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Hello Friends

Postby chixter » Thu Oct 23, 2014 4:52 pm

It's just me checking in on you guys! I spent some time catching up. I'm sad for recent the losses in our group and other disappointing news, but we realize this is something heavy we are dealing with. I'm delighted over the many good reports though; successful surgeries, good scan results for Kenny and Rheaeliza, And I F*ng LOVE Sky Pups attitude and wish her the fondest memories on her road trip!.. Damn, this is the stuff that makes me smile.

We are holding Katie's Celebration of Life this Saturday at the State Park at the Barnegat Inlet Lighthouse on LBI. IDK how many of you are fairly local and up for travel but anyone and everyone from this board is welcome. It is from 1-3pm. If were in my power I would charter flights for you folks to be here. Carole's good friend is quite a videographer and I'm hoping for some good footage to provide links to. The forecast is showing a great day, sunny high 60's at the beach.

We are doing OK, as best we can. How terribly we miss her. I still cry at sometime every day, but I pull myself up and am able to function. Having to deal with all of her stuff...her car, accounts, med bills etc. doesn't help but that's almost done now.

My thoughts and hope is for each and every one of you to live your lives to the fullest. Fight hard, but don't let the fight take you out. Maintain that difficult balance between aggressive treatment and QOL. Absorb every ounce of beauty and love that exists here along our way....this is the best we can do.

All my love,

ImageFather/Caregiver to beautiful 25 y/o daughter with mCRC Stg 4

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Re: Hello Friends

Postby Maia » Thu Oct 23, 2014 4:58 pm

chixter wrote:My thoughts and hope is for each and every one of you to live your lives to the fullest. Fight hard, but don't let the fight take you out. Maintain that difficult balance between aggressive treatment and QOL. Absorb every ounce of beauty and love that exists here along our way....this is the best we can do.

(((Chixter))) thank you. I bless you.

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Facebook Username: Michael Void Ward

Re: Hello Friends

Postby Voxx66 » Thu Oct 23, 2014 4:58 pm

Glad to hear from you. I've been hoping you and your family were doing as well as you could be under the circumstances. I think the celebration of Life is a great idea and I hope you share some pics/vids with us here.

DX and resect 10/2012 age 46
Stage IIa CRC
liver mets both lobes 8/2013
CEA 28
FOLFOX + Avastin 8/26/13 3 rounds
Folfox only 3 rds + rd 8
platelets low round 7,9,10 5FU only
1/14 CEA 1.0 y90
10/14 mets lung and peri
1/15 Folfiri

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Joined: Mon Dec 17, 2012 12:12 pm

Re: Hello Friends

Postby skypup » Thu Oct 23, 2014 5:37 pm

Ah, Chixter, it is so good to hear from you. I will be looking forward to seeing video from Katie's life's celebration, and I will be holding vigil for her and all who love her during some of that time. I will be on day 3 of my F* Cancer Tour (I should have had a T-shirt made.)

I truly can't know the depth of the pain you are feeling, I can only imagine how deep the loss is and will always be. That you love her and miss her, yet build joy around her life is a testament to you both.

Namaste, friend.

justin case
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Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Hello Friends

Postby justin case » Thu Oct 23, 2014 5:41 pm

There are some very lucky people in your life, they all know
warm regards,
Last edited by justin case on Thu Oct 23, 2014 5:55 pm, edited 3 times in total.
7/11 diagnosed Stage 2 colon and rectal cancer
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Hello Friends

Postby chrissyrice » Thu Oct 23, 2014 5:51 pm

So good to hear from you.

What a special place to have Katie's celebration of life... I looked the area up online and saw pictures of the park and lighthouse.

I will be there in spirit and my heart will always hold a special place for you and your (our) dear Katie.

DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

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Joined: Tue Apr 08, 2014 4:57 pm

Re: Hello Friends

Postby Maddielolo » Thu Oct 23, 2014 5:51 pm

Glad you checked in. Life is painful but life is beautiful. I, like so many here, have been thinking of you and all of Katie's family and friends. I'll be thinking of you all on Saturday and hope it is a great celebration of her life.

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Joined: Mon May 05, 2014 6:33 am

Re: Hello Friends

Postby Valorie » Thu Oct 23, 2014 6:04 pm

I am so glad you checked in with us. I wish I lived close by so that I could attend the Celebration of Life for your dear Katie. I will be there in spirit and thought.

Age 53 dx 2a CC 0/21 LN Oncotypedx score: 11
Sigmoidectomy 5/8/14
MSS No lymphovasular involvement,
6/14 PET - NED, 12/14 CT NED, 7/15 CT - NED
6/14-12/9/14 Xeloda 8 cycles
2/12/15 incisional hernia repair - Boooo!

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Facebook Username: JanetKlostermann

Re: Hello Friends

Postby janklo » Thu Oct 23, 2014 6:10 pm

Greg, I have been thinking about you and Carole today. It was 2 years ago that we got a call about our daughter, that things had turned for the worse in her cancer battle. This time of year has been tainted for me, because of all those events. We just had our first grandchild on 10/12, so that is a family blessing to focus on instead.

My family doctor wisely told me in his experience grief takes at least 2 years, so give yourself that time. Don't feel you have to get rid of all Katie's things. We still have som of Lauren's stuff in our basement and sometimes I give it to someone who can use some kitchen things or clothes. It helps me to give to people we know instead of just dropping at Goodwill.
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012

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Joined: Sun May 25, 2014 1:31 pm

Re: Hello Friends

Postby peanut_8 » Thu Oct 23, 2014 7:18 pm

Greg that is a wonderful way to remember Katie. Will be thinking about you and Carol, and the rest at the Celebration this Saturday.
female, diagnosed Jan 14, RC stage 2a, age 56
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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Joined: Wed Sep 18, 2013 10:44 am

Re: Hello Friends

Postby Marian1961 » Thu Oct 23, 2014 7:29 pm

So glad to see this post from you and to know you and your family are getting through these hard days. I will think of you on Sat as you gather to honor beautiful Katie.
Caregiver 53 brother
Dx 09/13 stage iv, met liver
Emergency stoma
? Chemo 09/30

Posts: 197
Joined: Sat Nov 26, 2011 10:27 pm

Re: Hello Friends

Postby kpjpmom » Thu Oct 23, 2014 9:10 pm

So good to see you back here. You have such a gift for writing and sharing. We have missed you. Sounds like it will be a lovely day to celebrate your sweet daughter's life. I will be thinking of you and your family.
DX March 2011 stg 3 cc
Kidney cancer May 2011
Folfox 6months (12 rnds)
It's Back! October 2012 colon resection, kidney removed.FOLFIRI/Erbitux starts Jan.2013
Completed FOLFIRI June 2013, Erbitux continues
March 2015 Met to spine. Radiation 15 treatments
Folfri, 5fu dropped after 3x, Erbitux and Iri continued CEA rising. Moved to
Folfox, Xeloda,Avastin until Feb. 2016 oxilap. Neuropathy returns.
Xeloda,Avastin continues.

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Joined: Mon Jul 01, 2013 10:23 pm
Location: Orcas Island, WA

Re: Hello Friends

Postby orcasres » Thu Oct 23, 2014 9:38 pm

It is so kind of you to check in. I wish a beautiful day of memories of Katie on Saturday. Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far

Posts: 454
Joined: Mon Aug 06, 2012 2:54 am
Location: Honolulu, Seattle

Re: Hello Friends

Postby pukalania » Thu Oct 23, 2014 9:42 pm

Been missing you here... Sending lots of love your way hugs
wife 34 dx DH stage IV
Feb10 col res
May10 12 x FOLFOX
Aug12 tumor in sig colon,mets in liver
Aug12 Xeliri Ava
Oct12 xel celebrx rad
Feb13 liver/colon res
Sep13 ill reversal, fistula,
Folfiri SBRT,ADAPT ava
Apr 15 continued growth liver and lungs

Posts: 1495
Joined: Thu Dec 20, 2012 9:53 pm
Facebook Username: https://www.facebook.com/vbass123
Location: San Diego, California

Re: Hello Friends

Postby WifeOfMike » Fri Oct 24, 2014 1:50 am

Greg & Carole,

It is wonderful to hear you will be "Celebrating our Dear Katie's Life" on Saturday in a beautiful park
She lives on in our hearts & minds- forever young, forever beautiful, forever valiant
I will be lighting white candles all day Saturday, as my way of being with you in my heart
A gentle Hug & much LOVE,
Bad Ass WIFE
Hubs: CRC IVA,T3, N0, M1A
Resect/LN Mets 10/12
Folfox4/Avastin 11/12-5/13
Folfiri/Erbitux 6/13-10/13
Stivarga 12/13-4/14
Trial 4/14-/14
Trial 8/14-11/14
HOME Hospice 11/17/14
Guardian Angel 1/1/15

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