Hello Friends

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Posts: 1133
Joined: Thu Feb 27, 2014 3:37 am
Location: Northern Italy

Re: Hello Friends

Postby singingholly » Fri Oct 24, 2014 3:09 am

I just love to hear from you...
Please write again about the celebration.
A great big hug.
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Hello Friends

Postby Bev G » Fri Oct 24, 2014 8:53 am

Hello Greg,

Thank you so much for posting. It is just wonderful to hear from you. The plans for Katie's celebration of life sound perfect. I would so love to be there, but I will surely be with you in spirit, celebrating your amazing and beautiful daughter, and the incredible relationship you had with her.


58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Posts: 1606
Joined: Tue Jun 21, 2011 9:49 pm

Re: Hello Friends

Postby Laurettas » Fri Oct 24, 2014 8:56 am

Thank you so much for updating us. I know the path you are on and it is a painful one---unbelievably so. I will be on a retreat for the widowed and divorced this Saturday so I will keep your family in my thoughts and prayers.
DH 58 4/11 st 4 SRC CC
Lymph, peri, lung
4/11 colon res
5-10/11 FLFX, Av, FLFRI, Erb
11/11 5FU Erb
1/12 PET 2.4 Max act.
1/12 Erb
5/12 CT ext. new mets
5/12 Xlri
7/12 bad CT
8/12 5FU solo
8/12 brain met
9/12 stop tx
11/4/12 finished race,at peace

Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Hello Friends

Postby KWT » Fri Oct 24, 2014 9:45 am

Hi Greg. :D

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Posts: 255
Joined: Sun Jun 09, 2013 10:34 pm

Re: Hello Friends

Postby kirac » Fri Oct 24, 2014 12:59 pm

Please do share photos or videos of your celebration of life. Thanks for checking in.
Husband (Age 36) 1/13 Dx Stage 3B rectal cancer
3/13 Chemoradiation
6/13 Tumor removed, Temp ileo, 1/15 nodes
7/13 Chemo = Oxaliplatin, Xeloda
1/14 Reversal
7/14 NED, CEA 1.8
12/14 CLEAR CT scan! NED


Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: Hello Friends

Postby Stanfordmom » Fri Oct 24, 2014 3:39 pm


Thanks for checking in on us! I have been thinking about you and your family!

Hope Katie's celebration of life event goes great, and please share some photos.

Sending you positive energy and hugs (((((((Greg)))))))

DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo

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Posts: 1263
Joined: Sat Apr 16, 2011 11:08 am
Location: South Central PA

Re: Hello Friends

Postby raym » Fri Oct 24, 2014 4:28 pm

Wish I lived closer as I would attend. 2 hour drive maybe, but 3+ I can't swing. I hope the celebration goes well!
4/12 HIPEC
6/12 Chmo/Rad
9/12 XELIRI+Avast/Zltra
9/13 Plvic Absc,stpd chemo
11/13 Tumr rmvd frm Lap Port incis
12/13 Xeloda
1/14 Cardiac Issue no Xeloda/5FU
3/14 Irinotecan
6/14 Stopped chemo
8/14 Clin Trial
9/14 Infectn - Stpd Trial

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Joined: Sat Sep 14, 2013 5:35 am
Facebook Username: alpha21_2003

Re: Hello Friends

Postby jvaime21 » Fri Oct 24, 2014 6:04 pm

Greg., thank you so much for posting.,tears in my eyes again.

wife of Stg 4 SRC
04/16/14 Clear CT-
8/25/14Kidney blockd nepro.
Rec. lung 1 enlrg. Abdomen
Inoperable/incurable /Chemo for life
11/21/14 Xeloda+Irinetocan 6x
hoping for a bright sunny day

Posts: 309
Joined: Sun Aug 10, 2014 10:32 pm

Re: Hello Friends

Postby Danieljt » Fri Oct 24, 2014 8:39 pm

I visited that lighthouse when I spent time with my father. He lived in barnaget before he died of mouth cancer. It is a very beautiful spot and I can only imagine how lovely the ceremony will be. Bless you and your family
From illinois
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.

Posts: 378
Joined: Thu Aug 22, 2013 2:15 pm

Re: Hello Friends

Postby ColOrPan » Fri Oct 24, 2014 10:55 pm

Dear Chixter,
thanks so much for checking in on us. Sometimes life hurts but is still worth living.
06/2012 DH rare intestinal type Ampullary/duodenal cancer. They extrapolate from colon cancer. FOLFOX 6 been working since Aug 2013. Feb 2014 once a month folfox as maintenance.
May 2014 Folfiri - fail
Starting off-label JAKAFI 08/25/14

Posts: 218
Joined: Fri Nov 12, 2010 1:12 pm

Re: Hello Friends

Postby wifeandmom » Sat Oct 25, 2014 8:40 pm

Dear Chixter,

Bless you and your family.
Dx 4/09
Rectal CA T3 N0 M0
Neo-adj. rad/Xelox
Surgery 8/25/09 LAR, temp ileo
Reversal 10/09
Surgery 12/21/09 temp ileo
ICU 12/30/09
8 rounds Xelox
Surgery 9/9/10 fix fistula, redo anastomosis
Reversal surgery 12/23/10
Hernia surgery 5/19/11
2018 Dx with radiation-induced Lumbosacral Plexopathy
ATM gene mutation
3/2019 Dx uterine carcinosarcoma Stage 1a

Posts: 258
Joined: Mon May 26, 2008 6:14 am

Re: Hello Friends

Postby stpio » Sat Oct 25, 2014 10:28 pm

Sending my heartfelt condolences to you and your family. I am so sorry I didn't see your post earlier as I live in Stafford. What a beautiful day it was on LBI today!
Surgery July 17, 2007 Stage III
1 foot of colon removed near spleen
1/21 positive LN
5FU/Leucovorin/Oxilaplatin for 6 months
Completed chemo January 2008
Stage 1 Breast Cancer 2010/radiation Tamoxifen

Posts: 28
Joined: Mon Apr 21, 2014 6:40 pm

Re: Hello Friends

Postby ullefan » Sun Oct 26, 2014 8:15 am

Weren't you supposed to get a colonoscopy?
DX 10/09 IIIb CRC 3/21 positive nodes
11/09-5/10 10rds. FOLFOX 4 rds. xeloda
5/11 NED
5/15 NED

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Hello Friends

Postby Bev G » Sun Oct 26, 2014 11:50 am

Hi Greg,

I was thinking about you this morning and just wanted to say "hi". I hope and trust things went well yesterday. I guess it was a very bittersweet time, I hope filled with a lot of love, and a lot of support for you and Katie's mom. We miss her with you, I know not as you do, but please remember we are with you, sharing in some small part your pain, and in large part your love.

Hugs to you today,

58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Posts: 6034
Joined: Sun Apr 16, 2006 4:09 pm

Re: Hello Friends

Postby Lee » Sun Oct 26, 2014 5:02 pm

Sorry I couldn't be there, I'm sure it was great.

You and your family continue to be in my thoughts and prayers.

((((HUGS)))) to you all,

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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