Postby Cabisbee » Thu Aug 14, 2014 9:39 am
My husband went in today to get a post chemo follow-up scan. He had his one year colonoscopy at the end of July and they removed 2 more precancerous adenomas, but his previous site was clear, as was the rest of his colon. He finished chemo in May and this is the first scan he has had since then to check for re-occurrence or any mets. We were told he would be getting a PET/CT and when he showed up they had scheduled him for a regular CT. I spoke with our oncologists nurse and she said the oncologist wrote in her notes that she wanted a regular CT. I am very uncomfortable with this discrepancy and the doctor is out of town until Monday, which is when we see her to get the results anyway. So what is typical for those of you who have been at this point. I was under the impression that a PET/CT is more sensitive and am extremely uncomfortable relying on a regular CT at this point. If it is clear, he won't be getting anymore scans for a while. Am I over-reacting or should he have gotten the PET/CT instead? I'm a nurse, but this is not my field of expertise. He was rather advance stage 3 with peritoneal adhesion, not great surgical margins and I am rather anxious about this now.
Cabisbee, husband dx 7/22/13 at age 42
Stage 3B, 2 out of 27 lymph nodes positive
Lynch gene positive
LAR 7/23/13, 8cm mass, bowel wall perforation, peritoneal adhesion
8/14/13 PET/CT NED
12/5/13 8th round of Folfox
2/10/14 radiation x 28
3/2014 9th round of Folfox, Oxaliplatin discontinued
5/2014 12th round of 5FU completed
7/2014 CT NED, colonoscopy 3 adenoma's
7/2015 CT NED, colonoscopy 2 adenoma's
7/2016 CT NED, colonoscopy 1 adenoma