weisssoccermom wrote:First of all, you are making an assumption that they have the scans of the wrong person. Contact the docs and Wake Forest and ask them to call/fax whatever your local oncs to tell them where they see these spots on the lungs. Have them be very specific. My onc has been VERY honest with me that it is the radiologists and not the oncs who are the best doctors at reading the CT/MRI/PET. Did the radiologists here read them also or just the onc?
I know that Wake Forest has an excellent reputation for utilizing the HIPEC and has been doing so for some time. You talked about another surgery. Did the docs at WF recommend that also? From the little that I know about operating on mets to the peritoneum, the docs at WF are among a few that will do both the surgery and the HIPEC.
As for the HIPEC, I am certain that there are people on this forum who have had experience in it. I can also direct you to the following website to read this young man's story about his journey both with HIPEC and the surgery for abdominal/peritoneal mets.
Good luck with whatever decision you make.
I had cyberknife surgery followed by HIPEC (Heated Interpertineal Chemotherapy). My surgery lasted 11 hours. I was on a vent for just about 12 hours. My surgeon was Doctor Martin Goodman at Tufts Medical Center in Boston. I spent 13 days in the hospital recovering. I came home on IV TPM ( nutrition), lovanox shots twice a day for clotting. I was home three days and spike a really high fever (105). Ambulance took me back to the hospital where they detected a bowel leak. I spend three and 1/2 more weeks in the hospital recovering from that. Came home on TPM for 2 more months with IV antibiotics. I have spent my summer building myself back up and feel pretty good. I want to say I went into this knowing all the risks. Would I do it again?? YES, YES,YES! Going into this surgery I was in horrible pain and was give 6 months to live. I just made it ot 8 months. Now my pain is back and they are trying to firgure out if it is scar tissue from my three surgeries or more peritineal spread. My liver is clean as are my lungs which made me the ideal candidate. My doctor was very honest and never said he could sure me with this. Is is hard?? Yes its brutal. Sorry but it is. They removed the peritoneal seeding, my spleen, my appendix, my reamaining ovary, cerix, uterous, more of of colon. I came out of it with an ostomy. I may have to have it again and I will if they will take me. One thing that is hard after this surgery....Pet scans will light up inflamation so they will no longer be a scan to detect mets. CT's only. I can't say enough about Tufts. Really geat care. They also have apartments for family to stay in for a very reasonable rate. Please feel free to ask me anything.
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