Surgeon For Port Placement

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justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Surgeon For Port Placement

Postby justin case » Sat Oct 18, 2014 7:10 pm

So, my wife had propofol this morning not propanol, with her endoscopy. I got slightly confused as I see propanol daily. I can only afford propofol when insurance might cover a portion. So be it, I don't live in Canada, and health insurance isn't free in America. Those in America without insurance, are seldom offered the choice of a port, and some are not offered chemo.
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Surgeon For Port Placement

Postby NWgirl » Sat Oct 18, 2014 7:15 pm

I should have noted that this PA worked in the Cardiovascular Unit in the hospital.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

sadysue
Posts: 986
Joined: Tue Aug 02, 2011 6:59 pm
Location: Charleston, TN

Re: Surgeon For Port Placement

Postby sadysue » Sat Oct 18, 2014 7:22 pm

I am beginning to think that you are just playing with us and not really looking for help or answers. Seriously, where do you come up with this stuff? :roll:
Rectal dx 4/2011 (Stage 3B - T3N1M0)
5FU/Rad - daily/6 wks ending 6/2011
Surgery 8/19/2011
Finished 8 rounds Folfox 2/2012
Ileo reverse and port out 3/2012
NED

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Sharon Brent
Posts: 288
Joined: Mon Oct 06, 2014 5:19 am
Location: London England

Re: Surgeon For Port Placement

Postby Sharon Brent » Sat Oct 18, 2014 7:30 pm

Hi,

I have seen that Meatie does ask a lot of questions, and I only know too well that sometimes as a caregiver you can feel a bit helpless and lost for answers, it helps to get feedback from other people that are going through the same things.

But one thing that must be pointed out, if we knew your age, even roughly it is easier to understand where you are coming from, New Kid on the Block, In your Thirties and rocking or a chilling OAP, this is a very Important piece of imformation that will help everyone, Help you more like Bitchslapped pointed out.

By the way My husband had a Picc Line Inserted on Thursday and is currently having a half dose chemo infusion and hopefully can come hope tomorrow :) Yipeeeee

Much Love and Kisses
DH, 47yo, Dx Stg IV, mCRC, lvr, lng 1/14, Tx Capeciabine 9 rnds
Children 5 & 1
DH 48th Birthday 6 November in Hospital
Home palliative care on 12 November 2014
Called back to Jesus 4pm 15 November 2014
Life Celebration in Nigeria 8 January 2015

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: Surgeon For Port Placement

Postby peanut_8 » Sat Oct 18, 2014 7:39 pm

sadysue wrote:I am beginning to think that you are just playing with us and not really looking for help or answers. Seriously, where do you come up with this stuff? :roll:


I think this has a lot to do with the replies he gets. If only I knew how to post pics. There are so many good images for internet troll. :roll: 8) :shock:
random internet poster
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: Surgeon For Port Placement

Postby peanut_8 » Sat Oct 18, 2014 7:40 pm

Sharon, I am so happy to hear your DH is getting chemo, and may be coming home soon. Enjoy your time together, and with the 2 darling girls.

peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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Sharon Brent
Posts: 288
Joined: Mon Oct 06, 2014 5:19 am
Location: London England

Re: Surgeon For Port Placement

Postby Sharon Brent » Sat Oct 18, 2014 7:45 pm

peanut_8 wrote:Sharon, I am so happy to hear your DH is getting chemo, and may be coming home soon. Enjoy your time together, and with the 2 darling girls.

peanut


Hey thanks a lot for your best wishes, I am so excited that my DH might come home tomorrow, hes been in hospital for 15 Days
DH, 47yo, Dx Stg IV, mCRC, lvr, lng 1/14, Tx Capeciabine 9 rnds
Children 5 & 1
DH 48th Birthday 6 November in Hospital
Home palliative care on 12 November 2014
Called back to Jesus 4pm 15 November 2014
Life Celebration in Nigeria 8 January 2015

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CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

Re: Surgeon For Port Placement

Postby CRguy » Sat Oct 18, 2014 8:33 pm

peanut_8 wrote:
sadysue wrote:I am beginning to think that you are just playing with us and not really looking for help or answers. Seriously, where do you come up with this stuff? :roll:


I think this has a lot to do with the replies he gets. If only I knew how to post pics. There are so many good images for internet troll. :roll: 8) :shock:
random internet poster

Please take this as just a gentle response from someone who has been through a shitload of cancer wars .. personally, a caregiver ....personally having lost two loved ones, and a Stage IV survivor myself ...7 years and counting .... AND a survivor of an ARMAGEDDON of online flame wars including legal harrassments and contacting DHS issues :twisted: ..... AND nuking trolls the first few months on this forum back in 2008 !

It is really easy to attack and chastise someone whom "WE" think "WE" know is doing such and such.
BTDT many times and it never turned out well !!! :shock: :shock: :shock:

TRUTH : WE really don't know shit about what someone else is actually thinking or feeling.
DARE : Let them be who they are and weigh into the discussion to help or " Let It Go " ... my granddaughter's fave song right now !

SO.. if you think someone is a troll : report the post, notify the Mods and we will deal with it.
If you think you really don't like someone or their posts ..... DON'T read them .... move on to more positive things.
IF you suspect someone IS a troll .. what they want is attention ... SO maybe don't give them any ??????? Don't react ?????
Admins / Mods can track and nuke them .... BTDT !!!! MANY times ...... :mrgreen: :mrgreen: :mrgreen:

Life is too short and cancer is too serious for us to waste any energies on messing with each other.

BTDT.
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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meatie
Posts: 419
Joined: Wed Aug 20, 2014 8:13 am
Location: San Jose, CA

Re: Surgeon For Port Placement

Postby meatie » Sat Oct 18, 2014 11:36 pm

@bitchslapped
I am in the mid 30s.

As for why we didn't ask the nurse or doctor more questions, sometimes we feel that they don't want to be bothered too much unless there is a monetary incentive. When we try asking questions over the phone, they always suggest scheduling an office visit to talk face-to-face, so they can charge us an office visit fee. At many office visits, the doctor always recommends buying health supplements from them. "Cash-balance-billing" (where the doctor requests off-the-books cash payments in addition to insurance payments, deductibles, and copays) is also common. The surgeon that did the colon resection for my mother has hinted at a "small" under-the-table cash payment for his services, even though the insurance already paid him. The surgeon originally billed us $7000, but in-network discounting forced him to settle for $2000 from the insurance. Even though technically (legally?) he has been paid in full, he still wants another $1000 cash as reward for doing such a good job (I do admit that my mother has had, so far, very few complications other than frequent bowel moments). So, where I live (sf bay area) the doctors are not always the most approachable unless we are ready open our wallet. That's why I have to search for answers from sources other than our doctors.
Last edited by meatie on Sun Oct 19, 2014 2:14 pm, edited 2 times in total.
Mother DX @59 8/14
cln+lvr res 9/14, stage 4
FOLOX+Avs 12-rd 10/14 to 4/15
Reoccurrence, KRAS mutant 11/15
Folfiri 18-rds 11/15-8/16
FOLFIRI with Ramicirumab 28-rds 8/17-9/18
Regorafenib 10/18-10/19
Lonsurf 10/19 onward
Folfox rechallenge 05/20
Regonivo (Opdivo+Stivarga) 08/20
External Peace 09/12/2022

megan120
Posts: 127
Joined: Mon Jun 16, 2014 10:54 pm

Re: Surgeon For Port Placement

Postby megan120 » Sat Oct 18, 2014 11:44 pm

You need a new oncologist if they will only talk to you after getting a copay. Both my oncologist and my surgeon have given me their cell phone numbers and told me to call them any time.
36 year old mama to 3 (8,5,3)
Dx May 2014
Stage IV cc with met to cervix
2/134 pos LN
partial colectomy with temp ileostomy
folfox with avastin 6/14
Oct 14, hyst-mets to uterus, rt ovary implants
1/6/15 6 rounds of folfox
5/4/15 done with 28 tx chemo-rad
7/24/15 completion colectomy, NED!

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mstults
Posts: 1327
Joined: Fri Nov 30, 2012 11:23 am

Re: Surgeon For Port Placement

Postby mstults » Sat Oct 18, 2014 11:45 pm

I understand the idea of not answering questions without an office visit, but I'd report any Dr that asked for additional cash payments. I'd also find a Dr that charges a reasonable fee.
Male Age 53. Dx CC with numerous liver mets 6/23/12. Colon res 6/24/12. Started folfox 7/24/12. Added avastin 8/27/12. CT 12/27/12 still showing shrink. Took 17 rounds of FOLFOX. Then 5-FU + Avastin. Switched to Irinotecan for 1 yr. CEA rose to >400. Switched to Vectibix 2/18/15. CEA decreasing. Scans show some growth in liver mets. Lung Mets stable to shrinking.

https://www.facebook.com/michael.stults2/about?ref=home_edit_profile&section=work

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meatie
Posts: 419
Joined: Wed Aug 20, 2014 8:13 am
Location: San Jose, CA

Re: Surgeon For Port Placement

Postby meatie » Sat Oct 18, 2014 11:47 pm

If we report any doctors, we might get blacklisted and then no doctors would see my mother.
This is the curse of living in sf bay area.
Mother DX @59 8/14
cln+lvr res 9/14, stage 4
FOLOX+Avs 12-rd 10/14 to 4/15
Reoccurrence, KRAS mutant 11/15
Folfiri 18-rds 11/15-8/16
FOLFIRI with Ramicirumab 28-rds 8/17-9/18
Regorafenib 10/18-10/19
Lonsurf 10/19 onward
Folfox rechallenge 05/20
Regonivo (Opdivo+Stivarga) 08/20
External Peace 09/12/2022

alphagam
Posts: 203
Joined: Tue Jun 14, 2011 10:48 am
Facebook Username: Kathy Maine Ruess

Re: Surgeon For Port Placement

Postby alphagam » Sun Oct 19, 2014 6:40 am

I grew up in the SF Bay Area. My mother lived there until he died about four years ago. I can't begin to tell you the numbers of doctors I have personally seen in the area. Not one has ever asked for cash under the table. My mom had breast cancer, internistal lung disease, a broken pelvis from a fall, and spent more time at doctors than you can imagine!!

Again, never did a doctor do any of the things you are accusing them of. Except if we had a huge amount of questions, then we were asked to make an appointment

Please find someone who can explain the medical system in the US for you. Please get help
Dx Feb 2010 4 cm tumor, just inside rectum
EUS stated T3 tumor
2nd opinion, need better path
Mar 2010 transanal surgery. Surgery by board certified CRS found tumor only in lining
6 exams of surg site, 3 PET, 3 scopes laterNED.
Scope in Mar2015, clean colon
Next scope/test in 3 years

JoyceV
Posts: 58
Joined: Sun Dec 22, 2013 11:39 am
Facebook Username: jbrinkmannorton

Re: Surgeon For Port Placement

Postby JoyceV » Sun Oct 19, 2014 7:47 am

I also had a board certified vascular surgeon put in my port.

Joyce
9/11 Colon Resection
33 lymph nodes removed - none cancerous
Stage 1
5/13 two mets to liver
5/13 successful liver resection
NED since liver resection
12 folfox - 9 w/oxi

Val*pal
Posts: 860
Joined: Sun Feb 10, 2013 1:24 pm
Facebook Username: Valerie Barkus Kantner
Location: Metro Detroit, Michigan

Re: Surgeon For Port Placement

Postby Val*pal » Sun Oct 19, 2014 8:44 am

Meatie: Are you sure you don't live in SF Bay area, Russia??? One of my dear friends on here is from Russia and she has to pay docs under the table sometimes.
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest


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