I have to say it genuinely doesn't get any easier going for the scans -I feel sick with dread every time -but I know how very important it is to know that all the pain and suffering can absolutely be worth it ( I still search for good news posts when I'm having an emotional 'episode' ........).I'm glad to see this board continues to be populated by the same caring, thoughtful and knowledgeable people that it always was, and who can still make a reader laugh out loud with their innate wit,despite the circumstances.It truly was my lifeline so I post good news to hopefully give you a pick-me up.You all have my very best wishes, biggest hugs and strengthening vibes as always.stage 4 NED again
stage 4 NED again
Just thought I'd post to show us stage 4 NEDers do exist. Had most recent scan result today and I remain in the clear I have to say it genuinely doesn't get any easier going for the scans -I feel sick with dread every time -but I know how very important it is to know that all the pain and suffering can absolutely be worth it ( I still search for good news posts when I'm having an emotional 'episode' ........).I'm glad to see this board continues to be populated by the same caring, thoughtful and knowledgeable people that it always was, and who can still make a reader laugh out loud with their innate wit,despite the circumstances.It truly was my lifeline so I post good news to hopefully give you a pick-me up.You all have my very best wishes, biggest hugs and strengthening vibes as always.
I have to say it genuinely doesn't get any easier going for the scans -I feel sick with dread every time -but I know how very important it is to know that all the pain and suffering can absolutely be worth it ( I still search for good news posts when I'm having an emotional 'episode' ........).I'm glad to see this board continues to be populated by the same caring, thoughtful and knowledgeable people that it always was, and who can still make a reader laugh out loud with their innate wit,despite the circumstances.It truly was my lifeline so I post good news to hopefully give you a pick-me up.You all have my very best wishes, biggest hugs and strengthening vibes as always.Stage IV
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
Re: stage 4 NED again
Thanks for posting your good news and congratulations. You are right that your good news does help others including me.
DX 10-05 stage IV
liver resection 12-05 Folfox1-05 to 7-06
Liver resection 8-07 Folfiri 9-07 to 3-08
Liver resection 12-11
Recurrence 2/7/2014, liver, chestwall mets, 16 rounds chemo
7/3/14, y90 radioembolization, steady shrinkage
12/8/14, cryoablation to liver and chest wall
6/1 to 6/26 SBRT radio surgery
7/2 more cryo ablation to right lung
7/16 lung infection drain tube installed
9/4 chest wall resection to remove 2 ribs
liver resection 12-05 Folfox1-05 to 7-06
Liver resection 8-07 Folfiri 9-07 to 3-08
Liver resection 12-11
Recurrence 2/7/2014, liver, chestwall mets, 16 rounds chemo
7/3/14, y90 radioembolization, steady shrinkage
12/8/14, cryoablation to liver and chest wall
6/1 to 6/26 SBRT radio surgery
7/2 more cryo ablation to right lung
7/16 lung infection drain tube installed
9/4 chest wall resection to remove 2 ribs
Re: stage 4 NED again
I LOVE GOOD NEWS!!!!
Congrats
Elise
Congrats
Elise
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED
Re: stage 4 NED again
Very nice! Congrats, we all hope for many more scans like that.
Chris, age 50 at Dx 11/29/2010 Stg 4
12 '10-FOLFOX - cardiac arrest from 5-FU
Iri/Erbi
7 '11-RFA
8 '11-liver/colon resection
NED
2 '12 recurrance
6 '12 chemo break
11 '12 back on chemo
www.caringbridge.org/visit/chrisandjulia
12 '10-FOLFOX - cardiac arrest from 5-FU
Iri/Erbi
7 '11-RFA
8 '11-liver/colon resection
NED
2 '12 recurrance
6 '12 chemo break
11 '12 back on chemo
www.caringbridge.org/visit/chrisandjulia
-
singingholly
- Posts: 1133
- Joined: Thu Feb 27, 2014 3:37 am
- Location: Northern Italy
Re: stage 4 NED again
Thank you.
Olivia
Olivia
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno
-
Oneeyeddog
- Posts: 101
- Joined: Sat Apr 06, 2013 11:06 am
Re: stage 4 NED again
So happy for you, mungo. Congrats and enjoy your weekend.
Colon cancer Stage 3c (dx April 2013) at age 36
Resection and temp ileostomy (4/17)
12 rounds of FOLFOX (May-Oct 2013)
NED (August 2014)
http://www.theoneeyeddog.com
Resection and temp ileostomy (4/17)
12 rounds of FOLFOX (May-Oct 2013)
NED (August 2014)
http://www.theoneeyeddog.com
Re: stage 4 NED again
Awesome, hoping to join you on Monday!
Dx age 33
12/19/12 Stage IV liver/lung
1/14-2/28/13 Folfox
3/27/13 rectal/lung rst; temp ileo
7/11/13 liver res/ileo rev
9/30/13 - Folfox
11/13,2/21 NED
3/14 lung recur;6/16-VATS
7/14 5 bi lung mets
10&11/15 laser lung surg
2015 Colondar Model
12/15 5 lung met-folfiri
5/15 NED
11/15 2 lung mets; cryoablation
1/4/17 2 lung mets; cryoablation
NED as of 1/23/17
12/19/12 Stage IV liver/lung
1/14-2/28/13 Folfox
3/27/13 rectal/lung rst; temp ileo
7/11/13 liver res/ileo rev
9/30/13 - Folfox
11/13,2/21 NED
3/14 lung recur;6/16-VATS
7/14 5 bi lung mets
10&11/15 laser lung surg
2015 Colondar Model
12/15 5 lung met-folfiri
5/15 NED
11/15 2 lung mets; cryoablation
1/4/17 2 lung mets; cryoablation
NED as of 1/23/17
Re: stage 4 NED again
LOVE it!
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
6/19- first time no scan
Today- NED
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
6/19- first time no scan
Today- NED
Re: stage 4 NED again
It gives us stage 4 newbies, hope that we can and will get through this.
Thank you and many more NED scans
Jan
Thank you and many more NED scans
Jan
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED
Re: stage 4 NED again
Stevieb I am optimistic you will join me on Monday 
and I will be thinking of you and sending positive vibes. Thank you to you all for your good wishes and I hope for better things for all on this board.
and I will be thinking of you and sending positive vibes. Thank you to you all for your good wishes and I hope for better things for all on this board.Stage IV
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
-
dianetavegia
- Posts: 2731
- Joined: Sat May 16, 2009 8:47 pm
- Facebook Username: Diane Weldy Tavegia
- Location: Villa Rica, Georgia
Re: stage 4 NED again
Yippee Mungo! Sooooooo happy for you!
I got good news on Monday. Remission (I dislike that word and prefer NED) but my onc said 'remission'. Remission gives the impression it's gonna come back. NO evidence of disease sounds much more positive, don't you think?
Then he told me the 2 mm thing in my lung hadn't changed in any way and they were 'unconcerned' and I never knew I had a thing in my lung. Oh..... he said I have something else that's been there for 6 years but they knew what it was from the first CT and it's not anything to ever be concerned about. Funny how I didn't even ask what that was and freaked over something the size of a grain of rice.
He said remission and unconcerned about the 2 mm so I'm taking that and praising the LORD!
It's TIME we had a LOT of good news on the forum. I think I counted 18 people I knew with CRC that died in 3 weeks last month.
I got good news on Monday. Remission (I dislike that word and prefer NED) but my onc said 'remission'. Remission gives the impression it's gonna come back. NO evidence of disease sounds much more positive, don't you think?
Then he told me the 2 mm thing in my lung hadn't changed in any way and they were 'unconcerned' and I never knew I had a thing in my lung. Oh..... he said I have something else that's been there for 6 years but they knew what it was from the first CT and it's not anything to ever be concerned about. Funny how I didn't even ask what that was and freaked over something the size of a grain of rice.
He said remission and unconcerned about the 2 mm so I'm taking that and praising the LORD!
It's TIME we had a LOT of good news on the forum. I think I counted 18 people I knew with CRC that died in 3 weeks last month.
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
-
Bev G
- Posts: 5856
- Joined: Thu Jan 07, 2010 11:19 pm
- Facebook Username: Bev Golde
- Location: Quechee, VT
Re: stage 4 NED again
So nice to "see" you Mungo! it's been a long time and it's just great to hear that your good news continues. Please stop back whenever you can.
xoxox
Bev
xoxox
Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
Re: stage 4 NED again
Ditto what bev said! Congrats!
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED
Re: stage 4 NED again
Congrats to you too Diane -fantastic news ! I completely agree that I consider myself NED, not in remission. Your lung thingy tale sounds similar to what happened to me except mine did start to grow. I mention this not to freak you but to say that my docs said there's loads of things that pop up on scans that turn out to be nothing/harmless. That's why the scans are so important - if the thingy changes in any way, then they re-evaluate but they're not going to do surgery when there is not a clear clinical reason to do so.
I am in England and bearing in mind I was diagnosed end of 2006, it is only at recent appointments that they have started to explain my scan to me in much more detail.This has made such a difference as it is reassuring to be talked through it rather than them making a throwaway comment and then me getting home and like you, thinking 'I didn't even ask what that was' and starting to worry....What I have certainly learnt is to listen to advice on this board aka take one day at a time/worry about facts rather than what your fevered imagination has conjured up/breathe !! My only regret is that it took about 5 years for it to sink in
Bev -it's lovely to hear from you too. I do pop back every so often but I am absolutely committed to posting good news so that newbies and anyone else sees that even with stage 4, the outcome can be good!
I am in England and bearing in mind I was diagnosed end of 2006, it is only at recent appointments that they have started to explain my scan to me in much more detail.This has made such a difference as it is reassuring to be talked through it rather than them making a throwaway comment and then me getting home and like you, thinking 'I didn't even ask what that was' and starting to worry....What I have certainly learnt is to listen to advice on this board aka take one day at a time/worry about facts rather than what your fevered imagination has conjured up/breathe !! My only regret is that it took about 5 years for it to sink in
Bev -it's lovely to hear from you too. I do pop back every so often but I am absolutely committed to posting good news so that newbies and anyone else sees that even with stage 4, the outcome can be good!
Stage IV
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
Re: stage 4 NED again
just popped in to get some inspiration to help a friend who's husband was dx in May... he's been having a hard time lately...anyway haven't been on in a long time, my dad passed in 2010... u guys were always such a help and I try to at least check in every once in a while... SOOOOOOOOOOO happy to see posts from so many "old timers" I got my inspiration.... I will tell her to never give up and never let her husband give up... u all are proof!!!! Keep up the good work guys and congratulations to u Mungo! 
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