September Scan Buddies

[tdsamal]

Skypup, no ongoing chemo for me. I finished in Feb. and the tumor was still there so did another round of SBRT in March. After that I was admitted to the hospital in horrible pain in my left lung(the one they did SBRT on). I had a difficult time coming back from that. My main side effects are joint pain in the mornings along with headaches and neuorpathy in my big toes and fingers. I am so tired all of the time that I can't get much of anything done. It's really all I can do to get up in the morning and take my shower. I have to rest for about 2 hours before I even think of doing anything. I did start acupuncture about a month ago. I go 3 times a week and it does seem to help a little. The only problem is that my insurance doesn't cover it so I'm having to pay for it out of pocket. I'm going to continue as long as I can but I wont be able to do it forever.I'm happy with stable but terrified that it wont stay that way.
Tammy

[skypup]

Ah, Tammy, I remember now. Chemo brain strikes again. I'm sorry for the rough go. May you have stable for a long time and get more good days!

[Kiwi Debz]

Unplanned PET scan coming up on Saturday.

Had CT two weeks ago as had a little bit of discharge out of my surgical wound and they wanted to make sure no fluid build up. That was all good but something on the liver. They are not sure if it is post surgery trauma or new met

So soon after mammoth surgery and only one round of chemo will be devastating

So today onc. said We will do PET and see .... Hoping and praying and maybe these chickens might come in handy

On the upside today I felt the best I have felt since surgery in July ..... Almost normal and it felt sooooo good.

Deb

[nbrandt]

Glad to hear the good news for those who have gotten results. I am scanning September 17 with results on the 18th. Praying for good news . Thanks for sharing good news it helps reduce my anxiety.
NB

[laneylou]

Just finished at the onc. CEA not back yet but CT was whistle clean - no thingies to watch, just the boring gallstone and post-surgical/radiation tissue changes that were there last time. This was my 2 year scan so it was kind of a big one.

So happy and relieved! Gonna party tonight

Praying hard for great results for everyone coming up.

[Ehut]

Had my scan yesterday morning and picked up the report in the afternoon. No evidence of disease. 6 more months of freedom!

[ranger]

I'm going to talk w my doc, and go ahead and scan. Might as well know what, if anything's going on.

[pfCml73183]

Now Pete has a CT scan and petscan scheduled for the 22nd.
Is this a normal? I don't recall him going through this before now. He is 6 months into HAI chemo and systemic.
Last week his CEA finally went down 4.4 points. He is gaining a lot of weight and is having trouble getting a deep breath he says. I am not sure if it is the weight increase causing that. His color is good.
Thank you, Celeste

[Sharona]

Chest and abdominal CT on the 29th, have not yet scheduled appointment to see the oncologist. I'm not looking forward to this one because it will tell if the Stivarga is working. If not,where do www go now? CEA has jumped from 24 to 40 but could be because of brain tumor.
Thinking of all of you!
Sharon

[skypup]

Had my scan yesterday morning and picked up the report in the afternoon. No evidence of disease. 6 more months of freedom!

Yay for you!!!

[skypup]

Just finished at the onc. CEA not back yet but CT was whistle clean - no thingies to watch, just the boring gallstone and post-surgical/radiation tissue changes that were there last time. This was my 2 year scan so it was kind of a big one.

So happy and relieved! Gonna party tonight

Praying hard for great results for everyone coming up.

Wow, more good news! Yay!!!

[juliej]

Tammy, good to hear things are stable, but wish they could find the source of your fatigue and joint pain!

Andre, NedPlease, mymom, Laneylou, and Ehut - congratulations!

Cynthia, how did it go? I'm hoping to hear good results from your scan on the 10th!

Swinging chickens and praying hard for the best results possible for everyone coming up:

jgall (Chris) - sometime in the week of September 8-12?
Kiwi Debz - September 13
Cmrf35 (Colleen) - September 16
nbrandt - September 17
stephenlamb (Ashley) - September 17
Skypup - September 18
kiwiinoz - September 22
Celeste (Pete) - September 22
kpjpmom - September 23
DBF - September 25
llupp - September 25
Sharona - September 29
BrownBagger - October 6

[skypup]

Julie, thanks for the list!!!

Good luck everyone!

[Kiwi Debz]

My scan postponed until 19th due to an insurance mess up .... Oh well, I wait!

Tough week for me. It would have been my sons birthday tomorrow. He would have been 20 and it is the anniversary of his death on the 21st. Always a sad time of rememberance for me. You get through but you never get over it. He was a brave beautiful boy.

And then chemo tomorrow and scan Friday.

I would like to crawl into my warm bed and stay there until this week is done.

Deb

[Jack&KatiesMommy]

Thanks for the mention, Julie! My Scan and appt with Dr. K was postponed due to some travel issues that I had. I go in for my scan on September 17th now (tomorrow) and hoping for the best. Thanks for thinking of me. I will let you know how it goes tomorrow.
Cynthia