Sinister Project in mind/Dark Humour wanted

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Frenchie's Wife
Posts: 959
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: Sinister Project in mind/Dark Humour wanted

Postby Frenchie's Wife » Tue Dec 16, 2014 11:43 pm

Well, I got my pet scan results today. It's been 6 months since my last one.

Looks like the devil is getting impatient. That rascal has been up to no good again.

My cancer has progressed quite a bit. It has returned to the original site in my colon. It has also crept down to the stem of my rectum. My lung mets have doubled in number and size. Tumors that have been dormant for years are active again. Surprisingly, my nasal tumor has has been the most stable of them all, very little growth.

Since I still have no pain this late in the game, I am reluctant to go under the knife again. Who knows what other surprises they'll find when they open me up. On the other hand, if I do nothing, I will be fertilizer by the time spring rolls around.
:D
I will make a decision over the holidays. Realistically, I know the pain has to start sooner or later. I don't even have heartburn at this point in time !

I have decided to go to hell after all. I am fairly certain most of my friends will be there. I might even bump into a relative or two. I am going to be the biggest pain in the ass down there that the devil has ever seen. I will show him what hell is really like. He will be the one scrambling to get out !!
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

bitchslapped
Posts: 1538
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Sinister Project in mind/Dark Humour wanted

Postby bitchslapped » Wed Dec 17, 2014 12:22 am

Frenchie, this is not good news to hear. You must have a really high pain thresh hold or possibly you will not have a lot of pain. Could explain your fatigue though. One thing you do know is that you have a good "sniffer" on you.
Give 'em hell for sure!

I wish you peace on whatever decision you make. You're just such a trooper, though you may not feel that way. Decisions, decisions. Didn't realize surgery was an option.

Best To You
Bitchslapped
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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Frenchie's Wife
Posts: 959
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: Sinister Project in mind/Dark Humour wanted

Postby Frenchie's Wife » Wed Dec 17, 2014 10:39 am

The only surgery they are willing to do at this point is related to the new cancer in the colon that should already be causing me grief.

The tumors at the original site are fairly big and may soon cause a blockage They want to put a stint in there. The other cancer spot at the bottom end is a little more complicated and I may require a colostomy bag again. I had one for a couple of years after my first surgery. I find that to be no big deal and rather convenient at times.

If we don't do something about these new developments soon, it will drastically shorten the time I have left. Dying is inconvenient at the moment. I have already made plans for next summer.
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

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CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

Re: Sinister Project in mind/Dark Humour wanted

Postby CRguy » Wed Dec 17, 2014 3:23 pm

Sorry for the new challenges buddy.
Keep fighting' the good fight one day at a time.
Harmony bro'
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

bitchslapped
Posts: 1538
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Sinister Project in mind/Dark Humour wanted

Postby bitchslapped » Wed Dec 17, 2014 5:01 pm

Frenchie wrote:If we don't do something about these new developments soon, it will drastically shorten the time I have left. Dying is inconvenient at the moment. I have already made plans for next summer.


Frenchie, I love your spirit! Surely the docs must want to keep procedures minimally invasive, yet effective. Whichever gives you the biggest bang for the buck so to speak. You sound like one tough ombre.
If you feel the sudden onset of a "Hot Flash", it is me directing positive cyber energy your way!


Best Wishes
Bitchslapped
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

mrcytech
Posts: 71
Joined: Mon Dec 08, 2014 7:39 am
Location: Massachusetts

Re: Sinister Project in mind/Dark Humour wanted

Postby mrcytech » Wed Dec 17, 2014 5:25 pm

Frenchie,
I admire your spirit, and the nature in which you are handling this. I wish you nothing, but peace in your decision making. I tend to handle situations in the same manner that you do, throw some humor at it. It has always been my coping mechanism.

This is my 3rd battle with cancer. The first two times was with testicular. Those battles pretty much almost killed me, but this one is sooo much more of a pain in the ass!!! :lol:

I wish you all the best my friend.
Dx 12/12 Stage 3B sigmoid crc T3N1M0
2/13 resection w/ temp Iliost, port insert. Reversal 5/13.
6/13-12/13 Folfox 12 sessions. Oxi stopped @ session 4.
9/14 CT shows 1.2CM nodule on upper lobe of left lung.
3/15 wedge resection left lung (stage 1A lung cancer) no chemo.
9/16 CT/PET shows node activity (SUV 10.6), CEA extremely elevated. Mets from colon. Upgraded to stage 4.
11/16-4/17 Begin Folfiri w/Avastin 8 sessions.
4/19-9/19 endobronchial activity lung mets.
1/20 Stivarga (palliative).

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chrisca
Posts: 246
Joined: Wed Dec 07, 2011 10:35 pm
Location: Portland, Oregon

Re: Sinister Project in mind/Dark Humour wanted

Postby chrisca » Fri Dec 19, 2014 11:11 pm

Well, if this is the second time in five years you've been given six months to live, the best reply to anyone I can think of is...

"Talk to me in seven months."

And, I hope you get a third chance to hear that prediction from your doctors. I've learned the hard way that listening to a doctor's advice can sometimes be the worst thing to do. Knowing when not to believe them isn't easy, but if you have any doubt deep inside, get another opinion. Years ago when they couldn't diagnose my cancer from obvious symptoms, I wished I had gotten one.

If you have metastasis, another idea to consider is the ketogenic diet. Some say it's bunk, but others have had success. I've not tried it, so do your research carefully before pursuing it.

-Chris.
Male, false negative colonoscopy age 48
DX: 12/2010 rectal cancer age 51
Stage T3N0M0 2 cm from anal verge
neoadjuvant rad/chemo Xeloda
Rectal resection (open surgery) straight anastomosis
Xeloda round 2
ileostomy reversal 11/2011
Successful adhesion X-lap 8/2013
Ongoing LAR syndrome but NED 10 years

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Sinister Project in mind/Dark Humour wanted

Postby justin case » Fri Dec 19, 2014 11:33 pm

Frenchie wrote:Well, I got my pet scan results today. It's been 6 months since my last one.

Looks like the devil is getting impatient. That rascal has been up to no good again.

My cancer has progressed quite a bit. It has returned to the original site in my colon. It has also crept down to the stem of my rectum. My lung mets have doubled in number and size. Tumors that have been dormant for years are active again. Surprisingly, my nasal tumor has has been the most stable of them all, very little growth.

Since I still have no pain this late in the game, I am reluctant to go under the knife again. Who knows what other surprises they'll find when they open me up. On the other hand, if I do nothing, I will be fertilizer by the time spring rolls around


Luckily, I live far enough out of Houston, the buzzards are still available, I'll never make it to fertilizer :roll:
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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Frenchie's Wife
Posts: 959
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: Sinister Project in mind/Dark Humour wanted

Postby Frenchie's Wife » Sat Dec 20, 2014 4:33 pm

Yesterday, I took a trip and never left the house !!

I did something I haven't done in quite awhile. I put on some good tunes, sat in my lazy boy and cracked open a micky of good whiskey. I am on medication that specifically states not to use alcohol while on these drugs. I know better than to do that,it's like playing Russian roulette, but it seemed like such a good idea at the time.

Well, let me tell you, it was quite the trip. The drunker I got the more I cranked up the music. It felt like the music was flowing inside my vains and gave me one hell of a rush. It was like an acid trip back in the 60's.

I don't plan on doing that again anytime soon but I have no regrets, just the hangover from hell.
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Sinister Project in mind/Dark Humour wanted

Postby justin case » Sat Dec 20, 2014 5:38 pm

Frenchie wrote:Yesterday, I took a trip and never left the house !!

I did something I haven't done in quite awhile. I put on some good tunes, sat in my lazy boy and cracked open a micky of good whiskey. I am on medication that specifically states not to use alcohol while on these drugs. I know better than to do that,it's like playing Russian roulette, but it seemed like such a good idea at the time.

Well, let me tell you, it was quite the trip. The drunker I got the more I cranked up the music. It felt like the music was flowing inside my vains and gave me one hell of a rush. It was like an acid trip back in the 60's.

I don't plan on doing that again anytime soon but I have no regrets, just the hangover from hell.

Thank god it wasn't acid, that stuff could be laced with strychnine (POISON), probably not healthy for some one who has done chemo(POISON) :roll: Butt on the other hand , good tunes are good tunes 8) minus the hangover :(
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Sinister Project in mind/Dark Humour wanted

Postby chrissyrice » Sun Dec 21, 2014 5:40 pm

Frenchie,

Sounds like an awesome time... good whiskey and good music and a rush of being alive.

I have been thinking of Marco and how he just kept on living each day at a time.

Wishing you many good days ahead at this point.
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

bitchslapped
Posts: 1538
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Sinister Project in mind/Dark Humour wanted

Postby bitchslapped » Sun Dec 21, 2014 6:13 pm

Wish I could have been there Frenchie. I could use a good drink. Maybe I need to check the arsenal tonight, see what I come up with.

BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Sinister Project in mind/Dark Humour wanted

Postby justin case » Sun Dec 21, 2014 7:52 pm

bitchslapped wrote:Wish I could have been there Frenchie. I could use a good drink. Maybe I need to check the arsenal tonight, see what I come up with.

BS

Last year, my wife filled the arsenal. I now have a Smith and Wesson 40., and shotgun, with enough ammunition to rob a liquor store or 10 :shock: I have been nursing a bottle of Crown Royal for 4 years now.
And people still think WEED is a hazard :shock:
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

bitchslapped
Posts: 1538
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Sinister Project in mind/Dark Humour wanted

Postby bitchslapped » Sun Dec 21, 2014 8:22 pm

Save the bag on that Crown will ya? If you ever finish suckin on it that is. Those come in handy. :D In the meantime I need to work on that huge jug of 1800 Tequila, burp, excuse me. :mrgreen:
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Sinister Project in mind/Dark Humour wanted

Postby justin case » Sun Dec 21, 2014 9:06 pm

bitchslapped wrote:Save the bag on that Crown will ya? If you ever finish suckin on it that is. Those come in handy. :D In the meantime I need to work on that huge jug of 1800 Tequila, burp, excuse me. :mrgreen:

You can't drink 1800. Pura Vida tequila, is one of my new customers. Put a penny or two in the printers pocket por favor :lol: Also we do menus for a lot of restaurants across the country. Most everyone in Texas knows the Saltgrass, or McCormick and Schmick"s , Crab house , Aquarium, Landry's. Golden Nugget casino's. etc---etc
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012


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