O/T For my pals re: husband's lymphoma UPDATE

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ColOrPan
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Joined: Thu Aug 22, 2013 2:15 pm

Re: O/T For my pals following my husband's lymphoma

Postby ColOrPan » Wed Aug 13, 2014 11:28 pm

Yay! That's so great about your husband especially considering his condition earlier this year. I hope you get great news too!
06/2012 DH rare intestinal type Ampullary/duodenal cancer. They extrapolate from colon cancer. FOLFOX 6 been working since Aug 2013. Feb 2014 once a month folfox as maintenance.
May 2014 Folfiri - fail
Starting off-label JAKAFI 08/25/14

orcasres
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Location: Orcas Island, WA

Re: O/T For my pals following my husband's lymphoma

Postby orcasres » Wed Aug 13, 2014 11:39 pm

I am SOOO hoping for good scan results for you. I am very glad for your husband as well; I hope he can appreciate how fortunate he is and start appreciating the support he has had through his ordeal.

Take good care of yourself, Bev. Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far

michelle c
Posts: 1906
Joined: Wed Dec 02, 2009 3:58 am

Re: O/T For my pals following my husband's lymphoma

Postby michelle c » Wed Aug 13, 2014 11:59 pm

Wow Bev, this is great news! You know, I had a good feeling right from the start that he would beat this and be ok. I don't know why but I just did. He must be pleased about returning to work at some stage in some aspect - he is a brilliant doctor and must have so much knowledge and expertise that other medical professionals could benefit from working with him.

All the best to you, dear Bev.

A hug for you xxxx
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

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Guinevere
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Location: NE TX

Re: O/T For my pals following my husband's lymphoma

Postby Guinevere » Thu Aug 14, 2014 12:40 am

I, too, echo what Voxx said! I'm praying for the scan to be clean and the Lord's will be done. You're often in my prayers as is Steve. Hopefully, you guys can really enjoy the upcoming autumn in all its glorious color.

Hugs to you, dear friend ~
Gwen
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

pog451
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Re: O/T For my pals following my husband's lymphoma

Postby pog451 » Thu Aug 14, 2014 2:13 am

With Voxx on this. This is great news. Glad for him. BUTT! You tore an arm out to make sure he was saved, now its his turn for you.

100% support for you from here on in or we're putting a team together to come round and explain it to him with fence posts.
09.11 Dx @ 46, uT3uN1M0 G2
11.11 radio+Xeloda
01.12 LAR
03.12 Xeloda
09.12 Liver mets, 2 LN
09.12 Folfox+Avastin
02.13 Resection
04.13 Folfox & Avastin
11.13 Local recurrence
02-07.14 FOLFIRINOX
08.14 Re-rediation
Left us 28.05.2015

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lohidoc
Posts: 454
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Re: O/T For my pals following my husband's lymphoma

Postby lohidoc » Thu Aug 14, 2014 8:48 am

That is an amazing turn around! Congrats to both, and I am sure your better half will emerge healthy and mellowed after this. And good luck with your scan!
"Half of what I know is wrong. I don't know which half."

Age 56
Dx 19/7/11
R. hemicolectomy 25/7/11
IIIc, 7 / 23 nodes,
no mets
Folfox 21/8/11
CT Scan 6/3/12 NED
CT Scan 21/6/12 30+ lung mets, 2 retroperitoneal tumours
marcdu4.wordpress.com

Bob_Weiss
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Location: Brooklyn, NY

Re: O/T For my pals following my husband's lymphoma

Postby Bob_Weiss » Thu Aug 14, 2014 9:49 am

News on husband seems terrific; certainly better than would have been expected some months ago.
Hope your minor scare turns out to be of no consequence. Most of us are super vigilant about any minor deviation from perfectly smooth progress.
Stage 3 R/C -1 node+ ( 7/09)
5 wks radiation, 2 wks chemo: 5FU (8-9/09)
Rectal surgery: tumor removal (11/09)
10 rounds Xeloda: 3000mg/daily 1 wk on/1 wk off (1/10-6/10)
Supplements: Aspirin, Calcium, Vit. D3
03/27/17: 7+ yrs. since surgery--still NED

peanut_8
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Re: O/T For my pals following my husband's lymphoma

Postby peanut_8 » Thu Aug 14, 2014 10:22 am

Hoping for good news with your scan Bev. Must agree with Voxx and the others. If Steve gets to out of hand we may need to introduce him to our collective fists.
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: O/T For my pals following my husband's lymphoma

Postby chrissyrice » Thu Aug 14, 2014 6:54 pm

Geez that sounds amazing! There really is something to this stem cell thing. Maybe he could go back to work doing research?

You will have to say more about you too.... what's with the CEA markers? When do you scan?

Sorry if I am repeating question here but I have been off site for a few days ...

Chrissy
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

jens22
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Location: Long Island, NY

Re: O/T For my pals following my husband's lymphoma

Postby jens22 » Thu Aug 14, 2014 9:12 pm

That is amazing. I never thought he would get to transplant....and now...wow!!! Good things have to happen for you too!
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 10 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 57 Mom of 3 boys.

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Bev G
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Re: O/T For my pals following my husband's lymphoma

Postby Bev G » Fri Aug 15, 2014 7:37 am

Hello friends,

My scan yesterday was negative. My oncologist said I am "95% cured". I believe he said I will have ONE MORE SCAN in April, and one more visit with him then, and then I "will be done". I was zonked on Vitamin X, so I'm not totally clear on the whole thing, but my husband affirms this is what he said. The onc said my recurrence risk after five years is <1%. I am overwhelmed with weirdness today. Why me? I never, ever asked "why me" about getting cancer. Today I can't stop asking "why me" about having survived. I feel the cumulative grief of all the friends I have lost. I feel confused and unwell. All very, very strange. I'm going to take a bit of time and try to process this. Thank you all for your amazing support. I love you all.

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

justin case
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Location: Katy, Texas

Re: O/T For my pals following my husband's lymphoma

Postby justin case » Fri Aug 15, 2014 7:53 am

Bev G wrote:Hello friends,

My scan yesterday was negative. My oncologist said I am "95% cured". I believe he said I will have ONE MORE SCAN in April, and one more visit with him then, and then I "will be done". I was zonked on Vitamin X, so I'm not totally clear on the whole thing, but my husband affirms this is what he said. The onc said my recurrence risk after five years is <1%. I am overwhelmed with weirdness today. Why me? I never, ever asked "why me" about getting cancer. Today I can't stop asking "why me" about having survived. I feel the cumulative grief of all the friends I have lost. I feel confused and unwell. All very, very strange. I'm going to take a bit of time and try to process this. Thank you all for your amazing support. I love you all.

Bev

I'm really glad things went well. Process everything, and do something you enjoy. Stay out of the kid's pot though, it's no longer legal for you :roll:
Warm regards,
Michael
PS I'm off to get my scan at 10 AM. Be assured I will have a beer after and contemplate ????
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

vickitwo
Posts: 696
Joined: Thu Apr 26, 2012 9:56 am
Location: USA

Re: O/T For my pals re: husband's lymphoma UPDATE

Postby vickitwo » Fri Aug 15, 2014 8:51 am

I am totally ecstatic for you! :D :lol: :D :lol: :D :lol: Your story is one of hope and inspiration. It would be SO WONDERFUL to hear MORE stories here about people who have BEAT this horrible disease. Your wise and kind words on this forum have helped so many. WOO :!: HOO :! :D May you have a long, healthy and happy life.
Last edited by vickitwo on Fri Aug 15, 2014 9:48 pm, edited 1 time in total.
Vicki

DH Dx 1/2012 @ age 52
stage IV CC
transverse colon,omentum, cecum,liver,lungs,L5
9 rounds of Folfox, Avastin,
5FU/Leucovorin/Avastin
radiation tx to L5 and hips
Folfiri/Zaltrap
12/13/13 Folfox/Avastin
1/4/2014 passed away @ Hospice House- age 54

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jgall
Posts: 814
Joined: Wed Jan 05, 2011 9:44 pm
Location: New York City

Re: O/T For my pals re: husband's lymphoma UPDATE

Postby jgall » Fri Aug 15, 2014 8:52 am

That is really great news, Bev. So glad to hear it. Don't ask why, there is no answer to it. Just be happy with it, you know all your friends here current and passed are thrilled for you and would want nothing but the best for you.

Julia
DH Chris, 50, Dx Nov '10 Stg 4
cardiac arrest from 5-FU
Iri/Erbi, RFA, liver/colon resection, more Iri/Erbi
Oct14-Feb15 clinical trial
SIRT Apr15-unsuccessful
Stopped treatment May15
Hospice July15
Passed 8/15/15
http://www.caringbridge.org/visit/chrisandjulia

Cj51
Posts: 893
Joined: Thu May 13, 2010 5:58 pm
Location: Midwest

Re: O/T For my pals re: husband's lymphoma UPDATE

Postby Cj51 » Fri Aug 15, 2014 9:07 am

YAY Bev!!! That is wonderful, awesome news!

You are an amazing woman, and you deserve to live a long and healthy life with not so much as a sore throat to ail you for the rest of it.

Hugs,

Cj
DX Stage IIIb RC, T3N1M0, April 2010, 51
6 wks Xelox/rad 6/10
resection, temp illeostomy 8/10 Complete response!
12 rounds FOLFOX for clean up 9/10, Allergic to Oxi, started Xeloda only 12/10
Ileo takedown 9/28/11
4/2020 NED


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