Metastatic Stage 4...Clear Scan

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Joined: Sun Jan 19, 2014 1:19 am
Location: Silverton OR

Re: Metastatic Stage 4...Clear Scan

Postby exaussie » Sat Feb 28, 2015 8:43 pm

What an amazing tribute to your mother. The love you have for her flowed through your words. What warriors you both are. Please everyone don't stop these survivor stories even though my story is different doesn't make it more important than yours. We are just a family of people whose common bond is illness but we choose to care and be a part of this amazing community.
DS 26 yrs old diagnosed 6/13 T3N2aM1b
Resection 6/13
6 rounds chemo folfax
12/13 Fissure
hernia surgery 12/13
5 months break
Maintenance chemo 3/14
Crazy growth. Liver failing. Folfox and vectibex 7-29-14
Chemo failure Hospice 8/26
Left us 8/28

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Nik Colon
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Joined: Thu Jan 08, 2015 3:35 pm
Location: MN

Re: Metastatic Stage 4...Clear Scan

Postby Nik Colon » Sat Feb 28, 2015 9:15 pm

Wow! Thank you so much for your story. Your mom sounds amazing. I am so happy to hear she is finally doing good. again thank you.
Stage IVa Sig CC 2 lvr mets 1/12 Ln
(3, =<3 lng spots at dx til 5/16)
=T3N1aM1a 4cmX4mm (lng not included)
dx 12/2014 at age 39
CEA 1/15-4.9, 12/16-4.9 again
neoadj FOLFOX 1/15-3/15 (4tx, 3w/1wo oxi)
Col/Lvr surg 4/23/15 NED
adj FOLFIRI start 6/15-9/15 (8tx, 5w/3wo iri)
1 sml lvr spot/cyst
12/6/16 multi lung spots/mets?
No longer NED :(
My tx ongoing-start 1/20/15
Adding your SIGNATURE, etc

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Joined: Wed May 14, 2014 1:32 am

Re: Metastatic Stage 4...Clear Scan

Postby Stanfordmom » Sat Feb 28, 2015 10:01 pm


thanks for updating us about your mom's good news! I am so happy for her and your family.

may she stay in the NEDville forever!

DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo

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Location: Los Angeles, CA

Re: Metastatic Stage 4...Clear Scan

Postby HannaandJuliansMom » Sat Feb 28, 2015 10:19 pm

Thank you so much for posting your Mom's story. She's a real fighter and you are the most beautiful daughter one could wish for. Your Mom's fight is a true inspiration. You have no idea how much it means for people who go through this disease to hear stories like this. It really really helps. Thank you!
47 y/o female
two kids (12 and 4)
11/2014 Rectal Ca St. 2a
Chemoradiation (28 days) finished on Jan 30, 2015
LAR 3/27/15

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Location: Moscow, Russia; Baltimore, USA 1992; Vilcabamba, Ecuador 2012

Re: Metastatic Stage 4...Clear Scan

Postby vilca11 » Sun Mar 01, 2015 8:40 am

Just want to tell you what a wonderful girl you are... Many more years to your mom, dear, many more clean scans... she went thru the true horror of cancer and, as a mom myself, I know how she felt knowing that you see her sufferings....But one day in your own life her example of human spirit, strength and endurance will help you to overcome ANY obstacles you might have. Keep being strong, both of you....
Warmest hugs, Vilca
11/2005 CC stage 1, F,50yo@dx
Mod dif adenocar, MSS, APC, TP53, CEAs1.6-4.8
1/12 1met liver@Vena Cava, RFA, 3oxi,11 5FU
8/13 2 mets same place,SBRT
4/14 2 Xeliri+Avastin
5/14 Nano Knife liver same 2 mets
6/14 2 Xeliri, ADAPT
4/15 PET, 2 same mets,Cryo Liver
5/15 MJ Oil, Herbs, Suppl, ADAPT
10/15 PET, same area, doubled in size, high SUV
10/15 RH, HAI, visceral involv., no LN
2/16 red FF, 50% red dose FUDR, CEA trends up
3/16 CT, PET, MRI L.Lobe all in small tumors
4/16 No acceptable options, going home

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Joined: Thu Sep 13, 2012 8:52 pm

Re: Metastatic Stage 4...Clear Scan

Postby momof3 » Sun Mar 01, 2015 9:52 am

Thank you for sharing this incredible story. I relate a bit as my mom couldn't come to my hs graduation as she was too sick. That summer she was in icu in horrific shape and I was her 17 yr old caregiver. The doc told me she wouldn't live long. They gave her 6 months. She just passed away in sept, almost 30 yrs after that day in icu. She didn't have cancer, but another life threatening and changing disease.

I hope your mom has many many more years also!
Husband was 46 when diagnosed stage 4 aug 2012
folfox and avastin ... then surgery april 2013
mets only to paraaortic nodes
Mets to femurs and spine found Nov 2013

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Location: England

Re: Metastatic Stage 4...Clear Scan

Postby purplekangaroo » Sun Mar 01, 2015 5:22 pm

Thank you for sharing your mums story, it is so inspirational - congratulations to your mum for another clean scan! I hope your mum is forever NED xx
LAR 29/10/13
Leak, temp ileo 5/11/13
Stage 3cc aged 31 4\20 nodes
6 months xelox 24/12/13
1 clear CT 5/7/14
Genetic test negative for lynch
Ileo reversed 18/11/14
Colonoscopy 6/2/15 normal
Second CT 6/2/15 ??
Trying to resume some sort of normality??

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Joined: Mon Jun 25, 2012 9:00 pm

Re: Metastatic Stage 4...Clear Scan

Postby BrianMc7 » Mon Mar 02, 2015 12:47 pm

Wow, I sit here humbled.
54 M
4/30/12 Colon Ressection (0/21 lymph nodes)
6/18/12 Biopsy mets to liver
7/24/12 Started modified FOLFOX/with SIRT (SIRT on 7/26) CEA 59
5/13 Went on Chemo break
7/13 Theraspheres to combat small spot in liver
8/13 CEA 2.9
12/13 CEA 2.0
1/14 CEA 1.9

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Facebook Username: debbie.whitaker

Re: Metastatic Stage 4...Clear Scan

Postby Peabody5422 » Mon Mar 02, 2015 4:25 pm

I know your mom apprciates everything thing that you are to her. Your words tell us all how involved you are with your mom. This is sometime a very lonely disease and path. Hugs to you and your mom. Be thankful for every day for the relationship.
DX: RC 11/11 T1 N1c MX
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery

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Joined: Mon Oct 27, 2014 4:47 pm

Re: Metastatic Stage 4...Clear Scan

Postby at614 » Thu Jan 14, 2016 1:28 am


Sorry, I meant to reply to all these wonderful posts but I've been distracted this year (got accepted to physician assistant school!). However, I had screenshotted them, and read them often. Thank you again to everyone for the support.

Another clean scan! No signs of cancer :D

54 year old diagnosed stage IV rectal cancer with metastases to the lungs, liver, and lymph nodes. Radiation, 22 rounds of chemo, ileostomy twice, 12+ surgeries and procedures, anal fissure, paralyzed vocal chord, etc.

Please stay strong and hopeful everyone!

Posts: 613
Joined: Wed May 14, 2014 1:32 am

Re: Metastatic Stage 4...Clear Scan

Postby Stanfordmom » Thu Jan 14, 2016 2:34 am

I smiled when I read your new post! I was thinking about your mom and wondering how she is doing.

Great news! Thanks for sharing, and wish she stays NED forever!

DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo

Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Metastatic Stage 4...Clear Scan

Postby midlifemom » Thu Jan 14, 2016 7:07 am

Thanks for coming back and relaying the good news!
My best to your mom and congrats on physician assistant school
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

Posts: 245
Joined: Fri Jul 04, 2014 4:53 pm

Re: Metastatic Stage 4...Clear Scan

Postby behconsult » Thu Jan 14, 2016 9:18 am

I would have crumbled under such a load. Your mom has an incredibly strong spirit. Thank you so much for sharing your story. Bob
Stage 4 Age 56 BrafV660E 5/14
spot on perit/ Right side tumor
Resctn 6/9/2014
Folfox strt 7/2014. 6 of 12 tx
Chemo induced DM2
Pet 4 mets to lung (1 cm, 6 mm) Xeloda/Avastin 9/16 to present.
Cryo-ablation to four spots- Collapsed lung/chest tube 2x
Possible local recurrence in a spot or two on PET. Stable CT

Deb m
Posts: 482
Joined: Tue Jan 14, 2014 10:08 am

Re: Metastatic Stage 4...Clear Scan

Postby Deb m » Thu Jan 14, 2016 11:43 am

That's great news! Also good luck with your schooling.

deb m

Posts: 2296
Joined: Sun May 25, 2014 1:31 pm

Re: Metastatic Stage 4...Clear Scan

Postby peanut_8 » Thu Jan 14, 2016 12:03 pm

Got to love happy updates. Congratulations to your Mom, and to you at614 for getting into PA school. Hurray! :D :D :D
female, diagnosed Jan 14, RC stage 2a, age 56
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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