HAI stopped. Wish it was better news

[chrissyrice]

Thinking about you both today.
Hope the blood transfusions helped Tracie feel a bit better and that you are able to have some quality time to just enjoy being together.

Hugs to you both and lots of prayers.
Chrissy

[Don.in.Dallas]

Paul, I love your spirit. You are making a real difference in the life of your DW. Best wishes and many victories to you! -Don

[ptfly]

I am trying.
So many promising possibilities.
Trying to focus on the best ones.
We had a nice weekend. A little walking, a little shopping and lot of cleaning for me
Labs and chemo tmrw. Then I will decide if I am going to take this trip to Asia in a couple of weeks.
She has planned a Halloween weekend for us. I love it when she does that

[Lee]

[quote="chrissyrice"]Thinking about you both today.

I too am holding you both in my thoughts and prayers.

Hoping and praying for the best for both of you!!

Lee

[Icesk8tr]

You two are so cute❤️
Good luck with your decisions.

Hugs,
Christine

[hart2hart]

Hi Paul ---

Bumping up --- How is your lovey Tracie doing?

Please know we are so hoping that you have a new plan in place.

Wished ya lived closer - We would be bringing over Pete's delicious chicken soup and biscuits!!
I'd clean-up! (LOL!)

Lots of hugs for both of you Paul!


Julie and Pete

[ptfly]

Focusing on getting her bili down. It been in the 9-10 range for almost three weeks.
Mri tmrw and hopefully a stent will be possible.
Can't do too much until we get the bile out.
Tks

[hart2hart]

Hi Paul -

How was the MRI? Hopefully, a stent was able to be utilized?
We're thinking aboutcha you both and sending our love.
Did Tracie like the pumkpin? Hope it made her smile........


Hugs,



Julie

[ptfly]

Julie,
Tracie all that you sent. Did you get her email?
Local IR's say a sent is not needed. We continue with weekly chemo and hope Bili gets down.
We go again tmrw.
Keeping our fingers crossed.
Tks for thinking of us.

[hart2hart]

Hi - Good Morning Paul -

Yup, email received! THX!

Hope you enjoy the movies! (good ones!)


XOXO,


Julie and Pete

[mymom]

Hi. I have not been on much. thinking of you guys.

[ptfly]

Basically the best I can figure from meeting with some of the best doctors after we were told MSK could not help us any longer is that my wife's liver if too damaged from the direct chemo therapy for any further treatment.
Her bilirubin has peaked at 18 and is now dropping.
Unfortunately our local oncologist gave her chemo for four weeks and then told us she had a week or two to live.
We went into the local hospital this past week for tests and the hospice team told us finally that she is not sick enough for inpatient care so we will meet with another team in the morning to discuss in home care.
Odd things about hospice is that any meds or lab work that could give you any read or hope are taken away. I have a real problem with that.
The liver expert at baylor that we met with a couple of weeks ago told me last night that this was a knee jerk reaction and she has months left in her if he had to guess.
Can't say that I have a lot of confidence in any care we have had through this cross country journey.
Her liver is in early failure mode and I am adjusting to this the best I can.
Not sure what else to say.
Paul

[so-scared]

Paul,

I can not begin to tell you how sorry I am to read this. I've been where you are and it sucks (sorry ... I can't think of a better word). Spend time, talk, snuggle, and just be. I am here if you need to talk. Hugs to both of you.

DeAnn

[ptfly]

Tk you my friend.

[Voxx66]

Oh no. I sent you a pm. I really am at a loss for words my friend.