missing you, tchan8888

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skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

missing you, tchan8888

Postby skypup » Mon Sep 15, 2014 2:52 pm

Hey Tom,

Thinking of you and hoping you can check in soon!

skypup

nkoske
Posts: 442
Joined: Fri Feb 22, 2013 2:00 pm
Location: California

Re: missing you, tchan8888

Postby nkoske » Mon Sep 15, 2014 3:51 pm

Yeah I thought about him last week as well. I follow his blog on my RSS aggregator and he hasn't posted on his blog in some time (which he did pretty regularly). Hopefully just busy with life.
Nick, DX @ age 34, IIIB Rectal Cancer 10/2012
ChemoRad IMRT 11/2012
Laparoscopic LAR 1/2013 (No Ileo)
Post Surgery Path IIIB (2/15 LN)
Chemo 2/2013 (XelOx)
Currently NED, Graduated from Med Onc 10/2017

nkoske
Posts: 442
Joined: Fri Feb 22, 2013 2:00 pm
Location: California

Re: missing you, tchan8888

Postby nkoske » Mon Sep 22, 2014 5:48 pm

Nick, DX @ age 34, IIIB Rectal Cancer 10/2012
ChemoRad IMRT 11/2012
Laparoscopic LAR 1/2013 (No Ileo)
Post Surgery Path IIIB (2/15 LN)
Chemo 2/2013 (XelOx)
Currently NED, Graduated from Med Onc 10/2017


Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: missing you, tchan8888

Postby Lydia666 » Tue Dec 15, 2015 10:54 pm

What happened to tchan?
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

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tchan8888
Posts: 208
Joined: Mon Mar 25, 2013 8:41 pm
Location: San Francisco Bay Area

Re: missing you, tchan8888

Postby tchan8888 » Wed Dec 16, 2015 1:53 am

I am still around, just have been lurking and not posting. Have not been in the mood to participate.

Overall, hit my 3 year anniversary. First line (FOLFIRI) no longer effective and Second Line (FOLFOX) had to stop because of neuropathy. Thank God was accepted for pembrolizumab clinical trial. First session was fine but no visible sign yet that it will work as lymph nodes are still swollen.

In good spirits and was really cheered up by the shout out!

Tom
Tom, 49 now
12/12 Right Hemicolectomy 2X (29 days in hospital)
12/12 Stage IV: multiple distant LN; no organs
20X: FOLFIRI (stopped working)
8X: 5FU
8X: FOLFOX and Avastin
2016: Clinical trial pembrozilumab MSI high

stu
Posts: 1367
Joined: Sat Aug 17, 2013 5:46 pm

Re: missing you, tchan8888

Postby stu » Wed Dec 16, 2015 8:33 am

Great news. I had been thinking about you too. Hope your handling this new treatment ok.
Keep in touch
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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CRguy
Posts: 10210
Joined: Sun Feb 10, 2008 6:00 pm

Re: missing you, tchan8888

Postby CRguy » Wed Dec 16, 2015 12:52 pm

Good to hear from you my friend.

Even if you don't post a lot right now ...READ a lot ..... DK37 Science Posts List
especially from our other Tom (DK37) who posts here regularly about all the latest advances in the immunotherapy world.

Harmony to you
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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O Stoma Mia
Posts: 1600
Joined: Sat Jun 22, 2013 6:29 am

Re: missing you, tchan8888

Postby O Stoma Mia » Fri Dec 18, 2015 1:11 pm

Tom - Thanks for checking in! I think about you often.

Any chance that you might be traveling abroad for the holidays, or will you be staying at home now because of your clinical trial?

Merry Christmas and Happy New Year to you, your Princess, and "The Team".


Your Princess and "The Team":

Image

Image

Image

Image

User avatar
O Stoma Mia
Posts: 1600
Joined: Sat Jun 22, 2013 6:29 am

Re: missing you, tchan8888

Postby O Stoma Mia » Mon Dec 21, 2015 3:57 am

tchan8888 wrote:[...] Thank God was accepted for pembrolizumab clinical trial. First session was fine but no visible sign yet that it will work as lymph nodes are still swollen...

Tom - I looked up the pembrolizumab trial for colorectal cancer, and if I'm not mistaken this trial is only available in two centers: the Midwest, and the East Coast.

It looks like a good clinical trial protocol for you. You will be sure to get the drug (not placebo) and the dosing level will be set at an effective but not toxic level for the duration of the trial. I hope it starts to show results soon. The protocol says that they check for progress every 8 weeks.

Does this mean that you have moved away from the West Coast in order to participate in this trial? I hope things are going well.

Best wishes for the New Year.



Edited: To correct the link to the pembrolizumab clinical trial
Last edited by O Stoma Mia on Wed Dec 23, 2015 4:13 am, edited 3 times in total.

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tchan8888
Posts: 208
Joined: Mon Mar 25, 2013 8:41 pm
Location: San Francisco Bay Area

Re: missing you, tchan8888

Postby tchan8888 » Tue Dec 22, 2015 3:03 am

OSM,

Have not moved. Am at UC San Francisco. They were given slots and I received one. Am unaware of any geographic regions. This trial just opened up in November.

Will let you know after first scan in February.

Blessings,

Tom
Tom, 49 now
12/12 Right Hemicolectomy 2X (29 days in hospital)
12/12 Stage IV: multiple distant LN; no organs
20X: FOLFIRI (stopped working)
8X: 5FU
8X: FOLFOX and Avastin
2016: Clinical trial pembrozilumab MSI high


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