Alan : Final UPDATE - Sept 12

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WifeOfMike
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Re: Alan ..... UPDATED Aug 31 / 14

Postby WifeOfMike » Mon Sep 01, 2014 2:11 pm

Friend of Alan,

Thank you so much for keeping an eye on Alan and keeping us updated
We were worried when he disappeared, after telling us he was not doing well & was to be admitted in a hospital
We were also fearful he was out there by himself. It comforts me to know that is not the case

Please send Alan our love & best wishes during this difficult time
Vicki
Bad Ass WIFE
Hubs: CRC IVA,T3, N0, M1A
Resect/LN Mets 10/12
Folfox4/Avastin 11/12-5/13
Folfiri/Erbitux 6/13-10/13
Stivarga 12/13-4/14
Trial 4/14-/14
Trial 8/14-11/14
HOME Hospice 11/17/14
Guardian Angel 1/1/15
Cost of HOPE? PRICELESS

lorrainem
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Location: NY

Re: Alan ..... UPDATED Aug 31 / 14

Postby lorrainem » Mon Sep 01, 2014 8:15 pm

Thank you friend of Alan. I'm hoping the location debacle gets fixed ASAP and Alan can then be comfortable in hospice. Sending positives to him at this exhausting time.
Chemorad/Surgery/Chemo
Stage II, no mets, no nodes NED 05/08 again 08/08 again 11/08
Ileostomy reversal 10/16/08

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Guinevere
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Location: NE TX

Re: Alan ..... UPDATED Aug 31 / 14

Postby Guinevere » Tue Sep 02, 2014 12:44 am

What a blessing to know that Alan has folks working to make sure he gets the very best care. Thank you, Friend of Alan, for letting us know how he's doing. Hopefully, he'll be in a nice facility this week. Tell him we're praying for him!

God bless ~
Guinevere
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

Delinda
Posts: 402
Joined: Sat Jul 12, 2014 8:39 pm
Location: Washington state

Re: Alan ..... UPDATED Aug 31 / 14

Postby Delinda » Tue Sep 02, 2014 10:09 am

Dear Friend, thank you so much for the update! I know you will let him know that his CC family has flooded him with messages. What a dear friend you are! Love to our brother as he walks this difficult path. XXOXO, Delinda
62 yo wife & mom
4/14 dx stage IIIC colon cancer
4.5cm tumor, 9/28 nodes
temp colostomy, take down 6/14
7/14 start FOLFOX, 6 mo

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Bev G
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Re: Alan ..... UPDATED Aug 31 / 14

Postby Bev G » Tue Sep 02, 2014 10:28 am

How kind of you, Friend of Alan, to let us know about how he has been doing. We have been so concerned about him. Please send him our love and best wishes for smoother sailing and excellent care. Thank you so much for helping him. We all wish we could. I hope you will keep us informed.

Hugs to you, and Alan.

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Marian1961
Posts: 278
Joined: Wed Sep 18, 2013 10:44 am

Re: Alan ..... UPDATED Aug 31 / 14

Postby Marian1961 » Tue Sep 02, 2014 2:26 pm

Thank you so much for the update. I have thought of Alan every day. I so hope he gets to the Hospice of his choice and is surrounded by love and peace.
Caregiver 53 brother
Dx 09/13 stage iv, met liver
Emergency stoma
? Chemo 09/30

alphagam
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Facebook Username: Kathy Maine Ruess

Re: Alan ..... UPDATED Aug 31 / 14

Postby alphagam » Tue Sep 02, 2014 2:34 pm

Thank you, Friend of Alan. He is a special member of this board and we care.
Dx Feb 2010 4 cm tumor, just inside rectum
EUS stated T3 tumor
2nd opinion, need better path
Mar 2010 transanal surgery. Surgery by board certified CRS found tumor only in lining
6 exams of surg site, 3 PET, 3 scopes laterNED.
Scope in Mar2015, clean colon
Next scope/test in 3 years

friendofalanams
Posts: 6
Joined: Sun Aug 31, 2014 6:18 pm

Re: Alan ..... UPDATED Sept 2

Postby friendofalanams » Tue Sep 02, 2014 8:33 pm

An update: Alan has been accepted for admission to (what appears to be) a nice, reputable hospice. His oncology staff has come through with this. He is scheduled to be moved there tomorrow am.

Delinda
Posts: 402
Joined: Sat Jul 12, 2014 8:39 pm
Location: Washington state

Re: Alan : UPDATED Aug 31 + Sept 2

Postby Delinda » Tue Sep 02, 2014 9:43 pm

Good news indeed. Hospice should be able to care for him as he needs at this critical juncture. Please give him our love & support.
62 yo wife & mom
4/14 dx stage IIIC colon cancer
4.5cm tumor, 9/28 nodes
temp colostomy, take down 6/14
7/14 start FOLFOX, 6 mo

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Alan : UPDATED Aug 31 + Sept 2

Postby skypup » Tue Sep 02, 2014 10:17 pm

That is good news, thank you for letting us know. Will you tell Alan his friends here have never stopped thinking of him and wishing him peace and ease? He is truly missed.

Cb75
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Location: Ontario, Canada

Re: Alan : UPDATED Aug 31 + Sept 2

Postby Cb75 » Wed Sep 03, 2014 6:23 pm

I am very happy and relived to hear that Alan will be moved. Please continue to pass on any information you can and of course our messages to Alan :)
39y female Stage IV
diagnosed April 2012
sigmoid resect May 2012
liver resect Aug 2012
Folfox Oct 2012
lungs Sep 2013
R and L laser lung resection Nov 2013/Feb 2014
FOLFIRI and Avastin Apr 2014 ongoing...

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BrownBagger
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Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Alan : UPDATED Aug 31 + Sept 2

Postby BrownBagger » Wed Sep 03, 2014 8:09 pm

I consider Alan a dear friend, and I wish him nothing but the best (care and everything else) at this point in his journey. He's clearly a special person.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: Alan : UPDATED Aug 31 + Sept 2

Postby CRguy » Wed Sep 03, 2014 8:10 pm

BrownBagger wrote:I consider Alan a dear friend, and I wish him nothing but the best (care and everything else) at this point in his journey. He's clearly a special person.
WORD
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

WifeOfMike
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Re: Alan : UPDATED Aug 31 + Sept 2

Postby WifeOfMike » Thu Sep 04, 2014 3:25 am

I'm hoping Alan was transferred and is getting settled in
Thanks for the updates "Friend of Alan".
It is very unsettling he was sent to the wrong place in his condition!

Best wishes to both if you!
Vicki
Bad Ass WIFE
Hubs: CRC IVA,T3, N0, M1A
Resect/LN Mets 10/12
Folfox4/Avastin 11/12-5/13
Folfiri/Erbitux 6/13-10/13
Stivarga 12/13-4/14
Trial 4/14-/14
Trial 8/14-11/14
HOME Hospice 11/17/14
Guardian Angel 1/1/15
Cost of HOPE? PRICELESS

michelle c
Posts: 1929
Joined: Wed Dec 02, 2009 3:58 am

Re: Alan : UPDATED Aug 31 + Sept 2

Postby michelle c » Thu Sep 04, 2014 4:37 am

Thank you very much for the update. It's good to hear that Alan will be moved to the appropriate setting for him.
Alan is a kind and gentle person and I was upset for him that he was in a nursing home that was not particularly nice.
All the best to dear Alan for the move - I hope that he remains comfortable. Thinking of him and thank you for taking the time to update us.

Kind regards,

Michelle
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair


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