Anyone consider counseling going through this?

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Raleigh
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Joined: Sun Aug 31, 2014 1:19 am
Location: Florida

Anyone consider counseling going through this?

Postby Raleigh » Wed Oct 22, 2014 11:21 am

Hi, strange subject....

Just lately I've been kind of an emotional wreck... I don't even know why exactly cause I just finished up my 28 rounds of radiation and chemo... I should be glad that part is over... Lately I've been just angry over everything.... I've got my resection surgery up next in a few weeks... I'm fairly freaked out about it... I've never had surgery for anything before. I've been angry and snapping at friends and family from time to time who probably don't deserve it.

Girlfriend recently suggested I should possibly go to someone to talk with about everything I'm going through. Anyone here ever gone through a similar experience? I'm sure anyone who goes through cancer has hi and low emotional periods during their treatments... What do you do about it? Is it a good decision to seek out counseling to help myself work through this stuff? I personally have never been to any kind of counseling and even maybe have a little bit of a negative viewpoint towards it.

I didn't mention the fact that the person who told me to do this was my girlfriend and we were in a huge argument at the time... I'm not sure if she said it to hurt me, or if she was serious. However I have been going through a lot lately, and my emotions have been like a roller coaster so, not quite sure what to do.

Any thought or experiences with this sort of thing??
Last edited by Raleigh on Wed Oct 22, 2014 12:42 pm, edited 2 times in total.
44 Yrs. Male
8/27/2014 Diagnosed colorectal cancer
Early stage 3
10/17/2014 - 28 rounds Rads/Chemo done
Resection / Illiostomy
Cancer free now since 9/2015

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Anyone consider counseling going through this?

Postby BrownBagger » Wed Oct 22, 2014 12:35 pm

It's not a strange subject at all. If anyone can benefit from counseling, it's someone facing a cancer DX.

Ask your oncologist for a referral. Most cancer centers have a counselor or counselors on staff to serve your needs.

Don't be afraid to ask!
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

pukalania
Posts: 454
Joined: Mon Aug 06, 2012 2:54 am
Location: Honolulu, Seattle

Re: Anyone consider counseling going through this?

Postby pukalania » Wed Oct 22, 2014 12:37 pm

Hi Raleigh,
I've been thinking about this too for awhile and haven't made a step forward..but i've been trying to find some support to help with cooping for kids whose parents have cancer...and since our daughter is only 4..it' s been hard to find the right channel...but i think it's good to get all the help you need...not sure how this all works insurance wise...it certainly won't hurt to talk to someone...i'm sure others with more experience will pitch in :)
wife 34 dx DH stage IV
Feb10 col res
May10 12 x FOLFOX
Aug12 tumor in sig colon,mets in liver
Aug12 Xeliri Ava
Oct12 xel celebrx rad
Feb13 liver/colon res
Sep13 ill reversal, fistula,
Folfiri SBRT,ADAPT ava
Apr 15 continued growth liver and lungs

shockandawe
Posts: 15
Joined: Wed Apr 09, 2014 3:00 pm

Re: Anyone consider counseling going through this?

Postby shockandawe » Wed Oct 22, 2014 12:49 pm

Well, my DH is the one going through this but my first appt was just after he got the life-changing news. I have found it helpful. I feel so many emotions, while my DH is definitely a more level-headed and positive person. i think it has helped me deal with anger, sadness, confusion, and all those conflicting feelings. You might not get someone who click with right away and it might help to meet a few before sticking with one, but you might be lucky and get someone you feel comfortable with quickly (I did). The lady I see really helps me see what it is I'm dealing with, dig past the superficial.

You've had a life changing event. Heck, it should affect you! How could it not?! There is nothing wrong with talking to someone about it, especially someone you don't have history with. They are not there to judge you or tell you HOW to feel, only to help you come to terms with your feelings and learn how to not let it affect you too negatively. Sometimes it's helpful to feel almost validated I guess, that it's okay to feel whatever you're feeling.
Like I said, i'm not the one going through the journey, but I'm with someone who is, so I definitely think that if you get comfortable with the idea of seeing someone impartial and you are willing to be honest with someone (but really it's with yourself) then it might be worth a go. If you feel like it's not for you, then no harm done!
DH: 3/3/2014 - Dx RCa
Stage? T3L?M0
08/04/2014 - Neoadjuvant Radiation + Capecitabine for 5wks
Aug 2014 - emerg loop colostomy
Sep 2014 - LAR w/ loop ileostomy

bitchslapped
Posts: 1538
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Anyone consider counseling going through this?

Postby bitchslapped » Wed Oct 22, 2014 12:50 pm

There is also a "Sticky" thread @ the top of the forum board that lists support groups in various communities.
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

janderson
Posts: 679
Joined: Tue Mar 27, 2012 11:46 am

Re: Anyone consider counseling going through this?

Postby janderson » Wed Oct 22, 2014 1:15 pm

I understand how you feel about surgery. I had never had any kind of surgery or even had to spend the night in the hospital before I had cancer. I have had several more surgeries since then and I still get real nervous. There is probably some truth to what your girlfriend said. I am not saying you should seek counseling unless you think that is right for you but it is just as hard if not harder on the spouse/caregiver. I have been dealing with this crap for nine years and I can constantly see the emotional toll it takes out of my wife. Most of the fights that we have had are cancer related or provoked by our emotions caused by cancer.
DX 10-05 stage IV
liver resection 12-05 Folfox1-05 to 7-06
Liver resection 8-07 Folfiri 9-07 to 3-08
Liver resection 12-11
Recurrence 2/7/2014, liver, chestwall mets, 16 rounds chemo
7/3/14, y90 radioembolization, steady shrinkage
12/8/14, cryoablation to liver and chest wall
6/1 to 6/26 SBRT radio surgery
7/2 more cryo ablation to right lung
7/16 lung infection drain tube installed
9/4 chest wall resection to remove 2 ribs

ann13
Posts: 74
Joined: Sun Oct 20, 2013 12:03 pm

Re: Anyone consider counseling going through this?

Postby ann13 » Wed Oct 22, 2014 1:53 pm

I lost my mom about 11months ago and just started going to counseling last month. I found someone through palliative care/hospice in our area. I've only gone twice and I've felt better each time. There's no "cure" for what is happening, because he can't take away the pain or bring her back but he's someone that I can tell everything to and he doesn't judge me. I've suffered with a lot of guilt through this and he has helped me to deal with that. I can tell him all of the dark horrible things that I feel and ask myself and he listens and validates it.
Mom diagnosed with Stage IV CC 10/13
tumor removed and colon resectioned 10/13
Chemo started 11/13 - error relating to pump caused death two days later
became my guardian angel:)

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ziggymonster
Posts: 538
Joined: Tue Feb 05, 2013 3:23 pm
Location: California

Re: Anyone consider counseling going through this?

Postby ziggymonster » Wed Oct 22, 2014 2:05 pm

You have had a major life changing event....it is normal to have strong feelings of fear, anger and act in ways you hadn't before.....talking to someone is an excellent idea it can help you cope with these feelings. I've been dealing with advanced prostate cancer for over 10 years, then the advanced rectal cancer. I would have gone nuts if I didn't talk to someone. My GF is very understanding but is emotionally involved and that isn't the best idea. Talking to a therapist has been a major help for me. There is no stigma. who knows what your GF's motives were, it will benefit you both to seek outside help.
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

Raleigh
Posts: 114
Joined: Sun Aug 31, 2014 1:19 am
Location: Florida

Re: Anyone consider counseling going through this?

Postby Raleigh » Wed Oct 22, 2014 3:40 pm

Well I just got back home from my Oncologist appointment. I made this thread just before going in to see him for suggestions.

I asked him about counseling, he told me that yes, I could go to counseling... But strangely, he felt that the types of counseling available in my area are not very good. Also, that counseling or other similar care would definitely not be covered by my insurance. I have very little money at the moment.....

Instead, he convinced me to try (Lexapro) which is a mild antidepressant, anti-anxiety med. To be honest, this isn't what I wanted to hear.... I'm very hesitant about going on antidepressants SSRI type drugs. In fact its about the last thing I want to go on. However he said its very mild, and might help. Soooo.... I drudgingly went to the store to get even more pharmaceuticals, to put into my body... ugh!

Anyone have any experience with Lexapro? 10 Mg. tabs?
44 Yrs. Male
8/27/2014 Diagnosed colorectal cancer
Early stage 3
10/17/2014 - 28 rounds Rads/Chemo done
Resection / Illiostomy
Cancer free now since 9/2015

sjring
Posts: 181
Joined: Mon Jun 30, 2014 3:16 pm
Location: Philadelphia, PA

Re: Anyone consider counseling going through this?

Postby sjring » Wed Oct 22, 2014 4:12 pm

Raleigh,

I tend to be the logical male, and in the past tended to not put a lot of stock in counseling, in part because I saw how other family member were able to wrap the therapist around their little finger to get what they wanted. But I did start seeing one a few years back before the cancer and found it beneficial to have a neutral third party to bounce thoughts off of. I had stopped seeing him and went back right after the cancer diagnosis. Between the death of my grandmother and the cancer Dx all within a month...and then the staging news getting worse and worse, I was in a pretty dark place.

The best suggestion he gave me was to keep a journal, and just have some sort of outlet to express how I was feeling. The hardest part for me was not having a plan of attack and when we came up with one, additional staging information came in and as they say, "No plan survives contact with the enemy." Getting my feelings out was very therapeutic. I only had a couple of sessions and I have his phone number if I ever need a tune-up so to speak. It's worth looking into (and check with your insurance before dismissing it entirely) but definitely find someone you connect with. Not buddy-buddy, but someone you feel comfortable opening up with.

I don't have experience with antidepressants so I can't help you there.
50 YO Husband & father of 2 teenagers.
DX 9/9/13 Stage 4 cc (at age 48)
16 Rounds FOLFOX + Avastin (Oct-13 to May-14)
Maintenance chemo - Avastin & 5-FU infusions (Jun-14 to Jul-15)
Jul-15: Mets to lymph nodes, resuming FOLFOX
Sep-15: MRI showed stability, back to maintenance chemo.

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NZJay
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Location: NZ

Re: Anyone consider counseling going through this?

Postby NZJay » Wed Oct 22, 2014 4:44 pm

When I finished chemo, I had an emotional meltdown and could barely function or sleep.

My doctors suggested antidepressants and sleeping pills. I dabbled in the sleeping pills when things got unbearable but avoided the antidepressants as I really want a life without pills.

I took the offer of free counselling through our local cancer society, and additional counselling via my workplace employee assistance program.

The cancer society counselling (with a "counsellor") made me feel good after each session, probably due to airing my thoughts and emotions to a neutral bystander. But it didn't really improve the REAL problems of insomnia, anxiety and depression.

However the EAP counselling (with a "psychologist") almost immediately gave me tools via practical suggestions and cognitive behavioural therapy, which fixed my insomnia and consequently the anxiety and depression.

Now I'm sleeping 7-8 hours per night without medication, functioning at work, not thinking about cancer much at all, and getting my life back on track. Without evil medications which only treat the symptoms and avoid addressing the problem.

So I highly suggest trying a service and if it does not work, trying a second or third one until they help.

Disclaimer: I am very opposed to medication, partially as I am a Side Effect King. But no offence intended to those of you who successfully use meds to control anxiety and depression. :)
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

Jachut
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Facebook Username: hutchinson@aanet.com.au

Re: Anyone consider counseling going through this?

Postby Jachut » Wed Oct 22, 2014 5:30 pm

My surgeon pushed heavily but I refused. Truthfully, I felt so violated by treatment, it was so humiliating, there was no way I wanted to be opened up emotionally in front if another stranger. People had already seen every bit of me Ive never seen myself, Id suffereed so many indignities.

Ive always felt rather negatively towards counselling too - particularly since my sister xis a psychologist and is more dysfunctional and nuts than almost anyone I know. I love her dearly but seriously.....

I finally went in desperation after treatment and it was exactly what I expected. Me baring my soul and somebpdy telling me to try not to think that way. Honestly, I recognise the destructive thought processes, I recognise how illogical depression can be etc, to pay someone to tell me that and then give me pathetic suggestions such as saying "no" everytime my thoguhts wander in the wrong direction, I did my six sessions, it helped not one bit (and I wanted it to, I really embraced it at the time) but foe me, it was a waste of time. That said I am apretty insightful, reflective etc and I already naturally did all the things she was suggesting to me. I needed pharmacological help, in the form if HRT. No psychologist was ever going to fix my hormones, it was all menopause related. And still is, I have tried to come off hrt and am suicidal within two or three weeks. Otherwise, completely normal.

So counselling - not my cup of tea. But certainly worth a try.

Itsdana
Posts: 29
Joined: Tue Jun 24, 2014 10:12 pm

Re: Anyone consider counseling going through this?

Postby Itsdana » Wed Oct 22, 2014 5:35 pm

Raleigh,
It can't hurt to try seeing a Counselor. I try to keep positive to my family and friends and sometimes just want to scream how I really feel when I hit a period where I'm scared or worried. I use a journal sometimes to rant and rave but even then I find myself being more polite than I feel! I am in the same place you are in the process. I have my surgery coming in less than 3 weeks and am worried about what to expect. I read a lot of the posts here which really help me understand the process and how things may go always understanding everyone is different. For me it helps to read the good and the not so good so I feel I know the range to expect. Hope for the best but prepare for the worst is what works best for me.

If you end up not liking the Counselor, don't go back. I would recommend finding one through one of the Organizations that someone listed though. Good luck with your surgery. I'll be watching for your updates!
Dana
DX June 2014 - age 50
RC Stage III (clinical)
T3N2M0
Chemo (Xeloda) and Radiation Started 8/14
Surgery November 2014 (LAR)
Chemo (xeloda and Oxalyplaten) x6
June 2015 scans show NED

ann13
Posts: 74
Joined: Sun Oct 20, 2013 12:03 pm

Re: Anyone consider counseling going through this?

Postby ann13 » Wed Oct 22, 2014 5:59 pm

Raleigh, can you contact the local palliative care? They have counselors that might be of no cost to you. I pay nothing for counseling.
Mom diagnosed with Stage IV CC 10/13
tumor removed and colon resectioned 10/13
Chemo started 11/13 - error relating to pump caused death two days later
became my guardian angel:)

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dianetavegia
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Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: Anyone consider counseling going through this?

Postby dianetavegia » Wed Oct 22, 2014 6:14 pm

I talk with my pastor if things get to really bothering me but I do have horrible anxiety starting 6 or 7 weeks before my tests.

I take .5mg Klonopin the minute I wake and then usually one more later in the day tho during those 4 months right after the 'all clear', I don't need them at all much of the time.

My Gastro, onc and primary all have told me that when you've had major surgery, 2 major surgeries, PTSD is quite common. My liver surgeon had a booklet on depression after liver resection. His office forgot to give me a copy until I called and asked him 'should I be feeling like this?' Part of my horror story is that I was unable to tolerate any of the take home pain meds and had to heal from the open resection without pain relief.

My husband says I'm not the same person I was before my liver resection. I used to smile constantly. I was up and scrubbing the house while most people were just waking. Everything was kept perfect. Now none of that matters. The house is clean and stuff is put away but I find joy in ........ very few things. I'm still praying for ME to return.
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2


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