time to look at hospice

[cookkie71]

We got the phone call today, the one we’ve been dreading...

My uncle had been doing well for so many years! Recently, however, his breathing has been more pronounced, he gets winded easily, his bladder has been keeping him up at night, he has lost weight. All this aside, he has seemed so good! He has been so happy, walking daily, visiting friends, loving getting to live his life.

We’ve done the best we could to let him guide us on this journey. He never wanted to worry us, so he shared little more then he needed, always telling us that he’d let us know when it was time to worry. We’ve respected his privacy and despite numerous offers to go with him to appointments, he has always wanted to go alone.

So today, it scared us to hear from his dr personally. The first time we actually talk to his dr is because the dr wanted us to be in the loop now. His latest scans show major metastatic disease progression, large portions of his lungs are blocked off by masses. The dr told him that it's time we talk about that elephant in the room that has been there for so long now…… hospice, medical power of attorney, living wills etc... ugh!! The dr wants to discuss a residential hospice facility. I don't even know what my uncle wants.... again, he never wanted to talk about it. Now, we have to.

I'm feeling so overwhelmed right now!! Trying to remember, deep breaths..... one step at a time....

[meatie]

Could post information about the date of diagnosis, stage, names of chemo undergo, surgeries, etc?

[Delinda]

Cokkie, so very sorry at your news. Damn this beast. Uncle is lucky to have you by his side. And remember, we are at your side. Gentle hugs to you and family. XXOXO, Delinda

[NWgirl]

It sounds like he's lived life on his terms - good for him. But good for his doctor for notifying his family that's no longer an option. I can't even imagine how hard this is for you all. He has carried his burden dutifully but now it's time to help lighten his load. Wishing you all strength at this difficult time.