Kicking and Screaming
Re: Kicking and Screaming
Thank you so much for posting this! You shine HOPE on countless readers who may be feeling hopeless! CONGRATS - long live life! -DK
6/4/2012 Dx Stage 3C CRC @ 40 yo. MSS, KRAS-WT, BRAF-WT, p53-mut
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://trialfinder.fightcrc.org/
2016 Colondar 2.0 Model
DK37 Science Posts List
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://trialfinder.fightcrc.org/
2016 Colondar 2.0 Model
DK37 Science Posts List
Re: Kicking and Screaming
Congratulations, Fletch, and thank you for all you have done for this board. When I joined, you were very active and your info smoothed my path a bit.
Re: Kicking and Screaming
Fletch, you, Juliej & Brownbagger gave me courage and belief when I had none. As BB said we all take different roads, but you guys showed me there was a road when I could not see one.
For that I thank you.
For that I thank you.
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - August 2020
Port Out 26 March 2015
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - August 2020
Port Out 26 March 2015
Re: Kicking and Screaming
Tears welling as I read...tears of happiness for you! I don't think I will truly exhale until I get to that 5 year mark.
[color=#4000FF]T3N? dx 10/8/12 (IIIa I think)
45yo mom of 5/wife
5.5 wks chemo/rad
Post resec DX: T2N0Mx
Xeloda 3/13
8/13-2 nodes watch and wait
2/14-failed biopsy
4/14-removal of lung nodes, pos for met colon can
5/14-begin folfox
45yo mom of 5/wife
5.5 wks chemo/rad
Post resec DX: T2N0Mx
Xeloda 3/13
8/13-2 nodes watch and wait
2/14-failed biopsy
4/14-removal of lung nodes, pos for met colon can
5/14-begin folfox
Re: Kicking and Screaming
Congratulation Fletch.
That is a major milestone and I am so happy for you.
You have reasons to have a wonderful Thanksgiving next week.
Lee
That is a major milestone and I am so happy for you.
You have reasons to have a wonderful Thanksgiving next week.
Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
Re: Kicking and Screaming
I am so happy for you and your family Fletch! Keep on being NED and living your life!
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012
Re: Kicking and Screaming
Skifletch,
Thank you for sharing and congrats for your journey! Any hope is welcomed and for me you have done tremendously and you haven't even known it. Upon lurking, the quote in your signature captivated me and I began writing it on sticky notes to keep in my bathroom mirror, car, phone, and especially my desk at work. It has gotten me through soooo many tough days. So I thank you for that over and over. I am so happy for you and yours! I wish you many more NED to come!
Thank you for sharing and congrats for your journey! Any hope is welcomed and for me you have done tremendously and you haven't even known it. Upon lurking, the quote in your signature captivated me and I began writing it on sticky notes to keep in my bathroom mirror, car, phone, and especially my desk at work. It has gotten me through soooo many tough days. So I thank you for that over and over. I am so happy for you and yours! I wish you many more NED to come!
Caregiver to 54 y/o mom
Dx April 4 2014
Stage IV CC w mets to liver
Illeostomy (temp) 05/05/2014
6 rounds FOLFOX 05/14-08/14
Primary tumor/colon resection/I'll take down 10/27/14
Dx April 4 2014
Stage IV CC w mets to liver
Illeostomy (temp) 05/05/2014
6 rounds FOLFOX 05/14-08/14
Primary tumor/colon resection/I'll take down 10/27/14
Re: Kicking and Screaming
You have such an incredible way with words! Congrats on your 5 year mark. October 29th was my husband's 5 year anniversary -so another Stage IV survivor progression free after the initial 10 months of treatments. One more CT scan and check up to get through and then the Oncologist will kick him back to primary care. You have been an inspiration to us throughout this journey! Keep living life to the fullest! Congrats!
Christy
Wife of Jayson, diagnosed Oct 2009 CRC - age 39
Radiation & Chemotherapy Nov-Dec 2009
Colon & Liver resection Feb 2010 - Stage IV
Folfox + Avastin X 12 treatments - finished Aug 2010
NED 10/10, 1/11, 7/11, & 12/11
Wife of Jayson, diagnosed Oct 2009 CRC - age 39
Radiation & Chemotherapy Nov-Dec 2009
Colon & Liver resection Feb 2010 - Stage IV
Folfox + Avastin X 12 treatments - finished Aug 2010
NED 10/10, 1/11, 7/11, & 12/11
-
SkiFletch
- Posts: 6361
- Joined: Mon Dec 07, 2009 3:39 pm
- Facebook Username: Michael Fletcher
- Location: Buffalo, NY
Re: Kicking and Screaming
Thanks for all your kind words guys. Turns out there were many days in a row of celebration. I'm so glad I was able to help some of you out on your own journey.
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married
Still NED and living life to the fullest
"Can any one of you by worrying add a single hour to your life."
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married
Still NED and living life to the fullest
"Can any one of you by worrying add a single hour to your life."
Re: Kicking and Screaming
What a beautifully written post. I was another who greatly benefited from both your knowledge and the kind sensitivity of your replies.I am raising a (very large) glass to you !
Stage IV
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
Re: Kicking and Screaming
Hoping that many more have this same story!
DH diagnosed with Stage 4 CRC Nov 2013
11 tx Folfox/Avastin; LAR/liver resection/introp RF of liver - May 2014
3 treatments FOLFIRI
Lung resection - Sept 2014
FOLFIRI + Avastin x 10 treatments
Avastin+5FU q3 weeks x 4
SBRT x 1 lung met
RFA for remaining 3 in Oct and Nov
SBRT for liver met Jan 16
lung mets growing
Enrolled in NIH TIL trial Oct 16
XRT for lung met 12/16
Cells didnt grow for TIL trial Feb 17
Waiting for NCT03085914 at Penn
11 tx Folfox/Avastin; LAR/liver resection/introp RF of liver - May 2014
3 treatments FOLFIRI
Lung resection - Sept 2014
FOLFIRI + Avastin x 10 treatments
Avastin+5FU q3 weeks x 4
SBRT x 1 lung met
RFA for remaining 3 in Oct and Nov
SBRT for liver met Jan 16
lung mets growing
Enrolled in NIH TIL trial Oct 16
XRT for lung met 12/16
Cells didnt grow for TIL trial Feb 17
Waiting for NCT03085914 at Penn
Re: Kicking and Screaming
It put a big smile on my face reading this.
When I was going through the toughest times you were definitely one of the people that helped me the most.
I am so happy for you my friend.
When I was going through the toughest times you were definitely one of the people that helped me the most.
I am so happy for you my friend.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?
Re: Kicking and Screaming
Congratulations, Fletch! I am soooo happy to see these words. My husband was going through chemo about the same time you were and he goes in for his 5 year scan the middle of this month. We're praying that we hear the same a
"All clear for 5 years" that you did.
"All clear for 5 years" that you did.
Caregiver to husband diagnosed 11/09 stage IIIb colon cancer
Surgery 11/5/09
12 rounds FOLFOX beginning 12/18/09
Folfox finished 6/3/10
Last scan Jan 2015
NED since Dec. 2009
Surgery 11/5/09
12 rounds FOLFOX beginning 12/18/09
Folfox finished 6/3/10
Last scan Jan 2015
NED since Dec. 2009
-
singingholly
- Posts: 1133
- Joined: Thu Feb 27, 2014 3:37 am
- Location: Northern Italy
Re: Kicking and Screaming
Cheers!
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno
Re: Kicking and Screaming
If it were up to me, this thread would be pinned. I love reading it so much that I have it screenshot.
I should keep adding comments to keep it on page 1!
Thanks for the inspiration on my second 10th chemo infusion day
Elise
I should keep adding comments to keep it on page 1!
Thanks for the inspiration on my second 10th chemo infusion day
Elise
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED
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