Bad day got better, thanks to my CC family

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Delinda
Posts: 402
Joined: Sat Jul 12, 2014 8:39 pm
Location: Washington state

Bad day got better, thanks to my CC family

Postby Delinda » Mon Aug 18, 2014 9:55 pm

First, thank you all for the many replies and excellent advise. Being so frustrated with my surgeon, and then my onc was too stressful by far. I called Seattle Cancer Care Alliance today and what a difference! At first they said first available appointment was 9/17. When I explained what's been happening, Dr Back's nurse called me back and I see him tomorrow at 3:00. How's that for fast action!! SCCA brags about their survival rates for all stages & doesn't write anyone off, they are all about curative intent.
As a side note, called my insurance company to check status of approval for shots to raise white cell count. Knew it was early but wanted to gently nudge so it was ready by Friday 9:00 chemo appointment. (Onc said "I'm faxing it now." at 4:30 on Friday, 8/15.) My insurance co had nothing from him; called his office & at 2:00 today they called back to say, "Your's is the very next one we'll send." Makes you wonder who you can believe. I'm keeping my cool because the transition to SCCA may take a little while. May need to get chemo & shot here once more. But then I'm outta there!! Can't wait. Thanks again for all your support. I love you guys. XXOXO, Delinda
62 yo wife & mom
4/14 dx stage IIIC colon cancer
4.5cm tumor, 9/28 nodes
temp colostomy, take down 6/14
7/14 start FOLFOX, 6 mo

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Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: Bad day got better, thanks to my CC family

Postby Guinevere » Mon Aug 18, 2014 11:27 pm

Glad you were able to get in so quickly and hope they got the form submitted today. It sounds like the sooner you get established with the new onc, the better things will be.

God bless ~
Guinevere
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

WifeOfMike
Posts: 1495
Joined: Thu Dec 20, 2012 9:53 pm
Facebook Username: https://www.facebook.com/vbass123
Location: San Diego, California

Re: Bad day got better, thanks to my CC family

Postby WifeOfMike » Tue Aug 19, 2014 1:25 am

Push, push, push darling girl...... then just wait to be beamed up
I'm so glad I did. We just got accepted in a clinical trail and start first launch Aug 28th
Better care is worth the hassle, and I too have this team to thank for the support
So hang in there & we will both be smiling soon

(((BIG HUG)))
Vicki
Bad Ass WIFE
Hubs: CRC IVA,T3, N0, M1A
Resect/LN Mets 10/12
Folfox4/Avastin 11/12-5/13
Folfiri/Erbitux 6/13-10/13
Stivarga 12/13-4/14
Trial 4/14-/14
Trial 8/14-11/14
HOME Hospice 11/17/14
Guardian Angel 1/1/15
Cost of HOPE? PRICELESS

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Bad day got better, thanks to my CC family

Postby Bev G » Tue Aug 19, 2014 6:56 am

Hi Delinda!

Now, that's more like it!

So happy you are making the move.

Hugs to you,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

michelle c
Posts: 1929
Joined: Wed Dec 02, 2009 3:58 am

Re: Bad day got better, thanks to my CC family

Postby michelle c » Tue Aug 19, 2014 7:59 am

Yay! Delinda, you sound so much happier and I'm so happy for you too xx
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair

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singingholly
Posts: 1133
Joined: Thu Feb 27, 2014 3:37 am
Location: Northern Italy

Re: Bad day got better, thanks to my CC family

Postby singingholly » Tue Aug 19, 2014 8:33 am

Yay! So happy for you! One may say that wind has changed bit it's not true:you have changed direction. And now things will proceede in a very different way!
Hugs!
Olivia
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno

Delinda
Posts: 402
Joined: Sat Jul 12, 2014 8:39 pm
Location: Washington state

Re: Bad day got better, thanks to my CC family

Postby Delinda » Tue Aug 19, 2014 11:47 am

Thanks for the encouragement guys. I just got a call that my shots (neulasta) have been approved by my insurance company. We're on a roll!
62 yo wife & mom
4/14 dx stage IIIC colon cancer
4.5cm tumor, 9/28 nodes
temp colostomy, take down 6/14
7/14 start FOLFOX, 6 mo

pfCml73183
Posts: 653
Joined: Sat Jun 22, 2013 7:49 pm
Facebook Username: Celeste Marie Comeau
Location: FL

Re: Bad day got better, thanks to my CC family

Postby pfCml73183 » Tue Aug 19, 2014 11:50 am

Good for you Delinda! Everything is falling in place because YOU made it happen.
Peace, Celeste
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Bad day got better, thanks to my CC family

Postby KWT » Tue Aug 19, 2014 11:58 am

That's great news. :D

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: Bad day got better, thanks to my CC family

Postby peanut_8 » Tue Aug 19, 2014 1:12 pm

Delinda, very happy for you. Good luck with the shots, treatments and new docs.
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

JAZZToo
Posts: 509
Joined: Sun Oct 01, 2006 10:46 am
Location: New York City

Re: Bad day got better, thanks to my CC family

Postby JAZZToo » Tue Aug 19, 2014 5:12 pm

Delinda
It's good that the insurance approved the Neulasta. MSK bills Medicare over $7000 per Neulasta shot. I nearly fainted when I saw that on the bill.
Leslie

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Bad day got better, thanks to my CC family

Postby justin case » Tue Aug 19, 2014 5:54 pm

I am sooo sorry for bad language :shock: Butt I think you knew I was pissed. Nothing better than a new start on things, and don't be afraid to change again, I haven't, after I fired my first onc. Oncology is a business, and I'm sure you only deal with business' you trust. At $8,000.00 a treatment guaranteed by the insurance, you really do hold the upper hand. Lackadaisical employees abound in every employment position, and getting respect is your right. When you hold the purse-strings, you can affect all things.
Regards,
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

Delinda
Posts: 402
Joined: Sat Jul 12, 2014 8:39 pm
Location: Washington state

Re: Bad day got better, thanks to my CC family

Postby Delinda » Wed Aug 20, 2014 10:28 am

Too true Michael! We are customers in a business where they make darn good money. We have a right to expect prompt, courteous service with a smile. (Don't apologize for the language. I was touched by the outrage on my behalf that so many folks wrote.) I am one of the department managers at a retirement/skilled nursing community & drill my staff on this constantly. And if they don't display what I call "a loving heart" they don't last long. I feel so empowered by this forum. Hubby told me he was so proud of me at appointment with new onc. Said, "You were so smart, informed, organized, strong & positive." I would not be able to do this without all of you. Hugs! XXOXO, Delinda
62 yo wife & mom
4/14 dx stage IIIC colon cancer
4.5cm tumor, 9/28 nodes
temp colostomy, take down 6/14
7/14 start FOLFOX, 6 mo

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Bad day got better, thanks to my CC family

Postby justin case » Thu Aug 21, 2014 6:25 pm

Delinda wrote:Too true Michael! We are customers in a business where they make darn good money. We have a right to expect prompt, courteous service with a smile. (Don't apologize for the language. I was touched by the outrage on my behalf that so many folks wrote.) I am one of the department managers at a retirement/skilled nursing community & drill my staff on this constantly. And if they don't display what I call "a loving heart" they don't last long. I feel so empowered by this forum. Hubby told me he was so proud of me at appointment with new onc. Said, "You were so smart, informed, organized, strong & positive." I would not be able to do this without all of you. Hugs! XXOXO, Delinda

On your husbands behalf, the next time he messes up, PLEASE don't knock him over a tea kettle.
Regards,
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

WifeOfMike
Posts: 1495
Joined: Thu Dec 20, 2012 9:53 pm
Facebook Username: https://www.facebook.com/vbass123
Location: San Diego, California

Re: Bad day got better, thanks to my CC family

Postby WifeOfMike » Fri Aug 22, 2014 12:22 am

Maybe we need to start following this young lady's lead and make videos to send messages to DR's

I am a patient and I need to be heard- a 15 year old's perspective on being in the hospital
https://www.youtube.com/watch?v=BqFfRiyW07I

WHY DOES EVERYTHING GO.... BEEP?!?
https://www.youtube.com/watch?v=6T0oNg9p_Xo

Way to go young lady!
Vicki
Bad Ass WIFE
Hubs: CRC IVA,T3, N0, M1A
Resect/LN Mets 10/12
Folfox4/Avastin 11/12-5/13
Folfiri/Erbitux 6/13-10/13
Stivarga 12/13-4/14
Trial 4/14-/14
Trial 8/14-11/14
HOME Hospice 11/17/14
Guardian Angel 1/1/15
Cost of HOPE? PRICELESS


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