Our dear Marc (lohidoc)

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Re: Our dear Marc (lohidoc)

Postby Laurettas » Tue Oct 21, 2014 8:12 am

I am deeply saddened to hear this news. Marc's writing was amazing and I so enjoyed reading the wisdom that flowed from his words. We, too, shared emails for a time and I was always touched by his graciousness. He was in the process of writing a book. Does anyone know what stage his book is at? I would love to read what he had to say. My dear Marc, rest in peace. You will be greatly missed.
DH 58 4/11 st 4 SRC CC
Lymph, peri, lung
4/11 colon res
5-10/11 FLFX, Av, FLFRI, Erb
11/11 5FU Erb
1/12 PET 2.4 Max act.
1/12 Erb
5/12 CT ext. new mets
5/12 Xlri
7/12 bad CT
8/12 5FU solo
8/12 brain met
9/12 stop tx
11/4/12 finished race,at peace

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Re: Our dear Marc (lohidoc)

Postby pollo65 » Tue Oct 21, 2014 8:14 am

So sad to read this, Marc was a brilliant man and a beautiful writer. I am sure his spirit is soaring!
Pollo 65
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
chemo break

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Re: Our dear Marc (lohidoc)

Postby BrownBagger » Tue Oct 21, 2014 11:15 am

Thanks, Maia. Not what I wanted to hear, but I'm glad you were kind enough to keep us informed.

Marc was a very special guy.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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Joined: Fri Feb 06, 2009 10:07 am

Re: Our dear Marc (lohidoc)

Postby ams5796 » Tue Oct 21, 2014 11:41 am

Very sad to read this. He will be greatly missed.

Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

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Location: Montreal, Qc, Canada

Re: Our dear Marc (lohidoc)

Postby violeta_k » Tue Oct 21, 2014 11:57 am

Oh, Maia, so heartbreaking to hear this.
I can vividly remember the first time I read his blog, like Oneeyeddog said, in one run, I cried and laughed for a while after... The poetry, the humor, the depth, the rationality, the hope that ultimately transpired through... Brilliant writer, and a man I would really have liked to meet personally. I look at life, death, cancer, health care, in such more nuanced ways because of him. It's still amazing for me, how people that are physically so distant can touch us so deeply and so authentically...
I miss Marc.
Caregiver to mom, 67, CC Stage IIIC
Diagnosed CC May '13
Hemi-colectomy June '13
FOLFOX finished Feb '14
recurrence in lungs, small met treated with SBRT Nov '14
local recurrence in abdominal wall, removed with surgery, March '15
clean CT scan May '15

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Re: Our dear Marc (lohidoc)

Postby janderson » Tue Oct 21, 2014 12:44 pm

I am so sorry to hear this.
DX 10-05 stage IV
liver resection 12-05 Folfox1-05 to 7-06
Liver resection 8-07 Folfiri 9-07 to 3-08
Liver resection 12-11
Recurrence 2/7/2014, liver, chestwall mets, 16 rounds chemo
7/3/14, y90 radioembolization, steady shrinkage
12/8/14, cryoablation to liver and chest wall
6/1 to 6/26 SBRT radio surgery
7/2 more cryo ablation to right lung
7/16 lung infection drain tube installed
9/4 chest wall resection to remove 2 ribs

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Re: Our dear Marc (lohidoc)

Postby Maia » Tue Oct 21, 2014 1:31 pm

Oneeyeddog wrote: he was not afraid to embrace the dark side of cancer. He didn't fall into these easy cancer cheerleady cliches and, despite his wry tone, I always found that by shedding light on these dark places, his writing was actually remarkably optimistic and full of hope.


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Re: Our dear Marc (lohidoc)

Postby bitchslapped » Tue Oct 21, 2014 1:44 pm

Offering my most sincere condolences to the family & friends of lohidoc. To his children...his legacy will live on in you. And to you Maia for your heavy heart, streaming tears no doubt, while writing a beautiful tribute in his honor. Thank you for including us newcomers. I too had run across some of his postings while purusing the site & was hoping he would post again sometime. His postings drew you in.

DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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Re: Our dear Marc (lohidoc)

Postby elise » Tue Oct 21, 2014 4:47 pm

Marc's words bring tears to my eyes. So true, sharp. You're a beautiful soul and you will be missed.

(((((HUGS))))) to his family in this difficult times.

Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
Feb - NED
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
Ap, Oct - NED
Mar - NED

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barbara jayne
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Re: Our dear Marc (lohidoc)

Postby barbara jayne » Tue Oct 21, 2014 6:23 pm

Incredibly sad to read this,
I loved Marc's blog, he created his own wonderful & unique atmosphere for the reader, I always imagine his sitting on his
porch at peace with the world.... glass in hand. He will be sorely missed by all who loved him, he was a special human being.
Thank you Maia for letting us know.

DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
13 years NED
Facebook user name,
Barbara Allen https://www.facebook.com/barbara.allen.927

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Re: Our dear Marc (lohidoc)

Postby jean60 » Tue Oct 21, 2014 7:01 pm

This is such sad news. As with so many others, I was touched to the core by his writing.

Dx Rectal Cncr 5/12
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13

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Location: N California

Re: Our dear Marc (lohidoc)

Postby andy21 » Tue Oct 21, 2014 7:10 pm

After the tears have dried and the goodbyes have been said, all we have to hold onto are the memories that we’ve shared in the forum of who have passed, this is what keeps them alive in our hearts and in our minds, and they will continue to live on, through us.
Lohidoc was along with Gaelen and Karmel, one of the finest brains on this board.
Caregiver: To 67 Yr father
diag. Stage IV, 5/12, liver mets
6 cycles Xelox/Avastin, Start 06/12
Stage 1 of Two Stage Resection Surgery in Dec, 12. 2nd line fails.
T Cell Trial May-Jul, 2013
Becomes a Heavenly Angel in August, 2013

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Re: Our dear Marc (lohidoc)

Postby mackswife » Tue Oct 21, 2014 8:53 pm

Marc had been very much on my mind during the past few weeks. I'm glad to hear that he was with his family during his last days, as was able to share an important milestone with his son. RIP Marc.
Husband IIIC;
7/12 - resection; 12 rounds folfox
CT/PET scans 4/13, 9/13 - NED
CT scan 3/14 - liver/LN mets
5/2/14- failed liver resection - peri. mets.
6 rounds of iri/avastin
8/26/14 - failed liver resect/HIPEC. dse. progression
9/14 - 3/15 - progression on chemo
3/23/15 - treatment stopped; working the bucket list

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Rob in PA
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Re: Our dear Marc (lohidoc)

Postby Rob in PA » Tue Oct 21, 2014 9:55 pm

Godspeed Doc. You will be missed around here.
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

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Location: Ontario, Canada

Re: Our dear Marc (lohidoc)

Postby Cb75 » Wed Oct 22, 2014 9:18 am

Thank you Marc <3

Maia, I am sorry for your loss as well, I know, and as anyone can tell form your post, that you and Marc were close. xo

39y female Stage IV
diagnosed April 2012
sigmoid resect May 2012
liver resect Aug 2012
Folfox Oct 2012
lungs Sep 2013
R and L laser lung resection Nov 2013/Feb 2014
FOLFIRI and Avastin Apr 2014 ongoing...

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