Today I went to the Onc. to receive the results of my scan. Everything looked good. The small nodual I had on my lung shrunk to 3mm from the 5mm it was last time. It is believed the sterotactic radiation is still working. The Onc. (your Onc. CRguy) is going to do another CEA test in two months then we will make a plan for the next step. The Onc. thinks I am doing very good since it will be 8 years in May. My Cea is 2.4 at this time.
Merry Christmas to all in the Club. I decided instead of sending xmas cards this year, I will donate the money to the food bank.
Update
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DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: Update
Congratulations Vancouver Eve, that's wonderful news! I'm in Canada too. I'm in New Brunswick. Merry Christmas and Happy Holidays to you and your family!
Last edited by DarknessEmbraced on Fri Dec 12, 2014 5:58 pm, edited 1 time in total.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
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betsydoglover
- Posts: 978
- Joined: Mon Aug 14, 2006 2:31 pm
- Facebook Username: Betsy Lindh Williams
- Location: Maryland - outside DC
Re: Update
God to hear from you, Eve. Happy holidays - sounds like you are doing well!
Betsy
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
NED
6 cycles Xeloda + Avastin
Avastin only 10/09-5/11
Still NED 06/18
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
NED
6 cycles Xeloda + Avastin
Avastin only 10/09-5/11
Still NED 06/18
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FatBob2012
- Posts: 198
- Joined: Tue Jul 03, 2012 3:41 pm
- Facebook Username: arthur.h.baker1
- Location: Texas, USA
Re: Update
Eve: Congratulations on the continued NED. I could not be happier for you. Please keep us updated and continue to add your experience to the board. Always nice to hera good news. Art
Stage IV 5/2012
FOLFOX + Avastin
Liver res 7/2012
Chemo 9/2012
NED 10/2012
CEA @ 5 mets lung&liver 12/13
Liver spot 3.7 x 2.5 cm found January 2014
Cystectomy 2/14
3/14 FOLFIRI 8 treatments
10/14 CEA 3 with stable METS
12/14 CEA 51
(
FOLFOX + Avastin
Liver res 7/2012
Chemo 9/2012
NED 10/2012
CEA @ 5 mets lung&liver 12/13
Liver spot 3.7 x 2.5 cm found January 2014
Cystectomy 2/14
3/14 FOLFIRI 8 treatments
10/14 CEA 3 with stable METS
12/14 CEA 51
(
Re: Update
vancouver eve wrote: The Onc. (your Onc. CRguy) is going to do another CEA test in two months then we will make a plan for the next step. The Onc. thinks I am doing very good since it will be 8 years in May.
I decided instead of sending xmas cards this year, I will donate the money to the food bank.
Glad he is taking care of you Eve ... 'cos I am coming back to see him in June .. and he KNOWS what I am like if he doesn't take care of me and my friends !!!
GREAT news on the scan and CEA, and the continued results from stereotactic ... the gift that keeps on giving
Merry Christmas and all the best to you Eve.
Your " food instead of cards " idea is a wonderful option which I think I will also follow this year.
I also send a few coins the BCCA Foundation 's way every year. You and I are living proof of their success and commitment to improving the prevention, diagnosis and treatment of cancer ... especially BC and CRC.
Cheers and Harmony my friend
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
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vancouver eve
- Posts: 1507
- Joined: Fri Jan 18, 2008 3:04 pm
- Location: Vancouver
Re: Update
CRguy, your Onc. is going away on Sab. for six months, starting in May. You might get my Onc. or some other one.
I like the Cancer Foundation as well and contribute. It is the place to make things happen. They are raising funds for the first " Vero" machine in Canada. It is a radiation machine that can treat people in places that were not able to be treated before. It will be able to radiate in places that no other radiation machine has the ability to do at this time in Canada. It should be here in the next year and a half.
I like the Cancer Foundation as well and contribute. It is the place to make things happen. They are raising funds for the first " Vero" machine in Canada. It is a radiation machine that can treat people in places that were not able to be treated before. It will be able to radiate in places that no other radiation machine has the ability to do at this time in Canada. It should be here in the next year and a half.
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canadiandaughter
- Posts: 676
- Joined: Sun Aug 17, 2014 11:19 am
Re: Update
Awesome news, the best Christmas present yet!!! Love your idea instead of cards!
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017
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singingholly
- Posts: 1133
- Joined: Thu Feb 27, 2014 3:37 am
- Location: Northern Italy
Re: Update
Wow, that's just awesome... great!
Olivia
Olivia
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno
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lorrainem
- Posts: 819
- Joined: Tue Dec 18, 2007 2:34 pm
- Facebook Username: https://www.facebook.com/lorraineaminogue
- Location: NY
Re: Update
Eve, after a pretty crappy day yesterday (literally and figuratively) I open this post and my heart is bursting with joy. So happy there is positive progress, best news I've heard in seven years! Thank you, this is a great Christmas gift for all of us.
As for the donations, I'm there with you sistah. Spread it out...now if I could only get my "whole" family on board with that message.
Cheers!
Lorraine
As for the donations, I'm there with you sistah. Spread it out...now if I could only get my "whole" family on board with that message.
Cheers!
Lorraine
Chemorad/Surgery/Chemo
Stage II, no mets, no nodes NED 05/08 again 08/08 again 11/08
Ileostomy reversal 10/16/08
Stage II, no mets, no nodes NED 05/08 again 08/08 again 11/08
Ileostomy reversal 10/16/08
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shmurciakova
- Posts: 782
- Joined: Wed Nov 08, 2006 6:25 pm
- Location: Sugar Grove, VA
Re: Update
Congratulations Eve. I do not come on the boards much anymore, but I am really glad that I saw your post. I hope that you continue to have good health and happiness in the New Year!
Love,
Susan H.
Love,
Susan H.
diagnosed at 31 in 2002, Stage IV
Sigmoid colectomy - 6 mos 5-FU/Leukovorin
liver resection - 6 rounds XELIRI (xeloda/irinotecan)
lung wedge resection Oct. 2004 - no chemo
NED!!
Sigmoid colectomy - 6 mos 5-FU/Leukovorin
liver resection - 6 rounds XELIRI (xeloda/irinotecan)
lung wedge resection Oct. 2004 - no chemo
NED!!
Re: Update
vancouver eve wrote:CRguy, your Onc. is going away on Sab. for six months, starting in May.
WELL he did not clear that with ME !
.....or maybe he's trying to avoid me when I am there in July.We've been there so long probably all of his residents are now board certified themselves, anyway !
The new machine sounds great, I am going to check out the details.
Cheers
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
-
vancouver eve
- Posts: 1507
- Joined: Fri Jan 18, 2008 3:04 pm
- Location: Vancouver
Re: Update
Thanks for all the kind wishes. We all strive to reach NED. It has been along road, but I am still here.
Susan, I am glad that you are still healthy. It was wonderful to here from you. I often wonder what happened to long term NED members. Maybe Miss J.V. will pipe in.
Susan, I am glad that you are still healthy. It was wonderful to here from you. I often wonder what happened to long term NED members. Maybe Miss J.V. will pipe in.
Re: Update
Congratulations on the continued good news eve!
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED
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vancouver eve
- Posts: 1507
- Joined: Fri Jan 18, 2008 3:04 pm
- Location: Vancouver
Re: Update
Rob, thanks for your well wishes. You are doing wonderful yourself. I loved hearing about your trip. At least your bucket list is getting shorter.
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BrownBagger
- Posts: 7954
- Joined: Fri Jul 24, 2009 2:56 pm
- Location: Central NYS
Re: Update
Great news, Eve! Shrinkage is such a good thing. And 8 years--wow.
I love your food bank idea.
Happy Holidays!
I love your food bank idea.
Happy Holidays!
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.
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