Ode to Bev

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Ode to Bev

Postby SaveMyArchie » Tue Dec 09, 2014 10:34 am

I tried calling you a few minutes ago but your voicemail is full so I'll have to be more public about what I wanted to say :D

It would be an oversimplification of many aspects of the story to say congratulations on being 'cured.' So, instead, I wanted to say that I'm happy to know you're five years NED. You have a lot of battle wounds and scars from a battle you never asked for and I can't overstate how important of a part of my life you've become since I got thrown into riding shotgun on a train heading in a similar direction the same week as you five years ago. I think about you very frequently and am so glad to see you're still active on the board here.

There are so many new names on here that I don't recognize and a few key veterans who I do. Rather than try and re-cap my story to help everyone understand the context behind my connection with Bev, I think I want to use this thread to celebrate her generosity and kindness that seems to know no boundaries in time or space. So, who else loves Bev G? 8)
51 @ dx (I'm her son - call me Steve)

8/12: referred for hospice
7/12: significant progression
4/12: Vectibix
11/10: recurrence; XELIRI+Avastin 'forever'
7/10: NED; lingering CIPN
1/10: FOLFOX
12/09 - removed 19cm sigmoid colon/prox rectum; 5/13 nodes

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Re: Ode to Bev

Postby singingholly » Tue Dec 09, 2014 11:08 am

We all! Congratulations Bev.
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno

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Re: Ode to Bev

Postby jgall » Tue Dec 09, 2014 11:24 am

I do. I do. :mrgreen:
DH Chris, 50, Dx Nov '10 Stg 4
cardiac arrest from 5-FU
Iri/Erbi, RFA, liver/colon resection, more Iri/Erbi
Oct14-Feb15 clinical trial
SIRT Apr15-unsuccessful
Stopped treatment May15
Hospice July15
Passed 8/15/15

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Bev G
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Facebook Username: Bev Golde
Location: Quechee, VT

Re: Ode to Bev

Postby Bev G » Tue Dec 09, 2014 12:03 pm

Thank you, Steve, Jr. I love you very much, my surrogate son!


58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Re: Ode to Bev

Postby Regan » Tue Dec 09, 2014 12:24 pm

OMG!!!! She's been there SO MANY TIMES FOR ME and she probably doesn't know about the majority of them!!!!!!!!?!!
DH dx 7/12
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest

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Re: Ode to Bev

Postby ziggymonster » Tue Dec 09, 2014 12:47 pm

Count me in as well!!
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

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Re: Ode to Bev

Postby Sharona » Tue Dec 09, 2014 1:13 pm

Bev has been such a source of knowledge and inspiration!
Love her dearly!
Dx CRC mets to lung, brain
Craniotomy 11/12
CyberKnife 12/12
FOLFIRI, FOLFIRI, avastin, Zaltrap
Multiple brain mets.
WBR and pallative pelvic radiation
Hospice 1/21/15

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Rob in PA
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Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Ode to Bev

Postby Rob in PA » Tue Dec 09, 2014 1:52 pm

big fan of bee gee!
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

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Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: Ode to Bev

Postby teachpdx » Tue Dec 09, 2014 3:43 pm

Love, love, love :)
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

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Re: Ode to Bev

Postby justin case » Tue Dec 09, 2014 6:10 pm

Every time I read a post from Bev, it reminds me of The Mama and Papa's, all grown up 8) Although more educated in her responses!
Warm regards,
7/11 diagnosed Stage 2 colon and rectal cancer
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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Joined: Mon Apr 21, 2014 8:39 pm

Re: Ode to Bev

Postby cmrl » Tue Dec 09, 2014 6:26 pm

I've admired her since I joined this group, and wish I had half the knowledge that Bev has, and the ability to convey it as she does.
Resection of splenic flexure 7/24/13
T3N2BM0, Stage 3c,12/29 nodes
Folfox x12 9/13-3/14
CT scan 4/14, enlarged spleen, otherwise clear
CT 4/15, spleen WNL.
6/17 3 cm benign polyp at ileocecal valve, awaiting removal

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Re: Ode to Bev

Postby canadiandaughter » Tue Dec 09, 2014 7:03 pm

Congrats on the 5 years NED Bev!!! That is awesome and inspiring to those fighting, caring for or even just loving anyone with colon cancer. We need to celebrate the good news on this board as it seems we have so much sadness. Bev you have been an amazing member since I have been frequenting the board. You give thoughtful and sound advice. Your concern for those who are hurting is felt in your posts. Thank you for everything you do!!
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

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Facebook Username: Phuong Ly Gallagher

Re: Ode to Bev

Postby Phuong » Tue Dec 09, 2014 9:14 pm

Rob in PA wrote:big fan of bee gee!

Yes! I love this! Bee Gee you are awesome!!!!!
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

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Location: Atlanta, Ga.

Re: Ode to Bev

Postby mackswife » Tue Dec 09, 2014 10:15 pm

I am another fan of yours Bev. I've appreciated your wisdom, honesty and the generous way you've shared yourself with those of us on the forum more than you will ever know.
Husband IIIC;
7/12 - resection; 12 rounds folfox
CT/PET scans 4/13, 9/13 - NED
CT scan 3/14 - liver/LN mets
5/2/14- failed liver resection - peri. mets.
6 rounds of iri/avastin
8/26/14 - failed liver resect/HIPEC. dse. progression
9/14 - 3/15 - progression on chemo
3/23/15 - treatment stopped; working the bucket list

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Re: Ode to Bev

Postby mstults » Tue Dec 09, 2014 10:20 pm

Congratulations Bev.
Male Age 53. Dx CC with numerous liver mets 6/23/12. Colon res 6/24/12. Started folfox 7/24/12. Added avastin 8/27/12. CT 12/27/12 still showing shrink. Took 17 rounds of FOLFOX. Then 5-FU + Avastin. Switched to Irinotecan for 1 yr. CEA rose to >400. Switched to Vectibix 2/18/15. CEA decreasing. Scans show some growth in liver mets. Lung Mets stable to shrinking.


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