Update on me, not been a fun time
Re: Update on me, not been a fun time
Ray, I'm so sorry you're having such a hard time now. Thank you for reaching out and know that we are here for you in any way that you need. Peace and strength to you. Hope you can gain some weight. Eat all those high calorie foods you want - if you can - treat yourself well and stare at the sky. Kristi
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!
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Kathleen808
- Posts: 1761
- Joined: Sun Feb 08, 2009 12:49 am
- Location: Hawaii
Re: Update on me, not been a fun time
Ray,
Sending love, aloha and light. I'm am very sorry that it is all so hard right now. Spend your time on what brings joy and beauty into your life. Hugs from across the ocean.
Aloha,
Kathleen
Sending love, aloha and light. I'm am very sorry that it is all so hard right now. Spend your time on what brings joy and beauty into your life. Hugs from across the ocean.
Aloha,
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace
Re: Update on me, not been a fun time
Good luck Ray....
Diagnosed Stage IV Colon Cancer Aug 2013
Metastatic adenocarcinoma of ascending colon.
Distant Lymph Nodes
49. Male.
Chemo - August 2013 for 10 cycles.
Kras Mutation.
July 2014 - Started Zaltrap/Folfiri - 8 cycles completed.
http://www.nickjparry.co.uk
Metastatic adenocarcinoma of ascending colon.
Distant Lymph Nodes
49. Male.
Chemo - August 2013 for 10 cycles.
Kras Mutation.
July 2014 - Started Zaltrap/Folfiri - 8 cycles completed.
http://www.nickjparry.co.uk
Re: Update on me, not been a fun time
Ray,
I came across another one of your old posts today and just wanted to say I hope you're doing OK.
I came across another one of your old posts today and just wanted to say I hope you're doing OK.
Last edited by lpas on Wed Mar 11, 2015 8:40 pm, edited 1 time in total.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
Re: Update on me, not been a fun time
Ray,
Just a note to say: Thinking of you while you go through all this mess.....I had sepsis and PICC lines and I was very, very down......felt awful.....BUTT, I slowly recovered...with the help of some Xanax
and Zoloft. Went from weepy mess to being able to handle things and food started sounding good again. Hoping for you!
Just a note to say: Thinking of you while you go through all this mess.....I had sepsis and PICC lines and I was very, very down......felt awful.....BUTT, I slowly recovered...with the help of some Xanax
and Zoloft. Went from weepy mess to being able to handle things and food started sounding good again. Hoping for you!F, 62,CRC, Adenoca, mod diff
cT3N0M0 Stage IIA May 2011
chemorad
APR on 9/27/11 Margins & Nodes Neg
comp.after surg/2 pelvic abscesses/Sepsis/Hosp 40 days
10th FOLFOX 6/6/2012 feet went numb
5FU to finish
NED 8/11/2021
cT3N0M0 Stage IIA May 2011
chemorad
APR on 9/27/11 Margins & Nodes Neg
comp.after surg/2 pelvic abscesses/Sepsis/Hosp 40 days
10th FOLFOX 6/6/2012 feet went numb
5FU to finish
NED 8/11/2021
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michelle c
- Posts: 1929
- Joined: Wed Dec 02, 2009 3:58 am
Re: Update on me, not been a fun time
Hi Ray,
If you're checking in, just know that you're thought about and wished the best. Hope you're doing ok.You are missed here.
If you're checking in, just know that you're thought about and wished the best. Hope you're doing ok.You are missed here.
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair
Re: Update on me, not been a fun time
Ray,
You have been on my mind for several weeks. Just wanted to let you know that you are missed around here!
kpjpmom
You have been on my mind for several weeks. Just wanted to let you know that you are missed around here!
kpjpmom
DX March 2011 stg 3 cc
Kidney cancer May 2011
Folfox 6months (12 rnds)
It's Back! October 2012 colon resection, kidney removed.FOLFIRI/Erbitux starts Jan.2013
Completed FOLFIRI June 2013, Erbitux continues
March 2015 Met to spine. Radiation 15 treatments
Folfri, 5fu dropped after 3x, Erbitux and Iri continued CEA rising. Moved to
Folfox, Xeloda,Avastin until Feb. 2016 oxilap. Neuropathy returns.
Xeloda,Avastin continues.
Kidney cancer May 2011
Folfox 6months (12 rnds)
It's Back! October 2012 colon resection, kidney removed.FOLFIRI/Erbitux starts Jan.2013
Completed FOLFIRI June 2013, Erbitux continues
March 2015 Met to spine. Radiation 15 treatments
Folfri, 5fu dropped after 3x, Erbitux and Iri continued CEA rising. Moved to
Folfox, Xeloda,Avastin until Feb. 2016 oxilap. Neuropathy returns.
Xeloda,Avastin continues.
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Kathleen808
- Posts: 1761
- Joined: Sun Feb 08, 2009 12:49 am
- Location: Hawaii
Re: Update on me, not been a fun time
Thinking of you Ray. Holding you in the light.
Aloha
Kathleen
Aloha
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace
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ConnieSPK
- Posts: 144
- Joined: Tue May 07, 2013 6:28 pm
- Facebook Username: Connie Perkins Kreienheder
- Location: Dardenne Prairie, MO
Re: Update on me, not been a fun time
Good to hear from you, Ray. Sorry you've been having such a rough time. Give yourself some time to rest. Getting your strength back may help your mood. Sending hugs.
Connie K.
Connie K.
Dx08@54,StgIV Colon,Liver,Lung, ColonSurg,FOLFOX+Beva
09 LiverSurg
10 FOLFIRI+Beva
11 FOLFOX+Beva,ox reaction
12 Bi-lat LungVATS
13 New mets L lung FOLFIRI+Zaltrap,5FU reaction
14 Return mets L lung SBRT,successful
15 Lung Spots, Irinotecan
09 LiverSurg
10 FOLFIRI+Beva
11 FOLFOX+Beva,ox reaction
12 Bi-lat LungVATS
13 New mets L lung FOLFIRI+Zaltrap,5FU reaction
14 Return mets L lung SBRT,successful
15 Lung Spots, Irinotecan
Re: Update on me, not been a fun time
Hi Ray,
I haven't been to the board much in a while, but when I came upon your post I really wanted and needed to drop in and say hi. I do hope Tha the infection gets under control and that your physical and emotional health and fortitude are both restored very quickly. I am sending you lots of love.
Stacey
I haven't been to the board much in a while, but when I came upon your post I really wanted and needed to drop in and say hi. I do hope Tha the infection gets under control and that your physical and emotional health and fortitude are both restored very quickly. I am sending you lots of love.
Stacey
DH DX 10/11 st IV unkown prmry
FFOX 12/11
HIPEC 3/12
FFOX 5/12
7/12 FFIRI
12/12 xeloda
1/13 resection
2/13 FFIRI
4/13 5FU/Avastin
9/13 recurrence, failed surgery
Abdominal fistula
11/13 gemzar, heart attack
12/13 Carbo
2/14 Radiation
3/28/2014 passed
FFOX 12/11
HIPEC 3/12
FFOX 5/12
7/12 FFIRI
12/12 xeloda
1/13 resection
2/13 FFIRI
4/13 5FU/Avastin
9/13 recurrence, failed surgery
Abdominal fistula
11/13 gemzar, heart attack
12/13 Carbo
2/14 Radiation
3/28/2014 passed
Re: Update on me, not been a fun time
Ray,
You were here when I joined and I appreciated the support through the tough times. Sending prayers and support for you. Hope you are able to gain weight and strength .
NBrandt
You were here when I joined and I appreciated the support through the tough times. Sending prayers and support for you. Hope you are able to gain weight and strength .
NBrandt
DXCCT3N2aMx 5/20LN
Folfox10/10-4/11
Scan 10-13-10,4-4-11,7-4-11,9-22-11,4-9-12,9-24-12,10-1-13,4-9-14,9-17-14,9-10-15,9-15-17NED,
CEA 1. Pre .6 7-4-11 .7 9-22-11 .6
1-13-12 .9 4-9-12 .7 9-24-12 .6 1-4-13 .8 10-1-13 .8 4-9-14 .7 9-17-15.8
Courage, Hope, Health
Folfox10/10-4/11
Scan 10-13-10,4-4-11,7-4-11,9-22-11,4-9-12,9-24-12,10-1-13,4-9-14,9-17-14,9-10-15,9-15-17NED,
CEA 1. Pre .6 7-4-11 .7 9-22-11 .6
1-13-12 .9 4-9-12 .7 9-24-12 .6 1-4-13 .8 10-1-13 .8 4-9-14 .7 9-17-15.8
Courage, Hope, Health
Re: Update on me, not been a fun time
Ray - it's so good to hear from you. I'm so sad to hear that things are shitty. I smile when I see your profile pic because it's like you're always toasting us. We're here to cheer you on.
Thinking of you,
Kirac
Thinking of you,
Kirac
Husband (Age 36) 1/13 Dx Stage 3B rectal cancer
3/13 Chemoradiation
6/13 Tumor removed, Temp ileo, 1/15 nodes
7/13 Chemo = Oxaliplatin, Xeloda
1/14 Reversal
7/14 NED, CEA 1.8
12/14 CLEAR CT scan! NED
http://kickingasscancer.com/
3/13 Chemoradiation
6/13 Tumor removed, Temp ileo, 1/15 nodes
7/13 Chemo = Oxaliplatin, Xeloda
1/14 Reversal
7/14 NED, CEA 1.8
12/14 CLEAR CT scan! NED
http://kickingasscancer.com/
Re: Update on me, not been a fun time
Ray, I think of you often and am hoping you are resting with some semblance of peace and ease. We would love to hear from you. You can see you are mentioned often in the mCRC thread. Will raise a toast of good red wine to you when I get home tonight...
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pollo65
- Posts: 1564
- Joined: Thu May 20, 2010 3:11 pm
- Facebook Username: pollo2
- Location: central valley, calif
Re: Update on me, not been a fun time
Ray, it's truly great to see your face again. I am so sorry that you are dealing with all this this crap. I do know that you are talking to the right people about being down, I doubt that there is anyone here who hasn't look up from the bottom of the pit. Hoping that things turn around starting yesterday.
Pollo 65
Pollo 65
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
Iri+avastin
chemo break
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
Iri+avastin
chemo break
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BrownBagger
- Posts: 7954
- Joined: Fri Jul 24, 2009 2:56 pm
- Location: Central NYS
Re: Update on me, not been a fun time
I've been thinking and wondering about you recently, Ray. Thanks for staying in touch.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.
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