Metastatic Stage 4...Clear Scan

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rwightman
Posts: 210
Joined: Sat Jan 17, 2015 6:50 pm
Location: Southwest

Re: Metastatic Stage 4...Clear Scan

Postby rwightman » Thu Jan 14, 2016 2:07 pm

I just read your original post for the first time. Wow, what an incredible journey. Your post really inspired me to remain positive -I hope your mom continues to stay NED. Sounds like all the heartache was worth it in the end. That is what I aiming for and hope to achieve.
10/9/14 DX Age 50 - MSS
10/23/14 - Colon Resection - Stage II - 0/15 lympth nodes
12/30/14 - Stage IV - 1 liver met 2cc - Liver Resection - No lymph nodes and margins clear
3/10/15 - peri mets
3/15 - Folfox with Avastin - 7 tx
7/15 - HIPEC - 2 peri mets
10/14 - resection of abdominal met
11/12 - 5FU

at614
Posts: 11
Joined: Mon Oct 27, 2014 4:47 pm

Re: Metastatic Stage 4...Clear Scan

Postby at614 » Wed Jan 27, 2016 11:56 pm

Thank to you everyone for taking the time to reply with your support! My mother's suffering definitely gave me a lot of insight and empathy that I will use during my medical career.

Wishing you all the strength to overcome your battles to achieve the quality of life and health you wish for.

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: Metastatic Stage 4...Clear Scan

Postby Ajane » Thu Jan 28, 2016 12:38 am

Thank you for sharing your/her story. It's what I needed tonight. May your mom remain forever NED and I wish you the very best in PA school. No doubt your mom's painful, excruciating journey to NED will certainly serve you well in the years to come.
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

at614
Posts: 11
Joined: Mon Oct 27, 2014 4:47 pm

Re: Metastatic Stage 4...Clear Scan

Postby at614 » Tue Feb 02, 2016 12:01 am

Thank you :D
4/2010- Mother Dx age 48 Stage 4 Rectal Cancer
Mets to liver, lymph nodes
Liver surgery
Radiation
Chemo
10/2010 -Ileostomy
Ileostomy Reversal
2011-Ileostomy again
Ileostomy reversal
2012-Mets to lung
Chemo x 22 treatments
2013-Mets to lungs
Lung resection of upper lobe of left lung
Vocal chord paralyzed after operation
Anal fissure
Abdominal hernia
Oct 2015- NED!

daughterseekinginfo
Posts: 40
Joined: Mon Mar 31, 2014 7:10 pm

Re: Metastatic Stage 4...Clear Scan

Postby daughterseekinginfo » Tue Feb 02, 2016 10:53 am

I'm so sorry you and your mom had to experience such a struggle, but I'm so happy she's now NED and you're both getting to enjoy life after treatment. You both deserve it.
daughter of a 68-y-o male
10/13: T4N0MO CC (sig colon resection, part bladder resection)
04/14: radical resection remaining bladder--both recurrent CC in bladder & stage 2 bladder cancer (high grade).
10/14: questionable pelvic lymph nodes; biopsy of one clear
02/15: Clear CT scan & X-rays; small bowel fistula put off re-connection
02/16: Advanced cancer found on CT scan; determined to be aggressive bladder cancer; in lungs/liver/abdomen/hip bone.
03/27/16: My dear father died at home on hospice.

at614
Posts: 11
Joined: Mon Oct 27, 2014 4:47 pm

Re: Metastatic Stage 4...Clear Scan

Postby at614 » Wed Aug 16, 2017 5:06 pm

Hello everyone, I owe you an update. My mom had another clear scan :D
There is hope out there for stage 4 patients!
4/2010- Mother Dx age 48 Stage 4 Rectal Cancer
Mets to liver, lymph nodes
Liver surgery
Radiation
Chemo
10/2010 -Ileostomy
Ileostomy Reversal
2011-Ileostomy again
Ileostomy reversal
2012-Mets to lung
Chemo x 22 treatments
2013-Mets to lungs
Lung resection of upper lobe of left lung
Vocal chord paralyzed after operation
Anal fissure
Abdominal hernia
Oct 2015- NED!

tater
Posts: 77
Joined: Wed Jul 19, 2017 5:53 pm

Re: Metastatic Stage 4...Clear Scan

Postby tater » Wed Aug 16, 2017 7:13 pm

I'm a husband to a 38 wife with stage four rectal cancer. Your post not only have me tears it restored my hope that she too can kick this. Our plan changed yesterday it had time added to it so this really helps me to be positive with my wife and have a spirit of hope and clear vision on our desires out come. Thank you for sharing so awesome you two rock.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18, 1.3 12/18
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18

mariane
Posts: 635
Joined: Sun Sep 13, 2015 6:16 pm

Re: Metastatic Stage 4...Clear Scan

Postby mariane » Wed Aug 16, 2017 9:01 pm

Thank you very much for the good news! You give us all so much hope.
My kids were only 6 when I got diagnosed with stage 4 rectal cancer. The stories like your mom's help me get up, take a deep breath and start another day. I would like to see my kids grow.

Thank you again!
mom of now 9 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

at614
Posts: 11
Joined: Mon Oct 27, 2014 4:47 pm

Re: Metastatic Stage 4...Clear Scan

Postby at614 » Tue Dec 04, 2018 12:57 am

Woohoo clear scan again. Hang in there everyone!

P.S. Graduated from PA school and now I can start taking care of "real" patients, besides my mom. :D
4/2010- Mother Dx age 48 Stage 4 Rectal Cancer
Mets to liver, lymph nodes
Liver surgery
Radiation
Chemo
10/2010 -Ileostomy
Ileostomy Reversal
2011-Ileostomy again
Ileostomy reversal
2012-Mets to lung
Chemo x 22 treatments
2013-Mets to lungs
Lung resection of upper lobe of left lung
Vocal chord paralyzed after operation
Anal fissure
Abdominal hernia
Oct 2015- NED!

stu
Posts: 901
Joined: Sat Aug 17, 2013 5:46 pm

Re: Metastatic Stage 4...Clear Scan

Postby stu » Tue Dec 04, 2018 2:41 am

Fantastic news . Your mum will be delighted on both fronts .
May I wish you every success as you treat REAL patients and may your career be long and meaningful .
Have a great time ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Jannine
Posts: 90
Joined: Wed Jun 20, 2018 7:46 am

Re: Metastatic Stage 4...Clear Scan

Postby Jannine » Tue Dec 04, 2018 7:31 am

Hooray!!! Thank you so much for the update. :)
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8

Punky44
Posts: 130
Joined: Mon Oct 01, 2018 4:29 pm

Re: Metastatic Stage 4...Clear Scan

Postby Punky44 » Tue Dec 04, 2018 12:32 pm

Wow!! Thank you for sharing this story and continuing to post happy updates! Congrats to you and your mom! I pray everyday for a similar outcome that I can come back and share for my mom.
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17
MRI/CT/PET puts staging at T3N2M0
Trying total neoadjuvant therapy—chemo first, then short course radiation, then surgery
11/5/18 started Folfox—3 down, 5 to go!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Koreysue
Posts: 57
Joined: Mon Apr 30, 2018 2:36 pm

Re: Metastatic Stage 4...Clear Scan

Postby Koreysue » Tue Dec 04, 2018 2:49 pm

Thanks for this update! Gives us all hope :D
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8

Educator
Posts: 6
Joined: Mon Apr 09, 2018 3:38 pm
Facebook Username: Ebru köse

Re: Metastatic Stage 4...Clear Scan

Postby Educator » Sun Dec 16, 2018 3:43 am

thats gratefull . Thanks. I saw our story . I hope my husband will be good .
Caregiver of husband
Stage 4 rectum ca 14 dec 2017
Unoperable liver mets ( 10-15) mr shows
Pet shows ned
Chemo 12 rounds ( vectibix) 2018
And going chemo 6. Rounds


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