When to tell my son about my diagnosis

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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: When to tell my son about my diagnosis

Postby DarknessEmbraced » Sat Nov 08, 2014 7:04 pm

You mean tell him after I see the doctor on November 17th?
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Krim4fun
Posts: 72
Joined: Mon Mar 03, 2014 9:57 pm

Re: When to tell my son about my diagnosis

Postby Krim4fun » Sat Nov 08, 2014 7:11 pm

Hi-

I'll add my experience with telling my boys (12 & 14) last year about my cancer. They already knew that I had been having problems and had been in for tests. When I said that I found out what was wrong with me my older son guessed that it was cancer. After assuring them that it was caught early enough and it was treatable they seemed to be ok with it. But what I found to be really helpful to them was that I was able to point out about 5 neighbors and close friends that are cancer survivors. Once my 12 year old heard that and digested it all he asked if he could go outside and play. And that was pretty much it!

The best of luck to you and fingers crossed that you are truly stage I

Kim
Kim, 48
9/25/13 Dx @ 47 Stage IIIB T3N1M0
10/14/13 to 11/22/13 Chemoradiation (5FU)
1/22/14 LAR surgery, J pouch, temp iliostomy
3/18/14 to 6/23/14 Oxaliplatin & xeloda
6/30/14 CT Scan
7/2/14 NED!
9/10/14. Reversal & hernia repair

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: When to tell my son about my diagnosis

Postby justin case » Sat Nov 08, 2014 7:18 pm

DarknessEmbraced wrote:You mean tell him after I see the doctor on November 17th?

If you are scared, and don't have all the answers, why would you want to take away from your child's school lessons, while you try to intake your own mortality? Whether you have cancer, or do not have cancer, should not reflect on your children's ability to gain an education, and live a relatively normal life.
You are in control of what people need to know, how you distribute that information, is purely your decision.
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

Cathie
Posts: 78
Joined: Fri Mar 28, 2014 12:09 pm

Re: When to tell my son about my diagnosis

Postby Cathie » Sat Nov 08, 2014 8:25 pm

Only you are the best judge of when and where to tell your children. Children will react differently. I agree that they don't always need to know all the details. But, again, your the best judge of how much information you give them.

Blessings

Cathie
Dx'd colo rectal cancer Oct 2002
radiation chemo November December 2002
Surgery Mar 2003 which was a temp ileo
Summer of 2003 more chemo
Ileo reversed Mar 2004
Cancer free since then

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dianetavegia
Posts: 2731
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: When to tell my son about my diagnosis

Postby dianetavegia » Sun Nov 09, 2014 6:05 pm

Tell him you're having surgery but do NOT mention cancer until you find out exactly what is going on.
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

Don.in.Dallas
Posts: 179
Joined: Sun Aug 31, 2014 10:43 pm
Location: Dallas, Texas USA

Re: When to tell my son about my diagnosis

Postby Don.in.Dallas » Mon Nov 10, 2014 6:16 pm

From the other side of the tracks...

A visiting seven-year-old grandson pointed at a carrying case and asked "what is that?" I described that my chemotherapy regimen requires that I receive medication for 44 hours and the carrying case is what I use to attach the portable chemo pump to my belt-loop. Naturally my grandson asked about chemotherapy so I began to describe how it is used to treat my cancer. His mother, my daughter, interrupted and said "we don't talk about that stuff" and rushed the kid off to play. Nothing more was made of it.

I didn't know the position my daughter had taken so I inadvertently spoiled her secret.

My grandson eventually circled around to talk about the belt clip, cancer and chemotherapy. In the meantime I had pondered the awkward circumstance and decided that, since I didn't agree to withhold any truths from my grandchildren, I do not feel bound by the decision my daughter made. She is free to make her decisions and I am free to make mine. I am not comfortable being deceptive with my family.

So, my daughter is keeping a secret from my grandson. And my grandson and I are keeping a secret from her.

Bad me. :twisted:
Male 56 at DX 05/14
05/14 Resection, 3.2cm sigmoid CRC Stage IIIb, 2/17 nodes, T3N1M0
06/14 PET scan clear, portacath install
06/14 Begin FOLFOX6 12x, End 01/15
09/20 Still NED!
----
Previous: Laryngeal cancer
33 x rad
NED since 12/09

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NZJay
Posts: 640
Joined: Mon Dec 16, 2013 3:00 pm
Location: NZ

Re: When to tell my son about my diagnosis

Postby NZJay » Mon Nov 10, 2014 6:27 pm

@Don In Dallas. Awesome story! I remember having secret conversations with grandparents when I was a kid, often poking fun at my parents. They're pretty warm memories and, despite the dark topic, I am sure your grandkid will look back fondly upon those moments where you had your secret chats. Good stuff!
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

canadiandaughter
Posts: 676
Joined: Sun Aug 17, 2014 11:19 am

Re: When to tell my son about my diagnosis

Postby canadiandaughter » Mon Nov 10, 2014 7:37 pm

Sometimes when you keep secrets from kids it scares them more because they think it must really be bad if you are not telling them. Their imaginations run wild!
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: When to tell my son about my diagnosis

Postby DarknessEmbraced » Mon Nov 10, 2014 7:53 pm

I agree secrets aren't good.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

canadiandaughter
Posts: 676
Joined: Sun Aug 17, 2014 11:19 am

Re: When to tell my son about my diagnosis

Postby canadiandaughter » Mon Nov 10, 2014 8:47 pm

But in reality Darkness, you know your son, we don't, so you will be the best judge at what he can and cannot handle. Whatever you do, I know you will have his best interests at heart as you are his mom! Good luck to you, I know this is not easy.
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

lhawk0730
Posts: 171
Joined: Mon Oct 27, 2014 10:49 pm

Re: When to tell my son about my diagnosis

Postby lhawk0730 » Wed Nov 12, 2014 1:24 am

I just had this conversation with my husband. But we are getting ready to tell our kids (7 & 12) about my mom (their grandma). She lives down the street and they see each other often. Because she is starting chemo radiation in the next week or so, we don't want them to be unnecessarily afraid of what the potential side effects are or by keeping them away do from her for months when the norm is to see her every few days. We are going to wait until we see how mom responds tobtreatment. Then we will tell them she is sick and needs to take some medicine which might make her feel pretty bad, followed by a surgery. We decided to take a very optimistic to route with them. Our 12 yr old may ask questions and we will answer those with more details if/when that comes up. Keep us posted on how your son does...and you of course.
Daughter to Mom, age 71
Dx 10/14 RC - T3bN1bM0
Chemoradiation til 1/15
Surgery 2/15
Temp ileostomy
Failed Xelox round 4/15
1 round straight Xeloda 5/15 - discontinued
Ileo reversal 5/15
8/15 more Xeloda

Deb m
Posts: 558
Joined: Tue Jan 14, 2014 10:08 am

Re: When to tell my son about my diagnosis

Postby Deb m » Wed Nov 12, 2014 10:43 am

I agree with everyone. Tell you children the truth!. Our sons were 12 & 13 years old when my husband was diagnosed. We told them the truth about everything.

mymom
Posts: 1299
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: When to tell my son about my diagnosis

Postby mymom » Wed Nov 12, 2014 10:59 am

i would not say anything until after surgery and you have all te facts.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023

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Icesk8tr
Posts: 1068
Joined: Sat Apr 30, 2011 11:37 am

Re: When to tell my son about my diagnosis

Postby Icesk8tr » Wed Nov 12, 2014 11:51 am

BrownBagger wrote:Belle, remember our late friend from a couple years ago (the guy who bought the plane and then the FFA wouldn't let him fly it because he was Stage 3 at the time. I forget his handle)? I remember he said that they didn't tell their kids that he was going in for surgery, and when things got complicated and he had to stay in the hospital for longer than planned, his daughter thought he'd died and that they were not telling her. So yes, Cherie, that's an excellent point. Kids do have vivid imaginations.



Hi BB I think you were referring to Tim- joeyooser.

Christine
Stage IV CC 2010


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