it's what you have to do now.
Olivia
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno

bitchslapped
Posts: 1538
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: New diagnosis. I'm terrified

Postby bitchslapped » Sun Dec 14, 2014 1:15 pm

Welcome to the forum. You have taken the right step for information & support. You are not alone. Try not to get too far ahead of yourself & as you gain more information the "search box" will be a useful tool as well as the members here are a great resource. A cancer diagnosis is very scary, we know. Take one step @ a time as you & your doctors get a full diagnosis & a plan in place.

Best Wishes
Bitchslapped
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

Val*pal
Posts: 860
Joined: Sun Feb 10, 2013 1:24 pm
Facebook Username: Valerie Barkus Kantner
Location: Metro Detroit, Michigan

Re: New diagnosis. I'm terrified

Postby Val*pal » Sun Dec 14, 2014 1:24 pm

I'm so sorry you received a cancer diagnosis. You're probably experiencing the worst days right now, but soon you will regain your footing once you begin the treatment process. I still remember the shock and numbness I experienced upon hearing my husband's diagnosis. It took me days to process the news. If you are having trouble sleeping, I suggest you get something to help with that from your doctor. You need to be alert and rested as you begin the decision making process regarding treatment. All of us need a little help at times, so it's nothing to be ashamed of.

You've made an important step in joining this colon board. The people on here will become your real support group, plus you will learn more from others who have experienced similar diagnoses than you will from your doctor.

Good luck and please keep us informed of your progress. :D
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest

lauragb
Posts: 899
Joined: Sun Aug 28, 2011 5:25 pm

Re: New diagnosis. I'm terrified

Postby lauragb » Sun Dec 14, 2014 1:38 pm

Yes, it is terrifying, and those initial days are the worst. Once all your testing is done and you have a plan in place, you will feel better. I remember sometimes feeling simply panicked and it helped to get outside and just breathe. I worried I'd be dead in a few months but here I am three years later. You will get through this. If you can get outside in nature, I highly recommend it. Also, there is nothing wrong with getting medication for anxiety or to help you sleep when you need it. This site will provide you with so much info and support. Keep coming back and sending thoughts of support for your upcoming tests.

Laura
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

orcasres
Posts: 836
Joined: Mon Jul 01, 2013 10:23 pm
Location: Orcas Island, WA

Re: New diagnosis. I'm terrified

Postby orcasres » Sun Dec 14, 2014 2:10 pm

The first days are very terrifying. This is a normal reaction. If possible, have someone go with you to the appointments since they may hear things you do not from the doctors, have a list of questions you would like answered before you go to each appointment, and plan out a way to collect the large amount of paperwork that will be coming your way soon (bloodwork, scan results, etc.). Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: New diagnosis. I'm terrified

Postby justin case » Sun Dec 14, 2014 2:31 pm

hawkowl wrote:Just had my first colonoscopy Thursday, and Friday learned I have biopsy proven adenocarinoma of the rectum. The CT scan shows enlarged lymph nodes. Have trans rectal ultrasound Monday, oncology consult Tuesday, and meet with surgeon Wednesday. I am a 53 year old male, and I am totally freaking out. Lucky to have a supportive wife and family, but so scared I won't be there for them. My son just told me he plans to get married in 2017, and I am thinking the worst.

I know there is no predicting anything right now, but I just needed a place to vent, because as usual I cannot sleep. Ugh.

Not many GIs perform the rectal ultrasound, with a sigmoid scope. You are in good hands, and doing all the right things. I would be very surprised if a wedding in 2017 was not on your agenda 8)
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

vancouver eve
Posts: 1507
Joined: Fri Jan 18, 2008 3:04 pm
Location: Vancouver

Re: New diagnosis. I'm terrified

Postby vancouver eve » Sun Dec 14, 2014 3:08 pm

We all think the worst until the DX and treatment actually start. Many people on the Board have had terrrible Dx and are still here, including me. Just hang in there and know we all support you.

Valorie
Posts: 365
Joined: Mon May 05, 2014 6:33 am

Re: New diagnosis. I'm terrified

Postby Valorie » Sun Dec 14, 2014 3:24 pm

Hawk- I know you are feeling a multitude of emotions right now. Try to calm and not worry. Worry saps your strength and won't change what is. Sometimes what we imagine is worse than the reality. Hang in there. We are here to support you when you need it. There are many on this board that have been in similar situations. They will be an unlimited amount of information for the questions you will undoubtably have. Don't be afraid to ask. I've found that people here are generous, caring, and at times, a little comedic. Please come back and let us know how your appointments went. Good luck!

Valorie
Age 53 dx 2a CC 0/21 LN Oncotypedx score: 11
Sigmoidectomy 5/8/14
MSS No lymphovasular involvement,
6/14 PET - NED, 12/14 CT NED, 7/15 CT - NED
6/14-12/9/14 Xeloda 8 cycles
2/12/15 incisional hernia repair - Boooo!

helen098
Posts: 2009
Joined: Sun Jul 01, 2007 2:07 pm
Location: Forest Hills New York

Re: New diagnosis. I'm terrified

Postby helen098 » Sun Dec 14, 2014 4:19 pm

Sorry you have to be here but glad you found us
The beginning is the hardest as everything is new
Try not to go crazy with dr Google
Remember no matter what someone here is either feeling the same way as you
Are or have been their
We are here to support, help and give you a place to vent or have a pity party....
But not for too long
Hang in there.
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09

lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: New diagnosis. I'm terrified

Postby lpas » Sun Dec 14, 2014 5:08 pm

Hawkowl -- you and I are in roughly the same place. I was diagnosed in November and am still waiting for surgery and further info on staging, prognosis, etc. It's been the hardest month of my life. We celebrated my daughter's third birthday 2 days after my colonoscopy and all I could think about was how many more birthday parties I'd live to see.

I'm thinking of starting a support thread specifically for those of us who are newly diagnosed, if you have any interest.
Last edited by lpas on Wed Mar 11, 2015 8:51 pm, edited 1 time in total.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

hawkowl
Posts: 132
Joined: Sun Dec 14, 2014 5:29 am
Location: MN/FL

Re: New diagnosis. I'm terrified

Postby hawkowl » Sun Dec 14, 2014 5:54 pm

thank you SO MUCH for all of the support. It really helps to know I am not alone. Just starting the prep for my TRUS tomorrow, so at least I will be preoccupied with that tonight. I will ask for a prescription for something tomorrow, and it is comforting to know that what I have been going through this weekend might not last forever. i am so glad that I found this community!
Dx 12/2014 T3N2MX (distant LPLN) low rectal
12/2014-4/2015: FOLFOX (8 cycles)
4/2015-6/2015: 28 cycles of chemoradiation with xeloda, SBRT
8/2015: Robotic APR with iliac node dissection; path showed ypT0,ypN0 (complete pathological response).
11/2015 scans clear, CEA 2.1
11/2015 parastomal hernia repair
3/2016 CEA 1.7, scans stable...
6/2020 5 years of normal CEA and stable scans
Now dealing with pyoderma gangrenosum.
Totally disabled due to oxaliplatin induced neuropathy and dysautonomia

FatBob2012
Posts: 198
Joined: Tue Jul 03, 2012 3:41 pm
Facebook Username: arthur.h.baker1
Location: Texas, USA

Re: New diagnosis. I'm terrified

Postby FatBob2012 » Sun Dec 14, 2014 6:35 pm

Hawk,

Can not agree more with the other posters. The first days are the worst with many questions that can be reduced to "why me?" These questions will make you crazy with worry and doubt. This is not your fault and there is nothing known at this moment that could have prevented the disease (IMHO). All sizes, genders, fitness levels, skin shades and individual body shapes can, and do, struggle with this condition. I am guilty of wanting to rush to the finish line, even when there is no reason or purpose in the effort. You are in the hands of apparently skilled doctors. Learn all that you can about your condition from Internet sites such as the American Cancer Society (cancer.org) and Cancer.gov . Avoid general searches in Dr. Google! If you find that you can not sleep or are overcome with worry discuss this with your Oncologist and Primary Care Doctor since they may be able to help.

Lastly, as others have said, this is a great place to ask questions. There has not seemed to be any off limits topics. Someone here has either had the emotion or the experience.

Best wishes and welcome to the cancer marathon,
Art
Stage IV 5/2012
FOLFOX + Avastin
Liver res 7/2012
Chemo 9/2012
NED 10/2012
CEA @ 5 mets lung&liver 12/13
Liver spot 3.7 x 2.5 cm found January 2014
Cystectomy 2/14
3/14 FOLFIRI 8 treatments
10/14 CEA 3 with stable METS
12/14 CEA 51 :-((

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: New diagnosis. I'm terrified

Postby cathy123 » Sun Dec 14, 2014 8:19 pm

I was just diagnosed in October and remember that I barely slept the first week. It did get easier as I got more information and started focusing on treatment rather than just worrying I was going to die and not see my kids grow up. So hang in there, and ask lots of questions, get a second opinion. Wishing you all the best.
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds


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