Alan : Final UPDATE - Sept 12

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Voxx66
Posts: 1844
Joined: Wed Jul 24, 2013 10:22 pm
Facebook Username: Michael Void Ward

Alan : Final UPDATE - Sept 12

Postby Voxx66 » Sun Aug 17, 2014 10:52 pm

Almost scared to ask this question but has anyone heard from Alanams lately?
DX and resect 10/2012 age 46
Stage IIa CRC
liver mets both lobes 8/2013
CEA 28
FOLFOX + Avastin 8/26/13 3 rounds
Folfox only 3 rds + rd 8
platelets low round 7,9,10 5FU only
1/14 CEA 1.0 y90
5fu
10/14 mets lung and peri
1/15 Folfiri
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ColOrPan
Posts: 378
Joined: Thu Aug 22, 2013 2:15 pm

Re: Alan

Postby ColOrPan » Sun Aug 17, 2014 11:14 pm

Was wondering about Alan also.
06/2012 DH rare intestinal type Ampullary/duodenal cancer. They extrapolate from colon cancer. FOLFOX 6 been working since Aug 2013. Feb 2014 once a month folfox as maintenance.
May 2014 Folfiri - fail
Starting off-label JAKAFI 08/25/14
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Marian1961
Posts: 278
Joined: Wed Sep 18, 2013 10:44 am

Re: Alan

Postby Marian1961 » Mon Aug 18, 2014 4:07 am

I'm worried.
Caregiver 53 brother
Dx 09/13 stage iv, met liver
Emergency stoma
? Chemo 09/30
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raeanne-ME
Posts: 62
Joined: Mon Oct 21, 2013 3:19 pm

Re: Alan

Postby raeanne-ME » Mon Aug 18, 2014 7:19 am

I've been worried about him, too :(
Dad (56) diagnosed 10/2013 Stage IV
11/2013-4/2013 xel, rad, folfox
4/30-complications from surgery
Danced at his daughter's wedding 8/9/14
More chemo and kicking butt.
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Delinda
Posts: 402
Joined: Sat Jul 12, 2014 8:39 pm
Location: Washington state

Re: Alan

Postby Delinda » Mon Aug 18, 2014 9:43 am

I've been wondering too. Hope he finds the strength to check in soon.
62 yo wife & mom
4/14 dx stage IIIC colon cancer
4.5cm tumor, 9/28 nodes
temp colostomy, take down 6/14
7/14 start FOLFOX, 6 mo
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skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Alan

Postby skypup » Mon Aug 18, 2014 10:49 am

He has not logged in since his surgery. I have an email address for a friend of his, and have emailed but have not heard back. Not to sound maudlin, but I have been checking obits in his home town and, thankfully, he is not listed.

Let's all send up a collective wish that he is recovering from surgery and will be in touch with us soon.

Miss you, Alan!
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Bev G
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Facebook Username: Bev Golde
Location: Quechee, VT

Re: Alan

Postby Bev G » Mon Aug 18, 2014 12:09 pm

Skypup wrote:He has not logged in since his surgery. I have an email address for a friend of his, and have emailed but have not heard back. Not to sound maudlin, but I have been checking obits in his home town and, thankfully, he is not listed.

Let's all send up a collective wish that he is recovering from surgery and will be in touch with us soon.

Miss you, Alan!


So, Spuppy (say that out loud...it's really cute :-) ) seems you know his last name. Can you check to see if he has a Facebook page? I think you're not on Facebook?
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
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jgall
Posts: 814
Joined: Wed Jan 05, 2011 9:44 pm
Location: New York City

Re: Alan

Postby jgall » Mon Aug 18, 2014 12:15 pm

I'm concerned too. I have private messaged him a couple time in the last month or so offering him some help, but he's not taken us up on it...however...he has always responded. Not so for my last message sent a week ago :(

Julia
DH Chris, 50, Dx Nov '10 Stg 4
cardiac arrest from 5-FU
Iri/Erbi, RFA, liver/colon resection, more Iri/Erbi
Oct14-Feb15 clinical trial
SIRT Apr15-unsuccessful
Stopped treatment May15
Hospice July15
Passed 8/15/15
http://www.caringbridge.org/visit/chrisandjulia
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DBF
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Location: New York

Re: Alan

Postby DBF » Mon Aug 18, 2014 2:29 pm

I'm worried too.
He responded to my PMs until last week.
I hope he is okay. Has anyone searched for a Facebook page? I don't know his last name.
6/13 Dx @ 29 Wks pregnant, 42 yo
Adenocarcinoma, mucinous
7/13 C-sec/col resec/part. hysterectomy
8/13 Pulm embolism
8/13 Spread to liver
9/13 Liver resection
FOLFOX
CEA UP
ADAPT: Xeloda/Celebrex
2/14 oopherectomy
10/15 obstruction surg
10/17 Scar tissue removal/vsg surg
2019: NED :)
2021: NED :D
2022: NED :)
Mom to 3 boys: 24, 13 & 9
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skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Alan

Postby skypup » Mon Aug 18, 2014 4:41 pm

I checked, and he does not have a FB page...

I will email his friend again.
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Delinda
Posts: 402
Joined: Sat Jul 12, 2014 8:39 pm
Location: Washington state

Re: Alan

Postby Delinda » Tue Aug 19, 2014 11:01 am

Thanks for checking again Spuppy. (Bev, I love that! And love you too, you're the best.) Praying Alan will pop up soon. XXOXO, Delinda
62 yo wife & mom
4/14 dx stage IIIC colon cancer
4.5cm tumor, 9/28 nodes
temp colostomy, take down 6/14
7/14 start FOLFOX, 6 mo
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DBF
Posts: 328
Joined: Fri Jun 07, 2013 1:44 pm
Facebook Username: https://www.facebook.com/#!/profile.php?id=1000008
Location: New York

Re: Alan

Postby DBF » Fri Aug 22, 2014 6:36 am

Bumping this up. Any news from Alan's friend?
6/13 Dx @ 29 Wks pregnant, 42 yo
Adenocarcinoma, mucinous
7/13 C-sec/col resec/part. hysterectomy
8/13 Pulm embolism
8/13 Spread to liver
9/13 Liver resection
FOLFOX
CEA UP
ADAPT: Xeloda/Celebrex
2/14 oopherectomy
10/15 obstruction surg
10/17 Scar tissue removal/vsg surg
2019: NED :)
2021: NED :D
2022: NED :)
Mom to 3 boys: 24, 13 & 9
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skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Alan

Postby skypup » Fri Aug 22, 2014 9:28 am

No news. I've emailed twice, carefully explaining who I was and that Alan had given me his email, and that Alan had shared some personal info with me so I could look him up if need be. I google his name daily to see if news pops up, and fortunately none has.

Alan, we miss you and are worried about you. I hope you are at ease and surrounded by peace and love. I bid you a very fond, "Good morning." :)
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chrissyrice
Posts: 1171
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Location: Atlanta, Georgia

Re: Alan

Postby chrissyrice » Fri Aug 22, 2014 9:43 am

Alan,
Sending you peace and comfort and hope you know that we are with you in spirit and thinking about you.

You have had such a hard long road with cancer and know how much you have gone through. Wishing you some comfort and that your medical team has gotten your pain under control.

Chrissy
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months
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Voxx66
Posts: 1844
Joined: Wed Jul 24, 2013 10:22 pm
Facebook Username: Michael Void Ward

Re: Alan

Postby Voxx66 » Fri Aug 22, 2014 2:44 pm

Thanks for trying Skypup. I'd like to imagine him free from pain one way or another.
DX and resect 10/2012 age 46
Stage IIa CRC
liver mets both lobes 8/2013
CEA 28
FOLFOX + Avastin 8/26/13 3 rounds
Folfox only 3 rds + rd 8
platelets low round 7,9,10 5FU only
1/14 CEA 1.0 y90
5fu
10/14 mets lung and peri
1/15 Folfiri
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