Walk in Bayonne (Kemeny) this Sunday- Question

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mymom
Posts: 1299
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Walk in Bayonne (Kemeny) this Sunday- Question

Postby mymom » Thu Sep 18, 2014 6:39 am

Hi all. We are all getting t-shirts that have registered with the team pump it up? yes? So we will be able to pick out colon club members that way? But has everyone that has registered on here gone with the team or will there be others with no t-shirts. Just don't want to miss anyone. I will be there with my mom and sister.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023
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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Walk in Bayonne (Kemeny) this Sunday- Question

Postby juliej » Thu Sep 18, 2014 12:33 pm

I sooo wanted to be there, but I just couldn't get the logistics to work out. Have fun, and maybe I can get it to work out next year!
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1
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mymom
Posts: 1299
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: Walk in Bayonne (Kemeny) this Sunday- Question

Postby mymom » Thu Sep 18, 2014 2:03 pm

i want to meet you. what logitstics?
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023
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Kathy
Posts: 114
Joined: Sat Mar 14, 2009 8:28 pm
Location: New Jersey

Re: Walk in Bayonne (Kemeny) this Sunday- Question

Postby Kathy » Thu Sep 18, 2014 2:26 pm

In previous years, each team had a different color shirt. If this isn't so this year, perhaps Dr. K's staff could steer us to one another. in the past, they introduced patients to one another. Let's mention Colon Club to them (Trish was very helpful.) Then we can all meet. Any other ideas? Can't wait to meet everyone!

Kathy
Stage 1- resection 9/ 05
Recurrence-2/ 2008 chemo/radiation 5 FU/oxi
APR surgery 7/ 2008- Found spread to liver-Margins not clean
chemo between surgeries
Liver resection and HAI pump-11/ 08 Chemo 6 months
NED 11/08

NED since 11/2008
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pfCml73183
Posts: 653
Joined: Sat Jun 22, 2013 7:49 pm
Facebook Username: Celeste Marie Comeau
Location: FL

Re: Walk in Bayonne (Kemeny) this Sunday- Question

Postby pfCml73183 » Thu Sep 18, 2014 3:27 pm

I hope you get great weather and have a nice time.
I also hope they will send us our t-shirts.
Make us proud!
In peace, Celeste
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15
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Kathy
Posts: 114
Joined: Sat Mar 14, 2009 8:28 pm
Location: New Jersey

Re: Walk in Bayonne (Kemeny) this Sunday- Question

Postby Kathy » Sat Sep 20, 2014 7:47 am

See everyone tomorrow! How many of us are going to be there?

Kathy
Stage 1- resection 9/ 05
Recurrence-2/ 2008 chemo/radiation 5 FU/oxi
APR surgery 7/ 2008- Found spread to liver-Margins not clean
chemo between surgeries
Liver resection and HAI pump-11/ 08 Chemo 6 months
NED 11/08

NED since 11/2008
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mymom
Posts: 1299
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: Walk in Bayonne (Kemeny) this Sunday- Question

Postby mymom » Sat Sep 20, 2014 8:27 am

i will be there with my mom and sister.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023
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Kathy
Posts: 114
Joined: Sat Mar 14, 2009 8:28 pm
Location: New Jersey

Re: Walk in Bayonne (Kemeny) this Sunday- Question

Postby Kathy » Sun Sep 21, 2014 5:45 am

We will be thinking of you as we walk Christine. You will be missed.

Kathy
Stage 1- resection 9/ 05
Recurrence-2/ 2008 chemo/radiation 5 FU/oxi
APR surgery 7/ 2008- Found spread to liver-Margins not clean
chemo between surgeries
Liver resection and HAI pump-11/ 08 Chemo 6 months
NED 11/08

NED since 11/2008
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Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: Walk in Bayonne (Kemeny) this Sunday- Question

Postby Badass » Sun Sep 21, 2014 6:35 pm

Enjoyed very much the walk and the brunch today and was so glad to meet several CC'ers and their families in person! Missed you, Celeste & Pete, JulieJ and Christine!

Jane Rusuja
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)
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mymom
Posts: 1299
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: Walk in Bayonne (Kemeny) this Sunday- Question

Postby mymom » Sun Sep 21, 2014 7:37 pm

It was such a wonderful day and so amazing to meet fellow colon clubbers. Wish everyone was able to make it. So I have the team picture...perhaps someone can post??? I never can post on here.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023
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hart2hart
Posts: 798
Joined: Wed Nov 23, 2011 10:46 pm

Re: Walk in Bayonne (Kemeny) this Sunday- Question

Postby hart2hart » Sun Sep 21, 2014 8:24 pm

Ditto from Pete and Julie!

We had a BLAST on the walk and brunch.

What a fantastic turnout it was --- Meeting all you was just Wonderful!

Let's try to get together around the Holidays or in January! As Connie and Kathy said.....Maybe in Manhattan!

And yes, Christine, JulieJ and Celeste/Pete you were missed! Next year for sure!


Love you all!




Julie and Pete
Stamford, CT
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 1/2024
Hai Pump/Port Removed - 1/2020
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Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: Walk in Bayonne (Kemeny) this Sunday- Question

Postby Badass » Sun Sep 21, 2014 8:34 pm

And Paula, too! I believe it was from you that I first learned of "Dr. Beautiful!"
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)
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hart2hart
Posts: 798
Joined: Wed Nov 23, 2011 10:46 pm

Re: Walk in Bayonne (Kemeny) this Sunday- Question

Postby hart2hart » Wed Sep 24, 2014 6:35 pm

Bumping up for mymom who has a team pix to post.......

Brownbagger, Julie J, Kathy can someone help mymom?

BTW, our team,"I'm Pumped" won the trophy for the MOST team members!

Dr. K and her family were on our team!! It was a blast!




Julie and Pete
Stamford, CT
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 1/2024
Hai Pump/Port Removed - 1/2020
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WifeOfMike
Posts: 1495
Joined: Thu Dec 20, 2012 9:53 pm
Facebook Username: https://www.facebook.com/vbass123
Location: San Diego, California

Re: Walk in Bayonne (Kemeny) this Sunday- Question

Postby WifeOfMike » Wed Sep 24, 2014 6:45 pm

SOUNDS FUN!!!
WE want Pictures!
I am so jealous of you getting to meet other CC members!

At least I get to SEE some of you now that we have a group Connection HERE & FaceBook!!!
Isn't ANYONE ever in San Diego?????? :roll: :roll: :roll:
More Facebook Connections???
Vicki
Bad Ass WIFE
Hubs: CRC IVA,T3, N0, M1A
Resect/LN Mets 10/12
Folfox4/Avastin 11/12-5/13
Folfiri/Erbitux 6/13-10/13
Stivarga 12/13-4/14
Trial 4/14-/14
Trial 8/14-11/14
HOME Hospice 11/17/14
Guardian Angel 1/1/15
Cost of HOPE? PRICELESS
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