Gratitude Thread

Please feel free to read, share your thoughts, your stories and connect with others!
teachpdx
Posts: 634
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: Gratitude Thread

Postby teachpdx » Wed Apr 15, 2015 5:49 pm

I'm grateful for Dogwood trees in full bloom. White and pink - they are glorious - takes me out of whatever bad mood I'm in immediately :D
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

behconsult
Posts: 264
Joined: Fri Jul 04, 2014 4:53 pm

Re: Gratitude Thread

Postby behconsult » Thu Apr 16, 2015 10:16 pm

I am grateful for God's Holy Spirit that opens doors for me and cleans up messes after me; some I am aware of, and many I am not. And I don't feel deserving of it.
Stage 4 Age 56 BrafV660E 5/14
spot on perit/ Right side tumor
Resctn 6/9/2014
Folfox strt 7/2014. 6 of 12 tx
Chemo induced DM2
Pet 4 mets to lung (1 cm, 6 mm) Xeloda/Avastin 9/16 to present.
Cryo-ablation to four spots- Collapsed lung/chest tube 2x
Possible local recurrence in a spot or two on PET. Stable CT

User avatar
Annemiek
Posts: 304
Joined: Tue Apr 07, 2015 4:05 am
Location: The Hague, Netherlands

Re: Gratitude Thread

Postby Annemiek » Fri Apr 17, 2015 1:42 am

I am grateful to hear the birds in the garden again announcing it's spring and seeing nature awaken after all these dreary grey days!
I am greatful for my lovely husband who would do anything for me and my beautiful daughter.
I am grateful for the deep knowledge that if I was to leave sooner than planned that they have a great relationship and will manage okay without me, I just know.
Mindyou, not planning to go anywhere for a long time. My grandmother had colon cancer at 49 years ood, in the fifties. No chemo, no tests, just an operation. She lived until her 80ties. I am grateful for having her genes!!

Annemiek

43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9

User avatar
Jacques
Posts: 678
Joined: Sun Dec 28, 2014 10:38 am
Location: Occitanie

Re: Gratitude Thread

Postby Jacques » Tue Aug 23, 2016 1:21 pm

I'm grateful for the old-timers who still come around and post messages here from time to time. These are the members that were frequent contributors here 3 or 4 years ago but who do not post much anymore. They are the members of my reference group because they were the ones who were here posting messages day and night during the time I was on active treatment and when I was browsing the various message boards for encouraging messages.

It warms my heart now each time I see one of these familiar names flash across the screen, even if it's just for a brief amount or so. It makes me feel so much at home.

AnnClare
Posts: 241
Joined: Wed Sep 09, 2015 3:31 pm

Re: Gratitude Thread

Postby AnnClare » Tue Aug 23, 2016 2:54 pm

I'm grateful for my husband, our sweet little shelter pup (whom we adopted last summer long before we knew of my Dx), and my amazing boss/friend, who has allowed me to be as flexible as necessary with my work schedule. And for my mother-in-law and the home cooked meals she provides us with at least once a week. (Even when I'm not wiped out from Tx, it's nice to not have to even think about what to make for dinner!)

I'm also very grateful for the wonderful folks on this board. Your knowledge and support are invaluable. :)
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17

User avatar
Cowgirl918
Posts: 326
Joined: Sun Jan 17, 2016 12:55 am
Location: Indiana

Re: Gratitude Thread

Postby Cowgirl918 » Tue Aug 23, 2016 6:24 pm

I am grateful for this site and the friends who teach me something everyday. I am grateful for my children and friends and for for God's love which sustains me in my darkest moments. I am grateful for warm, soft, horse muzzles that puff steam in the early dawn and brush my face like velvet. Life is good. Even here and now, life is good.
HX Colon Polyps Villious and Tubillovillous
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80%
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
7/26/2023 Neuroendocrine mass small bowel, two mesenteric lymph nodes
9/1/2023 Small bowel resection jejunum and lymph nodes removed mesentery

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Gratitude Thread

Postby midlifemom » Tue Aug 23, 2016 9:07 pm

I'm grateful for my friends - two who spent the afternoon and evening with me and made me smile frequently.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Gratitude Thread

Postby Pita » Tue Aug 23, 2016 10:42 pm

I am so grateful for my husband, he is always here for me, he cooks, he cleans, he drives me to all of my appointments and stays with me through them. I know he struggles with all of this so I force him to leave me and go play golf, spend full days with the grandkids and occasionally have a beer and a cigar with a friend.

Also so fortunate to have found this site, the members are so kind and helpful, it keeps me going and has taught me to never lose faith.
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

Soccermom2boys
Posts: 222
Joined: Tue Nov 10, 2015 10:29 pm

Re: Gratitude Thread

Postby Soccermom2boys » Tue Aug 23, 2016 10:52 pm

I am so thankful to be starting the school year like normal. I was diagnosed two weeks before school started last year and ended up just going out on medical leave until after my surgery recovery. I knew I would be in and out between radiation side effect issues and then the APR surgery was about a seven to eight week recovery and I didn't want to have my students have so much disruption academically (as a mom I wouldn't want that for my children) so I did not start back until February actually, right as I was going for my second round of chemo. So today when we had our first day back (teacher in-service) I was so happy to be back in the mix like normal. This was probably the first time as a teacher when I was genuinely happy and ready for school to start back up--we enjoy our breaks every bit as much as the students do! :D
8/3/15 Went in with a hemorrhoid, came out with a tumor
8/12/15 Biopsy from colonoscopy confirms RC (45 yrs old--zero family history!)
9/21 - 10/29/15 chemorad 28 tx (with Xeloda)
12/17/15 APR with perm colostomy
Pathology report stages me as IIIA (T2N1M0)--1/15 LN detects cancer
2/3/16 chemo port inserted
2/8-6/2/16 8 rounds of Folfox

User avatar
BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Gratitude Thread

Postby BrownBagger » Wed Aug 24, 2016 6:30 am

Dr. Kemeny and Sloan-Kettering. And, I'm grateful to Gaelen for encouraging me to go there.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

User avatar
CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: Gratitude Thread

Postby CRguy » Wed Aug 24, 2016 10:48 am

I am grateful :
to still be here,
to have met so many good folks, who are no longer with us,
to be able to support this forum so others may benefit from it, today and in the future,
for knowing the folks who are stiil here beside me,
for my family.
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

angie1975
Posts: 34
Joined: Tue Mar 01, 2016 9:30 pm

Re: Gratitude Thread

Postby angie1975 » Wed Aug 24, 2016 6:10 pm

As odd as this may sound I am grateful for my cancer journey. Before DX my life was a mess, I struggled with suicide , worry, stress and depression. It has brought me closer to my Heavenly Father and my family. God has given me immense peace through this, taken away all my worry and feats and this has opened my eyes and taught me how to appreciate and live life. So for that I am grateful. I am also truly grateful to my husband and daughter for being there for me during this journey, but most import I am grateful to be loved by my heavenly father.
Stage 3 RC, DX 9/15/15
Prospect Trial, Folfox only
Surgery 2/11/16, successful w/clean margins
1/13 nodes positive
4/11/16clean scan, NED
7/13/16, CLEAN SCAN NED
7/21/21 clean scan released by Doc
6 years NED

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Gratitude Thread

Postby LPL » Thu Aug 25, 2016 3:15 pm

I am SO Thankful for living Now when the invention Internet is for real ! and Thank You Tim Berners Lee - for making it easy for me to find info/research and support groups like Colon Club :D https://sv.m.wikipedia.org/wiki/Tim_Berners-Lee
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Gratitude Thread

Postby BeansMama » Mon Aug 29, 2016 10:21 am

I am grateful for my husband, who has been my rock through this journey. I'm grateful for my children who are the bright spots in my day.

I'm grateful for all of the amazing friends that have helped and supported our family through this rough time.

I am grateful for all of the love and care that has come from directions that I least expected.

I am grateful for the friends I have made here on colon talk. It is wonderful to have somewhere to go where others "get it" when you are having a rough time and they can share in the victories because they understand what you are going through.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

Wonderfullymade
Posts: 140
Joined: Tue Jan 12, 2016 4:33 pm

Re: Gratitude Thread

Postby Wonderfullymade » Tue Aug 30, 2016 8:54 am

I am grateful to my husband who has been my rock through all of this and continues to be so!
I am grateful to this forum who's support and love is unmatched! You all rock!
I am grateful to still be alive and to be feeling well enough to go on hikes and bike ride and do whatever I can each day!
I am grateful to my God who's love I could not fight this without!
I am grateful for each day that I get to take another breath and to be able to use that breath to try and reach others to get a colonoscopy BEFORE the ins companies deem "resonable"
I am grateful for so much more....but will spare you all at this time :D
DX 3/2015 53
Stage IVa CC w/liver met
BRAF/KRAS wild type MSI-High (MLH1, PMS2) not Lynch
Folfox 3 cycles
5/2015 ER for subtotal colectomomy due to perforated colon, ovary removed
Folfuri/Pantiumumab 5 cycles
8/2015 liver resection, gallbladder removed and new LN
10/2015 CT scan new nodes
10/2015 Pembro started CEA 2.2
5/2017 stable lung things, coltis, lymph nodes stable cea 1/2017 1.1
9/2017 NED CEA 1.1 ( stopped Pembro)
2/2019 ER for DVT/ PE
2/2019 clean CT (NED) CEA 1.1


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 59 guests

cron