Hi Ray,
I am so sorry to hear that you have been continuously bombarded by side issues, cannot pinpoint them to anything and it makes you wonder if the clinical trial is a possible reason
It is one of the side issues with working in a clinical trial- with unknown drug or a combination that has not been used before & the results will not be known for years after we are done using them
I know I researched my butt off trying to find what little I could for
Tivantinib before my hubby started his trial, and find myself still looking, while he is on it
I did find this
ASCO website 2 days ago-
you can plug in any drug & get quite a bit of infoMaybe you can find an answer here:Search returned 29 results for
“romidepsin”Abstract (19), Presentation (9), Edbook (1) dates cover info 2009-2014 by year & type
http://meetinglibrary.asco.org/search/site/romidepsinSearch returned 117 results for
“azacitidine”Abstract (74), Presentation (32), Edbook (11) dates cover info 2009-2014 by year & type
http://meetinglibrary.asco.org/search/site/azacitidineAs for
medical facilities going to new computer systems, I feel your pain there too- I went through new systems with
UCSD & Scripps and now
USC last month.
However- the GOOD NEWS here is that once they get the systems into play, YOU as the patient or Caregiver can typically access YOUR file & get instant readings of things like CBC's/ tests etc & print or save them. I still have to ask for some to be printed off for me.... but it has saved me a lot of time compiling stuff for different DR's in different systems (
just made hubby's DR Number EIGHT appointment today (OH JOY). Any Dr's within the same computer system can access each others reports, scans, tests pretty immediately- also saves you the running around/ coordination. I PRAY for the day they have some sort of universal computer system- I personally am going to host a
Parade the size of Macy's, LOL! Hang in there kiddo.... we are swinging Chickens & Rooting for Y O U(((BIG HUG)))Vicki