News...Some bad, some good.

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chixter
Posts: 121
Joined: Wed Jun 25, 2014 5:31 pm

News...Some bad, some good.

Postby chixter » Thu Sep 11, 2014 6:13 pm

Friends, I thank you all from the bottom of my heart for your positive energies. Especially our member kirac who was working to try to make the Tom Petty concert even more special. Alas, although the mind and Spirit are willing, Katies body is ruling the moment. She has a wonderful Hospice team, her lead nurse not too much older than Katie. She is enjoying great attention from these folks. Her biggest issue are the abdominal masses that now are at unbelievable size. Scans and ultrasounds indicate very little in the way of fluid, so no draining for some relief is possible. She cannot remain comfortable sitting down more than 20 minutes or so. Pain management is kept at bay now with a morphine pump at considerable dosages. She is ok while laying down for the most part. So unfortunately the concert will be a no-go for her.

On the good side, my little girl got married!!!!! She and her long time BF Bruce, who has spent every minute outside of his job with her, have made their dream come true. In spite of this cancer, evil and vile as it may be, LOVE still prevails. I had counseled Bruce a few weeks ago on assuming such a responsibility with a sick girl. He just wishes to fulfill his dream and her dream while he can...so like exaussie once told me 'damn the torpedoes, full speed ahead'. So we did a small ceremony at home yesterday. Just some family, close friends, and our animals. Even our chickens came by to 'swing' a bit.

I stumbled upon this later on..........

“To be deeply loved, means a willingness to cut yourself wide open, exposing your vulnerabilities... hopes, hurts, fears and flaws. Hiding behind the highlight reel of who you are, is the real you and that person is just as worthy of love. There is nothing more terrifying or fulfilling, than complete love, it's worth the risk... reach for it.”
― Jaeda DeWalt

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ImageFather/Caregiver to beautiful 25 y/o daughter with mCRC Stg 4

JoyceV
Posts: 58
Joined: Sun Dec 22, 2013 11:39 am
Facebook Username: jbrinkmannorton

Re: News...Some bad, some good.

Postby JoyceV » Thu Sep 11, 2014 6:28 pm

I have no other words other than she looks absolutely gorgeous. Your family's strength is so amazingly unbelievable. I wish you all peace. I've not posted before because I just do not know what to say and others are so much better at knowing what to say.
Love, prayers and so much respect,
Joyce
9/11 Colon Resection
33 lymph nodes removed - none cancerous
Stage 1
5/13 two mets to liver
5/13 successful liver resection
NED since liver resection
12 folfox - 9 w/oxi

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Voxx66
Posts: 1844
Joined: Wed Jul 24, 2013 10:22 pm
Facebook Username: Michael Void Ward

Re: News...Some bad, some good.

Postby Voxx66 » Thu Sep 11, 2014 6:30 pm

Sorry about the concert but I am very glad to see her live out a different dream. She looks so happy. And much respect to her boyfriend for standing by her in her time of need. That is true love.
DX and resect 10/2012 age 46
Stage IIa CRC
liver mets both lobes 8/2013
CEA 28
FOLFOX + Avastin 8/26/13 3 rounds
Folfox only 3 rds + rd 8
platelets low round 7,9,10 5FU only
1/14 CEA 1.0 y90
5fu
10/14 mets lung and peri
1/15 Folfiri

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: News...Some bad, some good.

Postby skypup » Thu Sep 11, 2014 6:32 pm

Yes, some of the news is very bad, but what beautiful news about the wedding. I am happy for your entire family, chickens included. Love is the key.

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: News...Some bad, some good.

Postby Stanfordmom » Thu Sep 11, 2014 6:32 pm

Congrats to your girl and her new husband for getting married! what a beautiful couple. I cried and smiled for your girl and your family.

Sorry that she cannot make the concert. Wishing her upcoming time full of happiness, peace and comfort.

Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

carrie
Posts: 140
Joined: Fri May 31, 2013 7:03 pm

Re: News...Some bad, some good.

Postby carrie » Thu Sep 11, 2014 6:36 pm

Please know that your beautiful daughter and you and your family are in my thoughts. I really don't know what to say to you other than my heart goes out to you and I wish for comfort and peace for you at this difficult time. Thank you for the lovely wedding photos you have shared....Have both sad and happy tears for you right now. Love to you all.
Karen oxoxox
Diagnosed March 3/2013 Rectal cancer
T1N0MX 15 nodes biopsied, none positive
Lymphovascular invasion present/moderate
July 9/2013 ultra-low anterior resection
Temp ileostomy
Rectum removed
2 liver lesions- probable cysts
Probable cyst on spleen
Hernia.

Teddi
Posts: 241
Joined: Thu Jul 31, 2014 1:44 pm
Facebook Username: teddimcfarland

Re: News...Some bad, some good.

Postby Teddi » Thu Sep 11, 2014 6:38 pm

The strength of her spirit is amazing. She is a beautiful bride. Since it was their wish to be married, I am so glad that you got to share that milestone with them. Oh how I wish things could be different.

Teddi
47 at diagnosis
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15

Valorie
Posts: 365
Joined: Mon May 05, 2014 6:33 am

Re: News...Some bad, some good.

Postby Valorie » Thu Sep 11, 2014 6:41 pm

I am so glad that Katie got to experience joy in the middle of such trying times for her. The love and strength you all have leave me almost speechless. I am truly in awe and inspired by Katie and her family. I pray daily for peaceful, pain free days for Katie.

Thank you for posting the lively pictures.

Valorie
Age 53 dx 2a CC 0/21 LN Oncotypedx score: 11
Sigmoidectomy 5/8/14
MSS No lymphovasular involvement,
6/14 PET - NED, 12/14 CT NED, 7/15 CT - NED
6/14-12/9/14 Xeloda 8 cycles
2/12/15 incisional hernia repair - Boooo!

janklo
Posts: 1567
Joined: Wed Mar 03, 2010 11:10 pm
Facebook Username: JanetKlostermann

Re: News...Some bad, some good.

Postby janklo » Thu Sep 11, 2014 6:44 pm

What a wonderful guy Bruce is! Not a lot of men have the strength of character to stand by a woman who is ill. I'm very impressed by him and I think Katie looks fabulous. I'm so glad your family got to experience this day.

My daughter had the same abdominal tumor situation. She liked diladid better than morphine but trust me, there is always a higher dose so Katie need not suffer pain. My heart goes out to your family.
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012

sadysue
Posts: 986
Joined: Tue Aug 02, 2011 6:59 pm
Location: Charleston, TN

Re: News...Some bad, some good.

Postby sadysue » Thu Sep 11, 2014 6:52 pm

Wow, just wow. Ya'll are just amazing. Peace and best wishes to the bride and groom and congratulations to the rest of the family!
Mary Ann
Rectal dx 4/2011 (Stage 3B - T3N1M0)
5FU/Rad - daily/6 wks ending 6/2011
Surgery 8/19/2011
Finished 8 rounds Folfox 2/2012
Ileo reverse and port out 3/2012
NED

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Cherie
Posts: 590
Joined: Fri Jul 12, 2013 11:20 am
Facebook Username: cherie
Location: New Zealand

Re: News...Some bad, some good.

Postby Cherie » Thu Sep 11, 2014 7:00 pm

Thank you for sharing. A beautiful girl on a beautiful day.
36Yo F
2000 UC
2013 Stage 4 CC 15/126 LN spread to the omentum
June Collectomy all visible cancer removed
July Folfox + Avastin
2/14 clean scan
8/14 Ileo-anal pouch surgery still NED
1/15 Emergency illeostomy spread to peritoneum and small bowel

smudgesicle
Posts: 125
Joined: Fri Mar 07, 2014 3:23 am
Facebook Username: prue.robson
Location: Australia

Re: News...Some bad, some good.

Postby smudgesicle » Thu Sep 11, 2014 7:03 pm

What beautiful newlyweds. It's lovely to see Katie enjoying her day.
dx May '13 @ 29
RC T2N1bM0, Stage IIIA
7/13 chemoradiation
9/13 ULAR (pCR) & right hemi due to large "precancerous" appendiceal tumour, temp. ileo
11/13-5/14 5FU, 24 rounds
1/14 SBO & takedown
8/14 NED
9/14 perm. colostomy

Val*pal
Posts: 860
Joined: Sun Feb 10, 2013 1:24 pm
Facebook Username: Valerie Barkus Kantner
Location: Metro Detroit, Michigan

Re: News...Some bad, some good.

Postby Val*pal » Thu Sep 11, 2014 7:36 pm

Congratulations to your daughter who looks absolutely lovely! Her husband is lucky to have her - and your family.

I LOVE the photo of the chicken peeking in! What a great wedding.

Peace to you, your family, and your daughter.
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest

WifeOfMike
Posts: 1495
Joined: Thu Dec 20, 2012 9:53 pm
Facebook Username: https://www.facebook.com/vbass123
Location: San Diego, California

Re: News...Some bad, some good.

Postby WifeOfMike » Thu Sep 11, 2014 7:38 pm

Congratulations on your daughter Katie & Bruce's wedding
I am so glad to see a stand up guy join a stand up family
I had to laugh at the Chickens.... wondering what went thru their minds

My heart is with you & your family. Kiddo- you are a man among men
Your poem is lovely
Love to all,
Vicki
Bad Ass WIFE
Hubs: CRC IVA,T3, N0, M1A
Resect/LN Mets 10/12
Folfox4/Avastin 11/12-5/13
Folfiri/Erbitux 6/13-10/13
Stivarga 12/13-4/14
Trial 4/14-/14
Trial 8/14-11/14
HOME Hospice 11/17/14
Guardian Angel 1/1/15
Cost of HOPE? PRICELESS

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: News...Some bad, some good.

Postby Bev G » Thu Sep 11, 2014 7:39 pm

Andrew Lloyd Weber:

"Love never dies
Love will continue
Love keeps on beating
When you're gone

Love never dies
Once it is in you
Life may be fleeting
Love lives on
Life may be fleeting

Love lives on"


Congratulations, Greg. Katie looked just stunning, and so happy, on her wedding day. Bruce is family now too. Please tell him. We're here if he needs or wants us.

Love you, Greg.

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now


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