Yep, sometimes a person may lurk but just doesn't feel like "talking" on here & figure out how to put it all into words. I can just say "thanks for checking in", or "hope you can get to the bottom of this"... which I do, and you are. As a former caregiver (see my sig) lacking knowledge in the medical field, I am limited to offering mostly support on this forum as that was a long time ago, things change & I've forgotten some of fine details over time. Though my DH's situation was completely different than yours, today I'm going to go beyond that a bit.
I was just an "all elbows & assholes" wife who handled more bile drainage/bag changes /tube flushes/bile soaked laundry that you can shake a stick at. Then there were those life-saving trips (yes, plural) to the ER/ICU due to sepsis. Seemed at times if DH wasn't in the hospital DM was. They upsized the biliary tubing + added a stent to help facilitate bile drainage. This is good. Pooling bile can cause infection, thus the antibiotics. OK, so moving on, I'm just going to pose a few questions for your consideration in asking the docs (not to answer here necessarily), but for future reference. Let me preface by saying that you probably have a great surgeon + oncologist by now who knows their stuff:
1. Would you benefit from Ursodiol to aid in keeping the bile thin & flowing through the stent & tubing? (hell, my dog is on it)
2. Would it be beneficial to bring in an ID (doc of infectious disease) to help manage infections, if not now @ what point?
3. Are you seeing a top GI hepatic doc in your area?
4. At what temperature do the docs recommend you to head to the ER (101?)?
Your body is so busy right now fighting infection that it needs rest, not work. Consider your options. Keep us posted, chin up. You're on the right track w/your docs in managing this.
Last edited by bitchslapped
on Wed Dec 10, 2014 3:38 pm, edited 1 time in total.
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia